Use of generic and condition-specific measures of health-related quality of life in NICE decision-making: a systematic review, statistical modelling and survey

Longworth, Louise; Yang, Yaling; Young, Tracey; Mulhern, Brendan; Alava, Mónica Hernández; Mukuria, Clara; Rowen, Donna; Tosh, Jonathan; Tsuchiya, Aki; Evans, Philippa; Keetharuth, Anju Devianee; Brazier, John

doi:10.3310/hta18090

Cited by 299 publications

(357 citation statements)

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“…It was necessary to run 100,000 simulations to obtain The MAPS Reporting Statement: Explanation and Elaborationconvergence to a mean across simulations. For each simulation mean, the EQ-5D score was calculated and percentiles were used to summarise the variability around the mean estimate'' [37].…”

Section: Item 18: Uncertaintymentioning

confidence: 99%

The MAPS Reporting Statement for Studies Mapping onto Generic Preference-Based Outcome Measures: Explanation and Elaboration

et al. 2015

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Background The process of ''mapping'' is increasingly being used to predict health utilities, for application within health economic evaluations, using data on other indicators or measures of health. Guidance for the reporting of mapping studies is currently lacking. Objective The overall objective of this research was to develop a checklist of essential items, which authors should consider when reporting mapping studies. The MAPS (MApping onto Preference-based measures reporting Standards) statement is a checklist, which aims to promote complete and transparent reporting by researchers. This paper provides a detailed explanation and elaboration of the items contained within the MAPS statement. Methods In the absence of previously published reporting checklists or reporting guidance documents, a de novo list of reporting items and accompanying explanations was created. A two-round, modified Delphi survey, with representatives from academia, consultancy, health technology assessment agencies and the biomedical journal editorial community, was used to identify a list of essential reporting items from this larger list. Results From the initial de novo list of 29 candidate items, a set of 23 essential reporting items was developed. The items are presented numerically and categorised within six sections, namely, (i) title and abstract, (ii) introduction, (iii) methods, (iv) results, (v) discussion and (vi) other. For each item, we summarise the recommendation, illustrate it using an exemplar of good reporting practice identified from the published literature, and provide a detailed explanation to accompany the recommendation. Conclusions It is anticipated that the MAPS statement will promote clarity, transparency and completeness of reporting of mapping studies. It is targeted at researchers developing mapping algorithms, peer reviewers and editors involved in the manuscript review process for mapping studies, and the funders of the research. The MAPS working group plans to assess the need for an update of the reporting checklist in 5 years' time. Each of the 23 items contained within the MAPS reporting statement is illustrated with an exemplar of good reporting practice identified from the published literature. In addition, a detailed explanation and elaboration is provided for each of the 23 reporting items.It is anticipated that the MAPS reporting statement will promote clarity, transparency and completeness of reporting of mapping studies.

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Section: Item 18: Uncertaintymentioning

confidence: 99%

The MAPS Reporting Statement for Studies Mapping onto Generic Preference-Based Outcome Measures: Explanation and Elaboration

et al. 2015

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“…További előnye, hogy 170 nyelven hivatalos nyelvi verzió készült belőle, így nemzetközi vizsgálatokban is alkalmazható. Az EQ-5D-eredmények továbbá fontos inputjai az egészség-gazdaságtani elemzésekben az életminőséggel korrigált életév (quality adjusted life year -QALY) kiszámolásának [2].…”

Section: Rövidítésekunclassified

A magyar lakosság egészségi állapota 2000 és 2010 között

et al. 2015

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Pécsi Tudományegyetem, Egészségbiztosítási Intézet, Pécs 5 Pest Megyei Flór Ferenc Kórház, Reumatológiai és Fizioterápiás Osztály, KistarcsaBevezetés: Hazánkban 2000-ben készült olyan felmérés, amely a lakosság egészségi állapotát vizsgálta EQ-5D kérdő-ívvel. Célkitűzés: A lakosság egészségi állapotának felmérése különböző szociodemográfi ai jellemzők szerint és össze-hasonlítás a 2000-es adatokkal. Módszer: 2010-ben egy nemzetközi kutatás keretében internetalapú keresztmetszeti kérdőíves vizsgálatot végeztek a lakosság körében az EQ-5D-3L kérdőívvel. Eredmények: 2281 válaszadó (nők: 62,3%) töltötte ki a kérdőívet, az átlagéletkor 40,8 év volt. Az EQ-5D-index 0,902 (18-24 év) és 0,795 (65+) között alakult. Szignifi káns összefüggést találtak az életminőség és a nem, életkor, iskolázottság, jövedelem között (F( 4,1967 ) = 35,12, p = 0,000). Az eredmények nem térnek el szignifi kánsan a 2000-es felmérés eredményeitől a 18-24 éves korcsoportot kivéve, ahol alacsonyabb értékeket kaptak. Következtetések: Miközben 2000 és 2010 között a lakosság várható élettartama 3 évvel nőtt, az egészségi állapota nem javult, sőt a 18-24 év közötti korosztályban romolhatott is, nemzetközi összehasonlításban pedig továbbra is a legrosszabbak közé tartozik. Nem csökkentek az egészségi ál-lapottal összefüggő egyenlőtlenségek jövedelem és iskolai végzettség szerint. Orv. Hetil., 2015Hetil., , 156(50), 2035Hetil., -2044 Kulcsszavak: egészségi állapot, EQ-5D, EuroVaQ, Magyarország Health state of the Hungarian population between 2000-2010Introduction: So far, the latest survey which used the EQ-5D questionnaire to measure the health status of the Hungarian population was carried out in 2000. Aim: To explore the health state of the Hungarian population by sociodemographic characteristics, and to compare it with the results from 2000. Method: As part of an international research project, a cross-sectional, online survey was carried out among the general population in 2010 using the EQ-5D-3L questionnaire. Results: In total, 2281 respondents (female: 62.3%) completed the questionnaire with an average age of 40.8 years. The EQ-5D score ranged from 0.902 (in age-group 18-24) to 0.795 (65+). The authors found signifi cant association between the EQ-5D score and all the socio-demographic variables (gender, age, education, income) included in the regression model (F( 4,1967 ) = 35.12, p = 0.000). The results did not differ signifi cantly from the health survey in 2000, except for the youngest population group (age 18-24), where signifi cantly lower scores were found in the sample. Conclusions: While life expectance increased by 3 years between 2000 and 2010, the health status of the Hungarian population did not change signifi cantly, and might even decreased among young adults in fact. Inequalities in health status by income and education remain signifi cant. In international comparison, the health status of the Hungarian population remains among the worst ones.

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“…It is designed to measure a core set of domains believed to impact on quality of life and linked to health. However, with this focus on certain aspects of health, the EQ-5D may not adequately reflect the impact of all health care interventions [10], such as for hearing or vision disorders [11], and severe mental health problems [12], and particularly of those resulting in broader personal and interpersonal wellbeing benefits, such as public health and social care interventions [13][14][15][16][17][18][19]. An alternative framework for measuring treatment benefits is with the ICEpop CAPability (ICECAP) measures, underpinned by Amartya Sen's capability approach [20].…”

Section: Introductionmentioning

confidence: 99%

Measuring Health and Broader Well-Being Benefits in the Context of Opiate Dependence: The Psychometric Performance of the ICECAP-A and the EQ-5D-5L

et al. 2016

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2 Key points What is already known about the topic? Treatments for substance use disorders aim at improving health and, most importantly, broader wellbeing. Health-related measures of quality of life may not adequately capture the broader wellbeing benefits associated with such complex interventions. Comprehensive evidence on the validity and responsiveness of these measures in this context is lacking. When broader capability-wellbeing benefits are expected, NICE recommends the parallel use of an ICECAP measure but their measurement properties in this context are yet unknown. What does the paper add to existing knowledge? This is the first study exploring the psychometric properties of the EQ-5D-5L and ICECAP-A measures in the context of drug addiction. The results indicate that the ICECAP-A is a promising measure for capturing both health and broader wellbeing benefits in this context. 3 ABSTRACT Background:Measuring outcomes in economic evaluations of social care interventions is

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Use of generic and condition-specific measures of health-related quality of life in NICE decision-making: a systematic review, statistical modelling and survey

Abstract: This project was funded by the UK Medical Research Council (MRC) as part of the MRC-NIHR methodology research programme (reference G0901486) and will be published in full in Health Technology Assessment; Vol. 18, No. 9. See the NIHR Journals Library website for further project information.

Cited by 299 publications

References 200 publications

The MAPS Reporting Statement for Studies Mapping onto Generic Preference-Based Outcome Measures: Explanation and Elaboration

The MAPS Reporting Statement for Studies Mapping onto Generic Preference-Based Outcome Measures: Explanation and Elaboration

A magyar lakosság egészségi állapota 2000 és 2010 között

Measuring Health and Broader Well-Being Benefits in the Context of Opiate Dependence: The Psychometric Performance of the ICECAP-A and the EQ-5D-5L

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