Unmet supportive care needs of people with advanced cancer and their caregivers: A systematic scoping review

Hart, Nicholas; Crawford‐Williams, Fiona; Crichton, Megan; Yee, Jasmine; Smith, Thomas J.; Koczwara, Bogda; Fitch, Margaret I.; Crawford, Gregory B.; Mukhopadhyay, Sandip; Mahony, Jane; Cheah, Chan Yoon; Townsend, James T.; Cook, Olivia; Agar, Meera; Chan, Raymond Javan

doi:10.1016/j.critrevonc.2022.103728

Cited by 89 publications

(87 citation statements)

References 135 publications

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“…A recent review compiled prior studies of caregivers of patients with mixed hematological malignancies ( n = 423) and demonstrated psychological needs in 38% and relationship/social needs in 20% of caregivers. 37 Our data would suggest a markedly higher frequency of unmet needs amongst this rare cancer caregiver population. Therefore, while caregiver distress is multiply determined and derived varied challenges inherit in HN caregiving, the experience of coping with a rare cancer is likely a contributor to additional and unique needs for supportive care which warrant future longitudinal investigation.…”

Section: Discussionmentioning

confidence: 66%

Challenges and positive impact of rare cancer caregiving: A mixed-methods study of caregivers of patients with Erdheim-Chester disease and other histiocytic neoplasms

Mitchell¹,

Applebaum²,

Lynch³

et al. 2022

eClinicalMedicine

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Section: Discussionmentioning

confidence: 66%

Challenges and positive impact of rare cancer caregiving: A mixed-methods study of caregivers of patients with Erdheim-Chester disease and other histiocytic neoplasms

Mitchell¹,

Applebaum²,

Lynch³

et al. 2022

eClinicalMedicine

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“…Yet FMs reported that they did not speak to healthcare professionals about the challenges of social eating and were often forgotten about in the healthcare consultation. FMs depict significant unmet psychological, information and physical needs and a lack of involvement in healthcare planning [39]. In addition, to providing vital and pivotal patient support, FMs must also be afforded ongoing support and future supportive interventions.…”

Section: Discussionmentioning

confidence: 99%

“It’s part of our life now”: a qualitative exploration of the social eating experiences of family members of patients living with head and neck cancer

Dornan

Semple

Moorhead

2022

Support Care Cancer

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Purpose Family members (FMs) of patients with head and neck cancer (HNC) report a change in their social eating experience. They miss out on the opportunities and benefits that eating with others provides. However, few studies investigate FM’s social eating experiences, with existing research primarily focusing on the patient experience. Therefore, the aim of this study was to explore the social eating experiences of FMs of patients who have had treatment for HNC. Methods A qualitative research design using semi-structured interviews was used to understand FM’s social eating experiences. Key themes were inductively developed from the data using reflexive thematic analysis. Results Twelve interviews were conducted with FMs, and three key themes were identified: (1) changes and challenges experienced by FMs due to HNC patients’ social eating difficulties, (2) living with social eating changes is a balancing act, and (3) FMs’ efforts to promote social eating for a patient with HNC. FMs expressed significant changes to their social eating habits within and outside the home, indicating the need for support to meet their own emotional, psychological and social needs. Conclusion FMs experience many demands and tensions, having to balance the psychological impact they experience, which are often minimised, whilst attempting to find the best ways to support, protect and encourage their loved ones to adjust and adapt to social eating changes. Therefore, interventions need to support FMs’ challenges and equip them to know how to best support patients living with HNC and themselves.

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“…People with advanced cancer are an under-served subpopulation with characteristically high symptom burden and broad clinical needs [2][3][4] that can benefit from appropriately designed exercise medicine assessment and prescription [5]. However, people with bone metastases have unique safety parameters that require consideration to ensure the health benefits of exercise medicine can be realised without the development of skeletal complications, including lesion-, cancer-, treatment-, and patient-related factors.…”

Section: International Bone Metastases Exercise Working Groupmentioning

confidence: 99%

Exercise for people with bone metastases: MASCC endorsed clinical recommendations developed by the International Bone Metastases Exercise Working Group

Hart

Poprawski

Ashbury

et al. 2022

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Unmet supportive care needs of people with advanced cancer and their caregivers: A systematic scoping review

Cited by 89 publications

References 135 publications

Challenges and positive impact of rare cancer caregiving: A mixed-methods study of caregivers of patients with Erdheim-Chester disease and other histiocytic neoplasms

Challenges and positive impact of rare cancer caregiving: A mixed-methods study of caregivers of patients with Erdheim-Chester disease and other histiocytic neoplasms

“It’s part of our life now”: a qualitative exploration of the social eating experiences of family members of patients living with head and neck cancer

Exercise for people with bone metastases: MASCC endorsed clinical recommendations developed by the International Bone Metastases Exercise Working Group

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