Use of coping strategies in multiple sclerosis: Association with demographic and disease-related characteristics✰

Holland, David; Schlüter, Daniela K; Young, Carolyn A; Mills, Roger; Rog, David; Ford, Helen; Orchard, Kim

doi:10.1016/j.msard.2018.10.016

Cited by 32 publications

(41 citation statements)

References 34 publications

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“…The finding that both the Very High morning and evening fatigue groups used self-blame as a coping strategy is consistent with prior research that identified self-blame as a predictor of fatigue in new parents [46], as well as in patients with melanoma [47], multiple sclerosis [48], and breast cancer [49]. In contrast, self-compassion was identified by patients with ESKD as an effective intervention to decrease their selfblame when they needed to ask for support to cope with their fatigue [44].…”

Section: Discussionsupporting

confidence: 87%

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Higher levels of stress and different coping strategies are associated with greater morning and evening fatigue severity in oncology patients receiving chemotherapy

Wright

Kober

Cooper

et al. 2020

Support Care Cancer

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Section: Discussionsupporting

confidence: 87%

“…As an emotion-based coping strategy, venting refers to focusing on and expressing negative feelings [17]. While not evaluated in oncology patients, venting was found to increase patients' ability to cope with both positive and negative feelings about multiple sclerosis [48] and may warrant evaluation as a strategy for fatigue.…”

Section: Discussionmentioning

confidence: 99%

Higher levels of stress and different coping strategies are associated with greater morning and evening fatigue severity in oncology patients receiving chemotherapy

Wright

Kober

Cooper

et al. 2020

Support Care Cancer

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“…The data analysis showed that MS patients most often used the strategies of seeking emotional support (2.11) and active coping (1.96). The studies by Holland et al 73 and Cornero Contentti et al 74 show that the most commonly applied strategies included acceptance and active coping. On the other hand, the least frequently used mechanisms were turning to religion (0.48) and substance use (0.6), which was confirmed in studies by other authors.…”

Section: Discussionmentioning

confidence: 99%

The Role of Stress Perception and Coping with Stress and the Quality of Life Among Multiple Sclerosis Patients

Kołtuniuk

Kazimierska-Zając

Cisek

et al. 2021

PRBM

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Purpose Multiple sclerosis (MS) is one of the most common neurological disorders and a cause of disability in young adults. Adequate stress management in MS patients may merit the benefits of both physical and psychological well-being. This study aimed to evaluate the quality of life in MS patients and its correlation with stress levels and coping strategies. Methods This descriptive and correlational study was conducted among 109 patients diagnosed with relapsing-remitting MS (RRMS). The study was based on a questionnaire designed by the authors and the following standardized questionnaires: the Perceived Stress Scale (PSS-10), the Inventory for Measuring Coping with Stress (Mini-COPE), and the Multiple Sclerosis International Quality of Life Questionnaire (MusiQoL). Results Data analysis showed that 47.71% of the patients experienced a high level of stress, and the most often used strategies under challenging situations included seeking emotional support (2.11) and active coping (1.96). Also, it showed that when the level of stress is higher, the QOL in all domains is lower. Coping strategies such as sense of humor, turning to religion, self-distraction, denial, venting, substance use, behavioral disengagement, and self-blame are negatively correlated with the quality of life of MS. Conclusion Quality of life in MS patients is negatively affected by a higher level of perceived stress. The use of coping strategies such as active coping, positive reframing, acceptance, and seeking emotional and instrumental support is positively correlated with the quality of life of MS patients.

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“…Chronster and Chan [39] place a sense of self-mastery, control, self-efficacy, and interpersonal skills among internal coping resources, and social support and material goods among external ones. Holland et al [40] found the most commonly coping strategies in patients with MS Acceptance, Active Coping, Planning and Positive Reinterpretation and Growth. Coping strategies have been identified as an important predictor of quality of life in patients with MS [41, 42].…”

Section: Discussionmentioning

confidence: 99%

Informing patients with progressive neurological disease of their health status, and their adaptation to the disease

Bužgová

Kozáková

2019

BMC Neurol

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BackgroundProgressive neurological diseases, such as multiple sclerosis, Parkinson’s disease, Huntington’s disease, significantly interfere with patients’ lives, and those of their families. The aim of the research was to establish whether the extent of the information on patients’ health conditions, and the way patients learn this information from doctors affect their adaptation to chronic and progressive diseases.MethodsQualitative methodology was used for a total of 52 participants (patients with progressive neurological diseases, their family members, and health and social workers). Data were collected using individual, in-depth interviews and focus groups. Analysis of data for interpretation, conceptualization, and re-integration was performed by open, axial, and selective coding.ResultsIt was determined that adequate information about patients’ health status, and the use of coping strategies are related to their adaptation to their disease, and consequently, to their quality of life. The participants often considered the extent of the information provided, and the way they were informed to be inadequate. Receiving the diagnosis, the progression of the disease, and the end of life were found to be the most burdensome.ConclusionOur results show that Czech neurologist should develop better communication skills, particularly for informing patients with progressive neurological diseases. Open communication, emotional support, and support in selecting effective coping strategies can help patients adapt more readily to their disease, and improve their quality of life.

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Use of coping strategies in multiple sclerosis: Association with demographic and disease-related characteristics✰

Cited by 32 publications

References 34 publications

Higher levels of stress and different coping strategies are associated with greater morning and evening fatigue severity in oncology patients receiving chemotherapy

Higher levels of stress and different coping strategies are associated with greater morning and evening fatigue severity in oncology patients receiving chemotherapy

The Role of Stress Perception and Coping with Stress and the Quality of Life Among Multiple Sclerosis Patients

Informing patients with progressive neurological disease of their health status, and their adaptation to the disease

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