Unseen and unheard: African children with cancer are consistently excluded from clinical trials

Amoako, Emmanuella; Jumbam, Desmond T.; Bediako, Yaw

doi:10.1136/bmjgh-2020-004750

Cited by 1 publication

(2 citation statements)

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“…The incidence of childhood cancer varies significantly between regions, with approximately 90% of the cases being from low‐ and middle‐income countries (LMICs), where 95% of children of this age live 1 . In Africa, cancer incidence is particularly high, with an estimated 100,000 new cases annually under the age of 15 years and the incidence is expected to double by 2030 2,3 . Malawi, like other LMICs in sub‐Saharan Africa, has a high childhood cancer burden, with 1108 cases reported in 2020 4 .…”

Section: Introductionmentioning

confidence: 99%

“…1 In Africa, cancer incidence is particularly high, with an estimated 100,000 new cases annually under the age of 15 years and the incidence is expected to double by 2030. 2 , 3 Malawi, like other LMICs in sub‐Saharan Africa, has a high childhood cancer burden, with 1108 cases reported in 2020. 4 Acute lymphoblastic leukaemia is the most common childhood cancer globally, followed by non‐Hodgkin lymphoma, nephroblastoma, Burkitt lymphoma and Retinoblastoma.…”

Section: Introductionmentioning

confidence: 99%

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Experiences of caregivers of children with cancer in Malawi: A qualitative study

Phiri,

Li,

Phiri

et al. 2024

Cancer Medicine

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BackgroundStudies have shown that caregivers of children with cancer experience challenges when caring for their children. To date, no studies have examined the experience of caregivers of children with cancer in Malawi, a low‐income country in sub‐Saharan Africa. Hence, this study aimed to explore the experiences of caregivers of Malawian children receiving cancer treatment.MethodsThis explorative qualitative study used semi‐structured interviews to collect data from 22 caregivers of children receiving cancer treatment. The data were analysed using qualitative content analysis.ResultsFive themes emerged from the QCA. The caregivers perceived their children's cancer as a burden, a form of psychological torture and a disruptor of family routines and social lifestyles. They also reported self‐isolation due to the stigma that they faced in the course of caring for their children and a need for informational, psychosocial, spiritual and financial support.ConclusionCaregivers of Malawian children with cancer experience physical and psychosocial challenges as they are caring for their children with cancer. Developing appropriate interventions would enable nurses to offer optimal support to these caregivers in dealing with these challenges and meeting their needs effectively.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%