“…Visits to each school were structured around the five stages of human-centered design: research, ideation, prototyping, testing and iteration. During each stage, we presented short explanatory videos about human-centered design [83] that had been specifically designed for teens [84] and a series of relevant exercises to scaffold the material. While the information in each lesson was similar, the content was geared and adapted for the individual group based on collaboration with teachers and advisers and the teens themselves.…”
Section: Providing a Foundation Of Human-centered Designmentioning
Social robots are emerging as an important intervention for a variety of vulnerable populations. However, engaging participants in the design of social robots in a way that is ethical, meaningful, and rigorous can be challenging. Many current methods in human–robotic interaction rely on laboratory practices, often experimental, and many times involving deception which could erode trust in vulnerable populations. Therefore, in this paper, we share our human-centered design methodology informed by a participatory approach, drawing on three years of data from a project aimed to design and develop a social robot to improve the mental health of teens. We present three method cases from the project that describe creative and age appropriate methods to gather contextually valid data from a teen population. Specific techniques include design research, scenario and script writing, prototyping, and teens as operators and collaborative actors. In each case, we describe the method and its implementation and discuss the potential strengths and limitations. We conclude by situating these methods by presenting a set of recommended participatory research principles that may be appropriate for designing new technologies with vulnerable populations.
“…Visits to each school were structured around the five stages of human-centered design: research, ideation, prototyping, testing and iteration. During each stage, we presented short explanatory videos about human-centered design [83] that had been specifically designed for teens [84] and a series of relevant exercises to scaffold the material. While the information in each lesson was similar, the content was geared and adapted for the individual group based on collaboration with teachers and advisers and the teens themselves.…”
Section: Providing a Foundation Of Human-centered Designmentioning
Social robots are emerging as an important intervention for a variety of vulnerable populations. However, engaging participants in the design of social robots in a way that is ethical, meaningful, and rigorous can be challenging. Many current methods in human–robotic interaction rely on laboratory practices, often experimental, and many times involving deception which could erode trust in vulnerable populations. Therefore, in this paper, we share our human-centered design methodology informed by a participatory approach, drawing on three years of data from a project aimed to design and develop a social robot to improve the mental health of teens. We present three method cases from the project that describe creative and age appropriate methods to gather contextually valid data from a teen population. Specific techniques include design research, scenario and script writing, prototyping, and teens as operators and collaborative actors. In each case, we describe the method and its implementation and discuss the potential strengths and limitations. We conclude by situating these methods by presenting a set of recommended participatory research principles that may be appropriate for designing new technologies with vulnerable populations.
“…Researchers are encouraged to engage young people directly, rather than relying on adult counterparts as proxies, as young people have their own unique perspectives to bring to the table. 30,31 For example, feedback from children on the quality of an interaction can contrast with adult reports of the same event. 32,33 It is therefore urgent to understand what is most important to both children and families when it comes to social robotics and children's mental health to ensure that these newly popular technologies are deployed in an ethical, evidence-based and patient-centred manner.…”
Section: Introductionmentioning
confidence: 99%
“…However, pathways to involve patients and persons with lived experience in healthcare technology research from the early stages of innovation are limited, 29 and this challenge is even greater when it comes to children and youth. Researchers are encouraged to engage young people directly, rather than relying on adult counterparts as proxies, as young people have their own unique perspectives to bring to the table 30,31 . For example, feedback from children on the quality of an interaction can contrast with adult reports of the same event 32,33 .…”
BackgroundSocial robots are promising tools to improve the quality of life of children and youth living with anxiety and should be developed based on the priorities of end users. However, pathways to include young people in patient‐oriented research, particularly in the overlap between technology and mental health, have been historically limited.ObjectiveIn this work, we describe engagement with experts with lived experiences of paediatric anxiety in a social robotics research programme. We report the experiences of patient advisors in a co‐creation process and identify considerations for other research groups looking to involve end users in technology development in the field of youth mental health.DesignWe engaged individuals with a lived experience of paediatric anxiety (current, recent past, or from a parent perspective) using three different models over the course of three years. Two initial patient partners were involved during project development, eight were engaged as part of an advisory panel (‘the League’) during study development and data analysis and four contributed as ongoing collaborators in an advisory role. League members completed a preparticipation expectation survey and a postparticipation experience survey.FindingsEight individuals from a range of anxiety‐related diagnostic groups participated in the League as patient partners. Members were teenagers (n = 3), young adults aged 22–26 years who had connected with a youth mental health service as children within the past eight years (n = 3) or parents of children presently living with anxiety (n = 2). Preferred methods of communication, expectations and reasons for participating were collected. The League provided specific and actionable feedback on the design of workshops on the topic of social robotics, which was implemented. They reported that their experiences were positive and fairly compensated, but communication and sustained engagement over time were challenges. Issues of ethics and language related to patient‐centred brain health technology research are discussed.ConclusionsThere is an ethical imperative to meaningfully incorporate the voices of youth and young adults with psychiatric conditions in the development of devices intended to support their mental health and quality of life.Patient or Public ContributionSix young people and two parents with lived experiences of paediatric anxiety participated in all stages of developing a research programme on social robotics to support paediatric mental health in a community context. They also provided input during the preparation of this manuscript.
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