Use of Handheld Wireless Technology for a Home-based Sickle Cell Pain Management Protocol

McClellan, Catherine B.; Schatz, Jeffrey; Puffer, Eve S.; Sanchez, Carmen E.; Stancil, Melita; Roberts, Carla W.

doi:10.1093/jpepsy/jsn121

Cited by 71 publications

(108 citation statements)

References 26 publications

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“…Several studies in the surgical literature (14,15) have demonstrated the potential for "fast-tracking" postoperative patients with some success. Additionally, in patients with sickle-cell disease, a lot of research in emergency rooms and outpatient and inpatient settings has been focused on developing the best collaborative approach to minimize resource utilization and improve pain control (16)(17)(18). Another significant issue in IBD patients is nutrition.…”

Section: Discussionmentioning

confidence: 99%

Hospital Readmissions in Patients With Inflammatory Bowel Disease

Hazratjee

Agito

López

et al. 2013

American Journal of Gastroenterology

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Section: Discussionmentioning

confidence: 99%

Hospital Readmissions in Patients With Inflammatory Bowel Disease

Hazratjee

Agito

López

et al. 2013

American Journal of Gastroenterology

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“…11 One such application is the advanced symptom management system (ASyMS), developed to monitor and manage six symptoms (nausea, vomiting, mucositis, hand-foot syndrome, diarrhea, and fatigue) during treatment for lung, breast, or colorectal cancer among adult patients in the United Kingdom. 12 Software determined whether patient-reported symptoms required an immediate call from a healthcare professional or a self-care message tailored to the severity of their symptom.…”

Section: Introductionmentioning

confidence: 99%

Feasibility of a Symptom Management Intervention for Adolescents Recovering From a Hematopoietic Stem Cell Transplant

Rodgers

Krance²,

Street³

et al. 2013

Cancer Nursing

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Background Adolescents undergoing a hematopoietic stem cell transplant (HSCT) experience a variety of side effects and eating difficulties. Few interventions exist to assist patients with self-care after HSCT hospitalization. The Eating After Transplant (EAT!) program is a mobile phone application developed to assist adolescents with self-management of common eating related issues during HSCT recovery. Objective This study examined the acceptability and usability of the EAT! program among adolescents and assessed the competency of the participants using the program after hospital discharge through the first 100 days post HSCT. Methods A repeated measures design was used to evaluate the EAT! application with 16 adolescent patients recovering from an allogeneic HSCT. Participants provided verbal feedback and used a Likert-scale to rate acceptability and usability of the application. Additionally, a tracking device monitored use of the application. Competency was measured with orientation time and independent demonstration of use of the application. Results Acceptability remained high throughout the study, but use significantly decreased over time. Patients reported familiarity with the program’s content as the reason for the declining use. Competency was excellent with a short orientation period and independent demonstration throughout the study. Conclusions A mobile phone application is a feasible intervention to educate adolescents with symptom management strategies. Future research needs to examine factors affecting sustainability of use over time. Implications for Practice Healthcare providers need to continue to develop and evaluate innovative methods to educate adolescents on effective self-care strategies throughout HSCT recovery.

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“…One article (46) screened for persons with chronic (or recurrent) pain based on the American Psychological Association definition, and seven articles differentiated chronic from acute pain (27, 30, 41, 45) or were based on the number of vaso-occlusive crises (38, 41, 47). The remaining 20 articles did not mention if the intervention targeted acute pain, chronic pain, vaso-occlusive pain, or a combination.…”

Section: Resultsmentioning

confidence: 99%

“…After a thorough review of the non-pharmacological therapy literature for persons with SCD and chronic pain, we found only one article (46) that reported screening persons with chronic (or recurrent) pain based on the American Psychological Association definition of chronic pain. There were four additional articles that either defined or differentiated chronic (or recurrent) pain from acute pain or pain associated with vaso-occlusive crises (27,30,41, 45), and three studies that screened patients on the number of vaso-occlusive crises either within the last month (38) or year (41,47).…”

Section: Discussionmentioning

confidence: 99%

Sickle Cell Disease: A Review of Nonpharmacological Approaches for Pain

Williams

Tanabe

2016

Journal of Pain and Symptom Management

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Context Sickle cell disease (SCD) is a life-threatening condition that affects more than seven million people worldwide. The most common complication experienced by persons living with SCD is pain. Evidence supports the use of non-pharmacologic therapies in managing psychological and social complications of pain in persons with SCD, but there is little consensus if these approaches can also be applied for the treatment of pain in SCD. Objectives To describe and synthesize the use of non-pharmacological therapies for reducing pain of any type and origin in persons SCD. Methods A literature search was conducted using PsycINFO, PsycARTICLES, PubMed, CINAHL, and Embase. Databases were searched using the following terms: sickle cell, pain, and non-pharmacological therapies. Interventions were graded for methodological quality, and categorized as 1) peer-support group therapies, 2) educational/psychological therapies, and 3) skill-based therapies. Results Twenty-eight non-pharmacological interventions for persons with SCD were examined. Of these studies, a wide variety of non-pharmacological interventions were tested. Twelve studies yielded significant improvements in pain, three studies reported no positive effect or differences between experimental and control conditions on pain or a pain-related outcome, and one study reported a negative or detrimental intervention effect. Conclusion Approximately half of the studies reviewed demonstrated success in alleviating pain, suggesting that patients are able to use non-pharmacological interventions to reduce pain with some degree of success. Questions still remain regarding the efficacy and generalizability of these interventions for persons with SCD.

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Use of Handheld Wireless Technology for a Home-based Sickle Cell Pain Management Protocol

Abstract: Wireless data transfer technology has significant potential to become a practical method to improve symptom monitoring and communication between patients and providers.

Cited by 71 publications

References 26 publications

Hospital Readmissions in Patients With Inflammatory Bowel Disease

Hospital Readmissions in Patients With Inflammatory Bowel Disease

Feasibility of a Symptom Management Intervention for Adolescents Recovering From a Hematopoietic Stem Cell Transplant

Sickle Cell Disease: A Review of Nonpharmacological Approaches for Pain

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