‘Unjust, inhumane and highly inaccurate’: the impact of changes to disability benefits and services – social media as a tool in research and activism

Morris, Rosa

doi:10.1080/09687599.2013.808093

Cited by 15 publications

(16 citation statements)

References 1 publication

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“…This research confirmed previous work suggesting the role of online methods to reach people with disabilities with less cost and encourage disabled people to talk openly more than face to face (Morris, 2013;Sunderland et al, 2014). Such approach helped in addressing diversity but did not guarantee high numbers of participants probably due to the sensitivity of the topic in this study.…”

Section: Discussionsupporting

confidence: 77%

“…Similar to other research (Carlson, 2013;Morris, 2013), one limitation is the inadequate opportunity given to participants with intellectual disabilities due to their gatekeepers' responses or their capacity to consent. This could be overcome by tailoring consent and content to their needs and offering sufficient support, which could be challenging (Goldsmith & Skirton, 2015).…”

Section: Discussionmentioning

confidence: 99%

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Challenges facing online research: Experiences from research concerning cyber-victimisation of people with disabilities

Alhaboby

Barnes

Evans

et al. 2017

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The victimisation of people living with disabilities and chronic conditions is a documented phenomenon. It ranges from harassment incidents to disability hate crimes, and causes physical, mental and psychosocial consequences. The Internet has further reshaped this phenomenon which lead to "cyber-victimisation" experiences, with no less impact upon victims. This methodology paper focuses mainly on the challenges and implications of using online methods in a UK-based study exploring the impact of cyber-victimisation on people coping with disabilities and chronic conditions. Mixed-method design was adopted via an online-survey followed by in-depth interviewing of victims. Online recruitment was through victim-support groups

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Section: Discussionsupporting

confidence: 77%

Section: Discussionmentioning

confidence: 99%

Challenges facing online research: Experiences from research concerning cyber-victimisation of people with disabilities

Alhaboby

Barnes

Evans

et al. 2017

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“…The value of SoMe in recruiting and retaining research participants has been highlighted in various studies on different domains (Balfe et al, 2012;Bull et al, 2011Bull et al, , 2013Child et al, 2014;Das et al, 2014;Kapp et al, 2013;Leonard et al, 2014;Morris, 2013;Mychasiuk & Benzies, 2012). Within the literature analysed in this study, the most common tools used for recruitment and retention were Facebook (Balfe et al, 2012;Child et al, 2014;Kapp et al, 2013;Mychasiuk & Benzies, 2012) and Twitter (O ' Connor et al, 2014) or both, in combination (Leonard et al, 2014;Morris, 2013).…”

Section: Social Media To Recruit and Retain Participantsmentioning

confidence: 97%

Perspectives on social media in and as research: A synthetic review

Lafferty

Manca

2015

International Review of Psychiatry

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With the growth of social media use in both the private and public spheres, researchers are currently exploring the new opportunities and practices offered by these tools in the research lifecycle. This area is still in its infancy: As methodological approaches and methods are being tested - mainly through pragmatic and exploratory approaches - practices are being shaped and negotiated by the actors involved in research. A further element of complexity is added by the ambivalent status of social media within research activities. They can be both a tool - for recruitment, data collection, analysis - and data - as what constitutes the corpus to be analysed - both in an observational and interactive domain. This synthetic analysis of the literature is aimed at identifying how social media are currently being used in research and how they fit into the research lifecycle. We identify and discuss emerging evidence and trends in the adoption of social media in research, which can be used and applied by psychiatry research practitioners as a framework to inform the development of a personalized research network and social media strategy in research.

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“…Changes in benefits, such as the end of Disability Living Allowance (DLA) and the introduction of Personal Independence Payment (PIP) as well as the closure of the Independent Living Fund (ILF), have meant that many disabled people had to be reassessed and either lost their benefits altogether or were moved to Employment Support Allowance (Cross 2013;Morris 2013;Harwood 2014). It is beyond the scope of this article to describe these changes in detail.…”

Section: Disablism In the Context Of Employment And State Supportmentioning

confidence: 99%

“…Although in England it has been possible for people living with chronic illnesses to apply for some state support in the form of benefits, along with other disabled people, this type of social support has been strongly eroded in the last few years in a fundamental and profound way (Cross 2013;Morris 2013;Harwood 2014). Changes in benefits, such as the end of Disability Living Allowance (DLA) and the introduction of Personal Independence Payment (PIP) as well as the closure of the Independent Living Fund (ILF), have meant that many disabled people had to be reassessed and either lost their benefits altogether or were moved to Employment Support Allowance (Cross 2013;Morris 2013;Harwood 2014).…”

Section: Disablism In the Context Of Employment And State Supportmentioning

confidence: 99%

Disablism in the lives of people living with a chronic illness in England and Portugal

Bê

2016

Disability & Society

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Disablism in the lives of people living with a chronic illness in England and PortugalThis paper is based on research about the daily lives of people living with chronic illnesses in England and Portugal. Through the first-person narratives of participants, I argue that the lives of people living with debilitating chronic illnesses are affected by disablism, discrimination and exclusion. These aspects affect them in several important realms of life such as lack of or poor social support, difficulties in obtaining reasonable adjustments or the inability to obtain any kind of state support at all. These aspects are also widespread and compound and greatly influence their lives, beyond or in addition to the physical experience of the illness itself. I conclude that it is fundamental to change these structural and policy aspects and that people should have access to what I have termed a paradigm of sustained wellbeing, despite the illness.

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‘Unjust, inhumane and highly inaccurate’: the impact of changes to disability benefits and services – social media as a tool in research and activism

Cited by 15 publications

References 1 publication

Challenges facing online research: Experiences from research concerning cyber-victimisation of people with disabilities

Challenges facing online research: Experiences from research concerning cyber-victimisation of people with disabilities

Perspectives on social media in and as research: A synthetic review

Disablism in the lives of people living with a chronic illness in England and Portugal

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