Urinary Stones and Intervention Quality of Life (USIQoL): Development and Validation of a New Core Universal Patient-reported Outcome Measure for Urinary Calculi

Joshi, H.B.; Johnson, Hans J.; Pietropaolo, Amelia; Raja, Aditya; Joyce, Adrian; Somani, Bhaskar; Philip, Joe; Biyani, Chandra Shekhar; Pickles, Timothy

doi:10.1016/j.euf.2020.12.011

Cited by 16 publications

(7 citation statements)

References 22 publications

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“…Additionally, the utilisation of diseasespecific questionnaires contributes to a more comprehensive and holistic understanding of the disease burden [5,9,28,29]. Consistent with the WISQOL questionnaire, other PROMs, such as the Ureteral Stent Symptom Questionnaire for evaluating HRQOL linked to ureteric stents, and the Urinary Stones and Intervention Quality of Life applicable to both kidney and ureteric stones, have exhibited promising benefits in clinical settings [21,28,30]. Unfortunately, PROMs are still rarely used in both KSD research and clinical settings.…”

Section: Discussionmentioning

confidence: 99%

The impact of kidney stone disease on quality of life in high‐risk stone formers

Assad,

Raizenne,

El Yamani

et al. 2024

BJU International

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ObjectiveTo assess the impact of kidney stone disease (KSD) and its treatment on the health‐related quality of life (HRQOL) of high‐risk stone formers with hyperparathyroidism, renal tubular acidosis, malabsorptive disease, and medullary sponge kidney.Patients and MethodsThe Wisconsin Stone Quality of Life questionnaire was used to evaluate HRQOL in 3301 patients with a history of KSD from 16 institutions in North America between 2014 and 2020. Baseline characteristics and medical history were collected from patients, while active KSD was confirmed through radiological imaging. The high‐risk group was compared to the remaining patients (control group) using the Wilcoxon rank‐sum test.ResultsOf 1499 patients with active KSD included in the study, the high‐risk group included 120 patients. The high‐risk group had significantly lower HRQOL scores compared to the control group (P < 0.01). In the multivariable analyses, medullary sponge kidney disease and renal tubular acidosis were independent predictors of poorer HRQOL, while alkali therapy was an independent predictor of better HRQOL (all P < 0.01).ConclusionsAmong patients with active KSD, high‐risk stone formers had impaired HRQOL with medullary sponge kidney disease and renal tubular acidosis being independent predictors of poorer HRQOL. Clinicians should seek to identify these patients earlier as they would benefit from prompt treatment and prevention.

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Section: Discussionmentioning

confidence: 99%

The impact of kidney stone disease on quality of life in high‐risk stone formers

Assad,

Raizenne,

El Yamani

et al. 2024

BJU International

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“…The main questionnaire given to participants was the quantitative Urinary Stones and Intervention Quality of Life (USIQoL) questionnaire [ 23 ]. This is a QoL survey with disease and symptom specific questions, aimed at quantifying the holistic disease burden.…”

Section: Methodsmentioning

confidence: 99%

Does quality of life in patients undergoing shock wave lithotripsy change with repeat procedures: a prospective pilot study from a university teaching hospital

Stephens

Pietropaolo

Tear

et al. 2022

Cent european J Urol

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Introduction Shock wave lithotripsy (SWL) is a well-established treatment for kidney stone disease (KSD) and despite its decreased popularity in the past, it has now gained renewed interest due to its minimally invasive nature and good outcomes, especially in the face of COVID-19 pandemic. The aim of our study was to perform a service evaluation to analyse and identify quality of life (QoL) changes [using Urinary Stones and Intervention Quality of Life (USIQoL) questionnaire] after repeat SWL treatments. This would enable a greater understanding of SWL treatment and reduce the current gap of knowledge regarding patient specific outcomes in the field. Material and methods Patients affected by urolithiasias underwent SWL treatment between September 2021 and February 2022 (6 months), were included in the study. A questionnaire was given to the patients in each SWL session and consisted of three main topic areas: a domain on Pain and Physical Health, on Psycho-social Health and on Work (see appendix below). Patients also completed a Visual Analogue Scale (VAS) in relation to the pain related to the treatment. Data from the questionnaires were collected and analysed. Results A total of 31 patients filled in two or more surveys, with a mean age of 55.8 years. On repeat treatments, pain and physical health domain was significantly better (p = 0.0046), psycho-social health domain was significantly better (p <0.001), work domain was significantly better (p = 0.009) and a correlation [on Visual Analog Scale (VAS)] was observed between pain decreasing in subsequent SWL procedures. Conclusions Our study found that the choice of SWL to treat KSD does improve a patient’s QoL. This could be related to improvement of physical health, psychological and social wellbeing, and ability to work. Higher QoL and low pain scores are observed in relation to repeat SWL treatment and are not directly associated to stone-free status.

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“…Both of these PROMs developed recently could prove useful in comparing treatment modalities in future research. In 2022, Joshi et al developed a new tool, Urinary Stones and Intervention Quality of Life (USIQoL) [25]. The authors of that tool found no significant difference in HRQoL between patients with renal stones and ureteral stones, which led to the conclusion that a single, universal PROM could be used.…”

Section: Patient Reported Outcome Measures For Health-related Quality...mentioning

confidence: 99%

Measuring quality of life in patients with kidney stone disease: is it the future in endourology?

Vo,

Somani,

Ulvik

et al. 2023

Current Opinion in Urology

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Purpose of review Kidney stone disease is recognized to negatively impact quality of life. This pertains to acute episodes, surgical interventions and even during asymptomatic periods. Over time there has been increased attention towards assessing this subjective parameter, including as a determinant of treatment success. Our aim was to evaluate the current status and emerging trends in this field. Recent findings Patient groups most affected appear to be recurrent stone formers, cystine stone formers, women, younger populations, non-Caucasians and low-income populations. Several stone specific patient reported outcome measures are now available of which, WISQol has been implemented the most in clinical research studies. More invasive interventions such as percutaneous nephrolithotomy impede quality of life to greater extent than alternatives such as shockwave lithotripsy. Summary There are certain patient groups who are more vulnerable to the negative impact of kidney stone disease on their quality of life. Urologists can improve patient care by recognizing these particular populations as well as by implemented patient reported outcome measures in their routine clinical practice and when performing research.

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Urinary Stones and Intervention Quality of Life (USIQoL): Development and Validation of a New Core Universal Patient-reported Outcome Measure for Urinary Calculi

Cited by 16 publications

References 22 publications

The impact of kidney stone disease on quality of life in high‐risk stone formers

The impact of kidney stone disease on quality of life in high‐risk stone formers

Does quality of life in patients undergoing shock wave lithotripsy change with repeat procedures: a prospective pilot study from a university teaching hospital

Measuring quality of life in patients with kidney stone disease: is it the future in endourology?

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