Untreated Scoliosis in Severe Cerebral Palsy

The Associated Effects of Untreated Unilateral Hip Dislocation in Cerebral Palsy Scoliosis

“…In severe cases, scoliotic deformities can cause pulmonary complications, gastrointestinal difficulties, pressure ulcers, pain, and a general decline in function. 21,22,24 Although hip subluxation, PO, and scoliosis commonly coexist, the relationship between these deformities has not been clearly defined. 4,12,16,25 Hip dislocation is one of the infrapelvic causes of PO and may increase the risk and progression of scoliosis; however, there is no supporting literature.…”

Development and Initial Validation of the Assessment of Caregiver Experience With Neuromuscular Disease

“…Some have called the use of various procedures into question, particularly more invasive interventions such as spinal deformity correction in severely involved patients, due to concerns over cost, complications, and recognition that few studies have shown subjective improvements in patients' or caregivers' lives. [16][17][18][19][20] There is a growing awareness that physician-rated radiographic, range of motion, and other objective clinical outcome measures alone do not provide comprehensive, meaningful assessments to detect baseline quality of life (QOL) or QOL improvements after orthopaedic interventions. It is clear that more useful, subjective complementary outcomes measures are needed.…”

“…It is clear that more useful, subjective complementary outcomes measures are needed. 7,[16][17][18][19][20][21][22] Researchers have developed a number of patientbased tools to attempt to fill this gap in outcome assessment. Although efficacious for some NMD children, general health measures such as the Child Health Questionnaire and pediatric functional measures including the Pediatric Evaluation of Disability Inventory and Pediatric Outcomes Data Collection Instrument have limitation in the severely affected child with NMD.…”

(iv) Development and treatment of spinal deformity in patients with neurological or myopathic conditions

“…As the deformity progresses and extends to the pelvis, producing a global trunk imbalance, the patients are converted to 'hand-dependent sitters'. 8,9 Feeding can also be affected and exacerbation of pre-existing swallowing disorders or gastro-oesophageal reflux has been observed. Seizure activity may also become worse due to uncontrolled pain as a consequence of the deformity and poor posture.…”