Untire: an all-embracing self-management eHealth program to cope with cancer-related fatigue

Kuiper, Abraham Johannes; Wolvers, Marije D. J.; Vonk, Dora; Hagenbeek, Anton

doi:10.3332/ecancer.2018.ed81

Cited by 8 publications

(4 citation statements)

References 17 publications

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“…Indeed, mHealth offer an innovative way to propose health care interventions that are cost-effective. It allows to enhance the delivery of health care for patients by quickly reaching a large amount of patient [45]. Digitals solutions offer many advantages, they are exible and thus meet the changing needs of patients, and they can be a source of empowerment [46].…”

Section: Discussionmentioning

confidence: 99%

Informing the development of a personalized mixed digital/in person multidisciplinary intervention to help breast cancer patients return to work: a qualitative study

Martin

Meglio

Menvielle³

et al. 2022

Preprint

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Purpose: Return to work (RTW) after breast cancer (BC) can be a major challenge for patients. Existing interventions often suffer from methodological weaknesses that hamper their implementation. In this study, we aimed to explore 1) use, as well as 2) preferences, needs and barriers regarding RTW interventions and their deployment, including 3) preferences regarding the use of digital approaches to deliver such interventions.Methods: We conducted a qualitative study based on semi-structured interviews with 30 early-stage BC patients and 18 providers in four French regions. Interviews were recorded and transcribed. Emergent themes were identified by thematic content analysis.Results: Most providers declared not to proactively address RTW with patients mainly due to having other priorities and a lack of knowledge. The following themes emerged: several development and deployment barriers regarding RTW interventions exist; interventions based on a multidisciplinary approach were generally preferred; need to maintain contact between patient and workplace during sick leave, including clearly identify pathways and interlocutors that can facilitate RTW. Participants had mostly positive representations about using digital tools to facilitate RTW, however fear of loss of human contact and exacerbation of inequalities were identified as possible risks associated with the development of digital-only interventions.Conclusions: In this study several points emerged that can help to develop an intervention that blends needs and preferences of BC patients and health care system. A personalized, multimodal approach with a mixed digital and in person features surfaced as a possible solution to respond to the weaknesses of existing interventions.

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Section: Discussionmentioning

confidence: 99%

Informing the development of a personalized mixed digital/in person multidisciplinary intervention to help breast cancer patients return to work: a qualitative study

Martin

Meglio

Menvielle³

et al. 2022

Preprint

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“…Most oncological and related guidelines refer to fatigue [36][37][38][39][40][41]. In addition, evidence-based Self-Help-Management-Programs for CA patients have become available [42][43][44].…”

Section: Discussionmentioning

confidence: 99%

Self-reported fatigue in patients with rheumatoid arthritis compared to patients with cancer: results from two large-scale studies

et al. 2021

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Fatigue is a common symptom in patients with rheumatoid arthritis (RA) and in patients with cancer (CA). The aim was to investigate the degree of fatigue in RA patients as compared to CA patients as well as potential influencing factors on RA-related fatigue. This was a retrospective analyses of two prospective cohort studies that used the EORTC QLQ-FA12 as a common instrument to assess fatigue. The cohort of RA patients was based on a nationwide survey in Germany. The cohort of CA patients was recruited in the context of an international validation field study. Multivariable ANCOVAs compared levels of fatigue between the two cohorts, also including various subgroup analyses. Regression analyses explored influencing factors on RA patients’ fatigue. Data of n = 705 RA patients and of n = 943 CA patients were available for analyses. RA patients reported significantly higher Physical Fatigue (mean difference = 7.0, 95% CI 4.2–9.7, p < 0.001) and Social Sequelae (mean difference = 7.5, 95% CI 4.7–10.2, p < 0.001). CA patients reported higher Cognitive Fatigue (mean difference = 3.5, 95% CI 1.4–5.6, p = 0.001). No differences in Emotional Fatigue (p = 0.678) and Interference with Daily Life (p = 0.098) were found. In RA patients, mental health and pain were associated with fatigue (p values < 0.001). RA patients showed a considerable level of fatigue that is comparable to and in certain cases even higher than that of CA patients. The implementation of standardized diagnostic procedures and interventions to reduce fatigue in RA patients are recommended.

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“…Third, although several mHealth interventions for breast cancer patients targeting physical activity or cancer-related fatigue have been conducted [29][30][31]36,[46][47][48][49][50][51], to our knowledge, none of them has examined levers and barriers to physical activity among cancer patients with cancer-related fatigue as a primary outcome within the context of an mHealth intervention. In previous studies in the overall population, there were 3 main barriers for patients to engage with mHealth: user-related barriers (eg, lack of digital literacy, lack of motivation), health-related barriers (eg, late effect of treatments, lack of physical ability), and technology-related barriers (eg, technical problems, intrusiveness) [52,53].…”

Section: Principal Findingsmentioning

confidence: 99%

“…With phones having a growing importance in our lives, app-based mHealth interventions can be a good way to help patients. mHealth offers a new way to propose cost-effective health care interventions; indeed, app-based or web-based interventions allow care to be accessible to an increasing number of people outside of the hospital [49]. Several mHealth apps for cancer patients have been developed these past few years, and some are being tested in clinical trials [52][53][54][55].…”

Section: Principal Findingsmentioning

confidence: 99%

Use of mHealth to Increase Physical Activity Among Breast Cancer Survivors With Fatigue: Qualitative Exploration

et al. 2021

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Background Physical activity has shown beneficial effects in the treatment of breast cancer fatigue; nevertheless, a significant portion of patients remain insufficiently physically active after breast cancer. Currently most patients have a smartphone, and therefore mobile health (mHealth) holds the promise of promoting health behavior uptake for many of them. Objective In this study, we explored representations, levers, and barriers to physical activity and mHealth interventions among inactive breast cancer patients with fatigue. Methods This was an exploratory, qualitative study including breast cancer patients from a French cancer center. A total of 4 focus groups were conducted with 9 patients; 2 independent groups of patients (groups A and B) were interviewed at 2 consecutive times (sessions 1 to 4), before and after their participation in a 2-week mHealth group experience consisting of (1) a competitive virtual exercise group activity (a fictitious world tour), (2) participation in a daily chat network, and (3) access to physical activity information and world tour classification feedback. We used a thematic content analysis. Results Several physical activity levers emerged including (1) physical factors such as perception of physical benefit and previous practice, (2) psychological factors such as motivation increased by provider recommendations, (3) social factors such as group practice, and (4) organizational factors including preplanning physical activity sessions. The main barriers to physical activity identified included late effects of cancer treatment, lack of motivation, and lack of time. The lack of familiarity with connected devices was perceived as the main barrier to the use of mHealth as a means to promote physical activity. The tested mHealth group challenge was associated with several positive representations including well-being and good habit promotion and being a motivational catalyzer. Following feedback, modifications were implemented into the mHealth challenge. Conclusions mHealth-based, easily accessed group challenges were perceived as levers for the practice of physical activity in this population. mHealth-based group challenges should be explored as options to promote physical activity in a population with fatigue after breast cancer.

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Untire: an all-embracing self-management eHealth program to cope with cancer-related fatigue

Cited by 8 publications

References 17 publications

Informing the development of a personalized mixed digital/in person multidisciplinary intervention to help breast cancer patients return to work: a qualitative study

Informing the development of a personalized mixed digital/in person multidisciplinary intervention to help breast cancer patients return to work: a qualitative study

Self-reported fatigue in patients with rheumatoid arthritis compared to patients with cancer: results from two large-scale studies

Use of mHealth to Increase Physical Activity Among Breast Cancer Survivors With Fatigue: Qualitative Exploration

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