Use of coping strategies in MND/ALS: Association with demographic and disease‐related characteristics

Schlüter, Daniela K; Holland, David; Mills, Roger; McDermott, Christopher J.; Williams, Tim; Young, Carolyn A

doi:10.1111/ane.13113

Cited by 3 publications

(9 citation statements)

References 30 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Three studies reported significant associations between sex and some coping strategy subscales. Female sex was found to be related with greater use of social support coping strategies, such as emotional support , seeking instrumental social support (Schluter et al, 2019), seeking emotional social support (Schluter et al, 2019), focus and venting of emotions (Schluter et al, 2019). Furthermore, Schluter et al ( 2019)'s study found that female sex was associated with a higher use of restraint and behavioural and mental disengagement (Table 3).…”

Section: Demographic Factors Associated With Coping Strategiesmentioning

confidence: 96%

“…Additionally, younger age was related to more emotion-focused coping (e.g., positive thought (Tramonti et al, 2012) and positive reframing ) and social support coping (e.g., emotional support , venting Schluter et al, 2019)).…”

Section: Demographic Factors Associated With Coping Strategiesmentioning

confidence: 96%

“…Higher functional status was related to a greater use of problem-focused coping strategies, such as positive action (Jakobsson Larsson et al, 2014;Lee et al, 2001;Tramonti et al, 2012), active coping (Schluter et al, 2019) and information seeking (Jakobsson Larsson et al, 2016), as well as greater independence (Lee et al, 2001;Tramonti et al, 2012). On the other hand, the lower the functional status, the more emotionfocused coping strategies (e.g., acceptance and resignation (Achille & Ogloff, 2003), positive thinking (Jakobsson Larsson et al, 2016), positive reinterpretation and growth (Schluter et al, 2019), restraint (Schluter et al, 2019)) and social support coping strategies (e.g., support (Jakobsson Larsson et al, 2016;Tramonti et al, 2012), focus and venting of emotions were employed (Schluter et al, 2019)). Two studies reported a significant relationship between disease type and coping strategy; the strategies included venting Schluter et al, 2019), humour and substance use (Schluter et al, 2019) (Table 3).…”

Section: Clinical Characteristics Associated With Coping Strategiesmentioning

confidence: 99%

“…Over the last decade, interest in coping strategies for ALS/MND patients has increased. Several researchers have been conducted on the relationships between demographics or clinical factors and coping strategies and the impacts of coping strategies on patientreported outcomes (Tamara Matuz et al, 2015;Schluter et al, 2019). They have reported that coping strategies could contribute to a change in internal standards as a buffer for the negative effects of ALS/MND, thus maintaining or improving patients' mental health and overall QOL.…”

Section: What Does This Paper Contribute To the Wider Global Clinical Community?mentioning

confidence: 99%

“…Five studies found that disease duration was significantly associated with coping strategies. The shorter the disease duration, the greater the use of avoidance coping strategies, such as distancing (Goldstein et al, 1998) and mental disengagement (Lee et al, 2001;Schluter et al, 2019) and problem-solving and reorientation (Goldstein et al, 1998). One study (Goldstein et al, 1998) found that a shorter disease period was associated with problem-solving and reorientation.…”

Section: Clinical Characteristics Associated With Coping Strategiesmentioning

confidence: 99%

See 4 more Smart Citations

Coping in people with amyotrophic lateral sclerosis and motor neuron disease: Systematic review

2021

Journal of Clinical Nursing

View full text Add to dashboard Cite

Aims and objectives:To systematically review previous studies on the variables associated with coping strategies in people with amyotrophic lateral sclerosis and motor neuron disease (ALS/MND), such as demographics, clinical features and patientreported outcomes. Background:Coping strategies are important factors for adjustment and quality of life (QOL) in patients with long-term conditions, and this topic in people with ALS/ MND has not yet been the subject of a systematic review.Design: A systematic review was performed based on the PRISMA checklist.Methods: Electronic databases, including CINAHL, MEDLINE and EMBASE, were systemically searched from their inception to December 2019 for articles meeting the following inclusion criteria: (1) written in English, (2) published in peer-reviewed journals, (3) included subjects with ALS/MND and (4) used quantitative measurements of coping strategies in people with ALS/MND.Results: Twenty-one articles were included. Significant relationships between participants' demographics (age and sex) and any coping strategy aspect were shown in six studies. Eight studies found significant relationships between clinical characteristics (disease duration and physical functional status) and coping strategies, and ten studies reported coping strategies that were associated with patients' QOL and mental health outcomes. Conclusion:Younger people used relatively more problem-focused, emotion-focused and social support coping strategies, and women used relatively more social support coping strategies. Problem-focused coping was generally related to better QOL and mental health, and emotion-focused coping was generally related to less depression. Relevance to clinical practice:As the pattern of coping strategies is related to demographic and clinical characteristics, this study could be used to inform the provision of patient-centred nursing in clinical care. Coping patterns are related to mental health and QOL; thus, in clinical care, it is recommended that people with ALS be encouraged to develop skills that enable them to cope more effectively and that their coping strategies be assessed.

show abstract

Section: Demographic Factors Associated With Coping Strategiesmentioning

confidence: 96%

Section: Demographic Factors Associated With Coping Strategiesmentioning

confidence: 96%

Section: Clinical Characteristics Associated With Coping Strategiesmentioning

confidence: 99%

Section: What Does This Paper Contribute To the Wider Global Clinical Community?mentioning

confidence: 99%

Section: Clinical Characteristics Associated With Coping Strategiesmentioning

confidence: 99%

See 3 more Smart Citations

Coping in people with amyotrophic lateral sclerosis and motor neuron disease: Systematic review

2021

Journal of Clinical Nursing

View full text Add to dashboard Cite

show abstract

Psychological resilience is protective against cognitive deterioration in motor neuron diseases

Rosano,

Bicaj,

Cillerai

et al. 2024

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

View full text Add to dashboard Cite

Effects of Coping Strategies on Health-Related Quality of Life of People with Neuromuscular Diseases

García,

Rodríguez,

Angelini

et al. 2024

Muscles

View full text Add to dashboard Cite

Neuromuscular diseases (NMD) cover a broad spectrum of different rare diagnoses in which the primary lesion is in the peripheral nervous system. The impairment caused by an NMD does not only interfere with physical status but also has a clear impact on health-related quality of life (HRQoL). It is therefore essential to know the coping style used by these patients. This study aims to analyze the coping strategies in a sample of people with NMD and how their coping style affects their HRQoL. This cross-sectional study included 61 adult patients diagnosed with a rare NMD. WHO-DAS II, SIP, SF-36, and COPE-60 instruments were administered. The results showed that people affected by NMDs tend to use more frequent coping strategies such as active planning, personal growth, and acceptance. In contrast, the least-used strategies were restraint, mental disengagement, venting, humor, and religion, which affected HRQoL negatively. Moreover, the degree of disability was a relevant variable, with an impact on HRQoL. Social support can be considered the main coping strategy that leads to an improvement in the psychosocial HRQoL (β = 503, p < 0.001). These findings are relevant to clinical practice, given the need to understand the coping variable to improve HRQoL.

show abstract

Use of coping strategies in MND/ALS: Association with demographic and disease‐related characteristics

Cited by 3 publications

References 30 publications

Coping in people with amyotrophic lateral sclerosis and motor neuron disease: Systematic review

Coping in people with amyotrophic lateral sclerosis and motor neuron disease: Systematic review

Psychological resilience is protective against cognitive deterioration in motor neuron diseases

Effects of Coping Strategies on Health-Related Quality of Life of People with Neuromuscular Diseases

Contact Info

Product

Resources

About