Use of a novel computerized decision aid for aneuploidy screening: a randomized controlled trial

Carlson, Laura M.; Harris, Sarah; Hardisty, Emily; Hocutt, Ginger; Vargo, Diane; Campbell, Erin; Davis, Elizabeth; Gilmore, Kelly; Vora, Neeta L.

doi:10.1038/s41436-018-0283-2

Cited by 22 publications

(33 citation statements)

References 15 publications

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“…This indicated that women using decision support tools felt more informed and were more aware of the risk and expected outcome of each option when compared to their counterparts [ 19 - 21 , 23 , 27 ]. Women using decision support tools also had better knowledge scores [ 19 , 21 - 23 , 25 - 27 ], except for in 2 studies [ 20 , 24 ] which showed no effect on knowledge. Both digital and paper-based decision support tools showed no difference in attitudes and frequency of completing screening (digital: 32%; paper-based: 15%; P= .087) [ 19 , 23 , 25 , 27 ].…”

Section: Resultsmentioning

confidence: 99%

“…Therefore, whether gained knowledge lasted over time is unknown. One study [ 20 ] found no difference in knowledge between women receiving genetic counseling about prenatal screening with and without a supplementary app. The fact that both groups received a high-standard intervention such as genetic counseling could possibly explain why there was no additional benefit of the app on knowledge scores.…”

Section: Discussionmentioning

confidence: 99%

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Use of Decision Support Tools to Empower Pregnant Women: Systematic Review

Ngo¹,

Truong²,

Nordeng³

2020

J Med Internet Res

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Background Women face many health-related decisions during pregnancy. Digitalization, new technology, and a greater focus on empowering patients have driven the development of patient-centered decision support tools. Objective This systematic review provides an overview of studies investigating the effect of patient-centered decision support tools for pregnant women. Methods We searched 5 online databases, MEDLINE, EMBASE, Web of Science, PsycINFO, and Scopus, from inception to December 1, 2019. Two independent researchers screened titles, abstracts, and full-texts against the inclusion criteria. All studies investigating the effect of patient-centered decision support tools for health-related issues among pregnant women were included. Study characteristics and results were extracted using the review management tool Rayyan and analyzed according to topic, type of decision support tools, control group, outcome measurements, and results. Results The 25 eligible studies covered a range of health topics, including prenatal screening (n=10), gestational diabetes and weight gain (n=7), lifestyle (n=3), blood pressure and preeclampsia (n=2), depression (n=1), asthma (n=1), and psychological well-being (n=1). In general, the use of decision support tools increased women's knowledge, and recording symptoms enhanced satisfaction with maternity care. Conclusions The opportunities created by digitalization and technology should be used to develop innovative patient-centered decision support tools tailored to support pregnant women. Effect on clinical outcomes should be documented.

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Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Use of Decision Support Tools to Empower Pregnant Women: Systematic Review

Ngo¹,

Truong²,

Nordeng³

2020

J Med Internet Res

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“…While it is important to improve pregnant women’s access to prenatal GC, it is paramount that their reported outcomes be considered when implementing alternative GC SDMs. Previous studies have demonstrated the utility of providing digital information on prenatal testing before in-person GC, which was confirmed to help improve patients’ knowledge [ 13 , 21 ], shorten the time required [ 21 ], and reduce decision conflict [ 13 , 16 , 20 ]. Considering our finding that Japanese women tend to prefer in-person GC, such an approach would likely be acceptable in a Japanese population.…”

Section: Discussionmentioning

confidence: 97%

Pregnant women’s opinions toward prenatal pretest genetic counseling in Japan

et al. 2021

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In-person models of genetic counseling (GC) have been the common method in Japan for pregnant women to receive GC. However, recent increases in the number of pregnant women considering undergoing prenatal testing have made it challenging to retain individualized in-person care. To explore pregnant women's opinions toward pretest GC models and the ideal time duration, a self-administered questionnaire survey was conducted for women at their first prenatal visit. A total of 114 valid respondents (93.4%) were included in the analyses. Of these, 80.7% of women preferred in-person GC, followed by classroom (9.6%), group (3.5%), and telegenetic-based GC (2.6%). Women with experience in undergoing prenatal testing significantly did not prefer in-person GC (p = 0.05). Sixty-two women (54.4%) preferred a duration of 15-29 min for pretest GC sessions, followed by 30-59 min (28.9%) and <15 min (14.9%). Women's preference of ≥30 min in length was significantly associated with anhedonia, singleton pregnancies, acquaintance with people with trisomy 21, and awareness of prenatal testing. Women who were unaware of the need for agreement with the partner for prenatal testing and who did not know the average life expectancy of a trisomy 21 patient significantly preferred <15 min in length over other durations. While the majority of women preferred in-person GC for <30 min, their preferences varied by their background characteristics, experiences, attitudes, and knowledge. These findings will help establish a prenatal GC system offering a choice of GC models in Japan; however, further large-scale studies are needed to confirm these findings.

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“…The decisional con ict of women in deciding to terminate the pregnancy was reduced after counseling on all sub scales of awareness, transparency of values, con dence, support, and effective decision, and it was decided to terminate the pregnancy with less con ict [24]. Carlson et al (2019) also studied the effect of computer-aided decisionmaking on decisional con ict on aneuploidy screening. This showed that the decisional con ict in the intervention group decreased after receiving the computer aided decision-making to perform aneuploidy screening (p < 0.003) [27].…”

Section: Discussionmentioning

confidence: 99%

“…Carlson et al (2019) also studied the effect of computer-aided decisionmaking on decisional con ict on aneuploidy screening. This showed that the decisional con ict in the intervention group decreased after receiving the computer aided decision-making to perform aneuploidy screening (p < 0.003) [27]. The decision aid methods such as education, and counseling while raising awareness can help people to understand better their personal values, and participate in the decisions and make better decisions with more certainty based on the available evidence and options with the support of health care providers and families without being forced to make decisions.…”

Section: Discussionmentioning

confidence: 99%

The Impact of Implementing Steps of Empowerment Model for Women with Failed Pregnancies on Decisional Conflict for Re-pregnancy: A Randomized Controlled Trial

Kheirkhah¹,

Salehabadi²,

Esmaeeli³

et al. 2020

Preprint

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Background: Failed pregnancy is a common and destructive experience. It has physical and psychological effects on both women and families. They may become reluctant to re-pregnancy. Providing the coping strategies can help to adapt to failed pregnancies, and make informed decisions about future pregnancies. This study was designed and performed to determine the effect of implementing steps of empowerment model for women with failed pregnancies on decision conflict for re-pregnancy. Method: This interventional research is a randomized controlled trial with a control group that was conducted in Iran from January 2020 to May 2020. Participants were 80 women who had been hospitalized in a referral center during past 3-6 weeks due to failed pregnancies. The eligible women with random allocation of sealed envelope site were divided into two groups of intervention (n=40) and control (n=40) and a separate code was determined for each person. The intervention was performed in four, 90-minute sessions based on the model steps (threat perception, problem solving, educational participation, and evaluation) for intervention group. O'Connor's decisional conflict scale was completed before and six weeks after intervention by both of groups. Data were analyzed using SPSS edition 16 with the independent T-test, Fisher and chi-squared tests. Results: The score of decisional conflict and, its subscales did not differ between the two groups before the intervention (P = 0.65), but six weeks after the intervention, the decisional conflict and, all its subscales in the intervention group reduced. (P < 0.001).Conclusion: Empowerment education in women with a failed pregnancy improved their decision conflict in re-pregnancy, so empowerment education along with health care services for women with failed pregnancies is recommended. Trial registration: This randomized control trial was registered on the TCTR site with the code TCTR20191226001. Registered on 26 December 2019.

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Use of a novel computerized decision aid for aneuploidy screening: a randomized controlled trial

Abstract: Knowledge surrounding aneuploidy screening in women who used a DA was not inferior to knowledge in women who underwent GC. Use of the DA in addition to GC reduced decisional conflict.

Cited by 22 publications

References 15 publications

Use of Decision Support Tools to Empower Pregnant Women: Systematic Review

Use of Decision Support Tools to Empower Pregnant Women: Systematic Review

Pregnant women’s opinions toward prenatal pretest genetic counseling in Japan

The Impact of Implementing Steps of Empowerment Model for Women with Failed Pregnancies on Decisional Conflict for Re-pregnancy: A Randomized Controlled Trial

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