Unmet Needs of Families of School‐Aged Children with an Autism Spectrum Disorder

Abstract

This study provides insight into needs which have not been met by the service system. Information about the unmet needs of children with an autism spectrum disorder and their families may help policy makers and service providers to develop resources and services that are responsive to their client group.

Quality Determinants of Services for Parents of Young Children with Autism Spectrum Disorders

“…This finding conflicts with those of previous studies that reported that parents experienced difficulties in obtaining valid information about their child's condition and the services available to their family (Brown et al 2012;Nesbitt 2000;Renty and Roeyers 2006;Whitaker 2002). We posit that the moment in their services trajectory at which they completed the questionnaire (i.e., while receiving specialized services from the rehabilitation center) favored a perception of regional service delivery as flexible and the information obtained about their child's condition and services as valid.…”

“…Continuity in staff was identified as a key factor in parental satisfaction (Renty and Roeyers 2006), which was itself related to the ease of gaining access to services (Mackintosh et al 2012). Overall, several studies have shown that families' needs, most notably in terms of the coordination of services, are not satisfactorily met by services provided to them (Brown et al 2012;Cassidy et al 2008;Kogan et al 2008;Kohler 1999;Krauss et al 2003) and that access to services remains problematic (Cassidy et al 2008;Covert 1995;Klin et al 2000;Kogan et al 2008;Nesbitt 2000;Renty and Roeyers 2006;Siklos and Kerns 2005;Tanguay 2000).…”

Whoever shouts the loudest: Listening to parents of children with disabilities

“…Parents anticipated that a keyworker would provide consistency in an ever‐changing system, a finding which is supported by Brown et al. (). Parents in the current study argued that appointing a keyworker to a family could improve centralization and coordination of services.…”

Lived Experiences of Parents of Gifted Students With Autism Spectrum Disorder

“…Quality social opportunities Brown, Ouette-Kuntz, Hunter, Kelley, and Cobingo (2012); Chen and Schwartz (2012); Rowley et al (2012) Purcell (1993 5. Program/service continuity or elimination Brown et al (2012) Chapey, Trimarco, Crisci, and Capobianco (1986/1987; Damiani (1996); Huff et al (2005); Matthews and Burns (1992); Purcell (1993); Shichtman (1999); Shumow (1997) 6. Parents' ability to serve as their child's case manager…”