Update on treatment of epilepsy in people with intellectual disabilities

Huber, Bernd; Seidel, Michael

doi:10.1097/01.yco.0000238476.14702.5f

Cited by 6 publications

(1 citation statement)

References 13 publications

(8 reference statements)

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“…The Seizures and Epilepsy Education (SEE) Program [24,25], FLIP & FLAP [26], Be Seizure Smart [27], Children's (Epilepsy Program [28]), ACINDES [29], and A psychosocial self-management program for epilepsy [30], among others, have also showcased commendable effectiveness in this regard. The PEPE [31] and Ogata's program in Japan [32] showed significant improvement in knowledge based on subjects' subjective ratings. The FAMOSES [33,34] program for young PWE is being implemented in Germany.…”

Section: Educational Needs Psychosocial Education Programsmentioning

confidence: 99%

Perspective Chapter: How Can We Provide Lifelong Support for People with Epilepsy to Reduce Their Self-Stigma?

Kuramochi,

Iwayama,

Shimotsu

2024

Epilepsy During the Lifespan - Beyond the Diagnosis and New Perspectives

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Self-stigma denotes the internalization of negative societal attitudes, and it is commonly referred in patients with epilepsy (PWE). Higher levels of self-stigma have been linked to lower self-esteem. According to the author’s research, there is no significant correlation between knowledge level and self-stigma among PWE, and short-term treatment to control seizures alone proves inadequate for reducing self-stigma. These findings provide insights into the enduring nature of self-stigmatization, which appears to be influenced by cultural background, environmental factors, and personal experiences. Firstly, rectifying misinformation is crucial, as it promotes critical thinking and challenges cultural shame rather than accepting it. Secondly, cognitive approaches can be beneficial in helping individuals identify and overcome self-stigmatizing attitudes and beliefs. Recognizing the presence of social stigma and self-stigma are instrumental in reducing self-stigma. Lastly, facilitating individuals fostering a sense of agency in their lives can be accomplished through decision-making and empowerment strategies. Assisting clients in identifying their strengths and enabling them to make autonomous life choices can foster improved self-esteem and decrease self-stigma. While the primary goal of epilepsy treatment is the reduction of seizures, it is crucial for all stakeholders to acknowledge the persistent nature of self-stigma throughout the lifelong treatment trajectory of PWE.

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