Unmet needs in cancer rehabilitation during the early cancer trajectory – a nationwide patient survey

Veloso, Astrid Gisèle; Sperling, Cecilie Dyg; Holm, Louise; Nicolaisen, Anne; Rottmann, Nina; Thayssen, Susanne; Christensen, René dePont; Knudsen, Janne Lehmann; Hansen, Dorte Gilså

doi:10.3109/0284186x.2012.745648

Cited by 55 publications

(36 citation statements)

References 19 publications

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“…With the trend of decentred outpatient care, patients must meet with numerous different healthcare providers. Therefore, despite the fact that social counselling, psycho-oncological therapy and opportunities to increase physical fitness are widely offered, the needs of patients frequently cannot be met [7, 8]. The reasons are multifaceted: after undergoing treatment, many patients struggle to identify their needs for re-entry into everyday life, and they lack energy to organize their rehabilitation measures, which are also uncoordinated [9].…”

Section: Introductionmentioning

confidence: 99%

Case management to increase quality of life after cancer treatment: a randomized controlled trial

et al. 2017

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BackgroundCase management has been shown to be beneficial in phases of cancer screening and treatment. After treatment is completed, patients experience a loss of support due to reduced contact with medical professionals. Case management has the potential to offer continuity of care and ease re-entry to normal life. We therefore aim to investigate the effect of case management on quality of life in early cancer survivors.MethodsBetween 06/2010 and 07/2012, we randomized 95 patients who had just completed cancer treatment in 11 cancer centres in the canton of Zurich, Switzerland. Patients in the case management group met with a case manager at least three times over 12 months. Patient-reported outcomes were assessed after 3, 6 and 12 months using the Functional Assessment of Cancer Therapy (FACT-G) scale, the Patient Assessment of Chronic Illness Care (PACIC) and the Self-Efficacy scale.ResultsThe change in FACT-G over 12 months was significantly greater in the case management group than in the control group (16.2 (SE 2.0) vs. 9.2 (SE 1.5) points, P = 0.006). The PACIC score increased by 0.20 (SE 0.14) in the case management group and decreased by 0.29 (SE 0.12) points in the control group (P = 0.009). Self-Efficacy increased by 3.1 points (SE 0.9) in the case management group and by 0.7 (SE 0.8) points in the control group (P = 0.049).ConclusionsCase management has the potential to improve quality of life, to ease re-entry to normal life and to address needs for continuity of care in early cancer survivors.Trial registrationThe study has been submitted to the ISRCTN register under the name “Case Management in Oncology Rehabilitation” on the 12th of October 2010 and retrospectively registered under the number ISRCTN41474586 on the 24th of November 2010.Electronic supplementary materialThe online version of this article (doi:10.1186/s12885-017-3213-9) contains supplementary material, which is available to authorized users.

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Section: Introductionmentioning

confidence: 99%

Case management to increase quality of life after cancer treatment: a randomized controlled trial

et al. 2017

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“…Studies have shown that patients' problems frequently persist even long after treatment has been completed [4][5][6][7], and that physical, family/social, and emotional problems are associated with psychological distress [8][9][10]; however, several studies have shown that patients are often reluctant to disclose psychosocial problems and needs to health professionals [1,[11][12][13] even though these needs are described by cancer patients as unmet [3,4,14]. Problems experienced, unmet needs, and distress may affect patients' satisfaction with care, adherence to treatment, and quality of life [2,[15][16][17][18][19].…”

Section: Introductionmentioning

confidence: 99%

“…It is well known that cancer patients often experience problems, side effects and late effects in relation to the disease and treatment, together with different kinds of needs for supportive care related to various dimensions of their everyday lives [1][2][3][4][5]. Studies have shown that patients' problems frequently persist even long after treatment has been completed [4][5][6][7], and that physical, family/social, and emotional problems are associated with psychological distress [8][9][10]; however, several studies have shown that patients are often reluctant to disclose psychosocial problems and needs to health professionals [1,[11][12][13] even though these needs are described by cancer patients as unmet [3,4,14].…”

Section: Introductionmentioning

confidence: 99%

Completing a Questionnaire at Home Prior to Needs Assessment in General Practice: A Qualitative Study of Cancer Patients’ Experience

Thayssen

Hansen

Søndergaard

et al. 2015

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The results demonstrate that completing a questionnaire seems to stimulate patients' ability to reflect on their situation, clarify the importance of different problems to their everyday lives, and articulate these considerations to their GPs. Furthermore, we have shown that a questionnaire has the ability to interact with the patient and instigate a process of awareness. It is important to acknowledge this process of interaction between patient and questionnaire as an important part of understanding how and why questionnaires may support the patient when completing a questionnaire prior to a clinical encounter.

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“…Rehabilitation needs are complex and shaped by disease severity, the complexity of surgical and oncological treatments, as well as patient characteristics such as age, comorbid conditions, health behaviour and socioeconomic position 4 5. Principles underpinning cancer rehabilitation programmes are a biopsychosocial understanding of illness, focus on early assessment of needs and an emphasis on securing a continuous and tailored rehabilitation plan encompassing needs and resources for the individual patients and their relatives 2 3 6.…”

Section: Introductionmentioning

confidence: 99%

“…In the research literature, unmet rehabilitation needs have been documented among a substantial proportion of current and former patients with cancer with negative effect on quality of life, ability to return to work and morbidity 5 7–12. Reasons for this suboptimal situation are complex and rooted in an interplay of patient, provider and organisational factors influencing access to and use of appropriate services 13 14.…”

Section: Introductionmentioning

confidence: 99%

Readiness for cancer rehabilitation in Denmark: protocol for a cross-sectional mixed methods study

2013

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IntroductionRehabilitation is a key element in most cancer care policies in recognition of the often unmet physical, psychological and social needs among the rising numbers of patients with cancer. A systematic assessment of patients’ needs and available rehabilitation services constitute the foundation for timely, comprehensive and coordinated cancer rehabilitation. This study aims to provide insight into the current organisation and practice of cancer rehabilitation in Denmark with special emphasis placed on the assessment of patients’ needs and availability of services across the cancer treatment trajectory.Methods and analysisA cross-sectional design using a mixed methods approach will be used in order to analyse the readiness for cancer rehabilitation in different sectors and from differing perspectives. Substudy 1 consists of an electronic survey among the 98 Danish municipalities and focuses on the availability and use of cancer rehabilitation services for patients with all types of cancers. In substudy 2, a survey among the 19 surgical and 12 oncological departments involved in colorectal cancer treatment in Denmark is conducted in order to describe the current clinical practice regarding the assessment of rehabilitation needs and referral to services. Substudy 3 involves a retrospective clinical audit and semistructured interviews at four randomly selected surgical and oncological departments treating colorectal patients with cancer in order to elucidate current needs assessment practices.Ethics and disseminationThe study was approved by the Danish Data Protection Agency and will be conducted in accordance with the principles of the Helsinki Declaration Representatives from municipalities and clinical practice are engaged in the design and execution of the study in order to ensure the usefulness of survey instruments, reflexive interpretation of data and transfer of implications into practice.ResultsPublished in international peer-reviewed scientific journals and presented at conferences, seminars and as short reports.

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Unmet needs in cancer rehabilitation during the early cancer trajectory – a nationwide patient survey

Cited by 55 publications

References 19 publications

Case management to increase quality of life after cancer treatment: a randomized controlled trial

Case management to increase quality of life after cancer treatment: a randomized controlled trial

Completing a Questionnaire at Home Prior to Needs Assessment in General Practice: A Qualitative Study of Cancer Patients’ Experience

Readiness for cancer rehabilitation in Denmark: protocol for a cross-sectional mixed methods study

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