Updating the core domains set in Systemic Lupus Erythematosus: Work planned by the Systemic Lupus Erythematosus OMERACT working group

More Evidence on the Validity of the Measurement Properties of PROMIS Computerized Adaptive Tests in Systemic Lupus Erythematosus

“…The current work being conducted by the SLE OMERACT WG will extend the work to assess the measurement properties of other instruments that were not covered in this review. 3 A recent study by Williams-Hall et al demonstrated evidence supporting the content validity of SF-36, Lupus QoL, FACIT-F, and novel patient-reported symptoms for use in patients with SLE and lupus nephritis. 16 The Patient-Reported Outcomes Measurement Information System (PROMIS) was created by the National Institutes of Health, using item response theory, to facilitate the assessment of different HRQOL constructs including physical, mental, and social health in diverse populations, including the general population and individuals living with a variety of chronic conditions and diseases.…”

“…More Evidence on the Validity of the Measurement Properties of PROMIS Computerized Adaptive Tests in Systemic Lupus Erythematosus Zahi Touma 1 , Ioannis Parodis 2 , and Vibeke Strand 3  Systemic lupus erythematosus (SLE) significantly affects different aspects of patients' health-related quality of life (HRQOL). 1 In 1998, Outcome Measures in Rheumatology (OMERACT) proposed the first Core Domain Set (CDS) for SLE, which included disease activity, organ damage, adverse events, HRQOL, and economic costs.…”

“…Currently the group is working on updating the CDS and will then proceed to evaluate the measurement properties of instru-ments specific for each domain to form the new OMERACT SLE Core Outcome Set. 3 Both physician evaluation and patient perceptions of their health condition and well-being are important and complement each other for a holistic health assessment. Studies have shown a considerable discordance between physicians' and patients' assessments of health status and priorities.…”