Understanding the relationship between knowledge and African Americans’ donation decision-making

Arriola, Kimberly R. Jacob; Robinson, Dana H. Z.; Perryman, Jennie P.; Thompson, Nancy J.

doi:10.1016/j.pec.2007.09.017

Cited by 34 publications

(35 citation statements)

References 49 publications

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“…These findings are consistent with results of previous research 8,43 that indicate that general knowledge is not the primary factor in a person’s decision making about donation. Among African Americans, in particular, studies have often used the composite measure of “knowledge” to represent a collection of awareness and understandings of donation facts and processes.…”

Section: Discussionsupporting

confidence: 92%

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Correlates of support for living donation among African American adults

Robinson

Borba

Thompson

et al. 2009

Progress in Transplantation

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Context Living donation is studied with much less intensity among African Americans than among the general population. Examination of barriers to living donation can lead to effective strategies to educate dialysis patients and their families about this alternative. Objective To explore the correlates of likelihood of becoming a living donor among community-recruited African American adults. Design/Participants Cross-sectional data were gathered via self-administered questionnaire from 425 African American adults, age 18 years and older, who were recruited from 9 churches in Atlanta. Main Outcome Measures Self-reported likelihood of becoming a living donor to a close family member, an extended family member or friend, or a stranger. Results More than three-quarters of participants were willing to act as living donors to a close family member or spouse and two-thirds to friends or extended family. For likelihood of donating to a friend or extended family member, only willingness to engage in deceased donation was significantly associated; to a stranger, both willingness to engage in deceased donation and attitudes toward donation were significantly associated. Knowledge of and personal experiences with donation and/or transplantation were not significantly associated with likelihood of any type of living donation. Conclusions Findings indicate widespread support for living donation to a close family member or spouse. These findings have important implications for dialysis patients who must decide whether to approach friends and/or family about the possibility of serving as a living donor and emphasize the need for interventions to help facilitate this process.

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Section: Discussionsupporting

confidence: 92%

“…41–43 The parent study used a randomized pre-post design with a control group; data from the current study were collected during the baseline assessment (which occurred June to September 2005). Using a cross-sectional research design, the current study combines preintervention data from both the intervention group and the control group.…”

Section: Methodsmentioning

confidence: 99%

Correlates of support for living donation among African American adults

Robinson

Borba

Thompson

et al. 2009

Progress in Transplantation

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“…(5, 37,41–43) Three common fears cited in the literature are that being a donor will be a financial burden to their family, you will not get a proper burial and your body will be disfigured if you are a donor. (5, 37, 44) Addressing these fear-inducing misconceptions are an important part of informative organ donation educational campaigns.…”

Section: Discussionmentioning

confidence: 99%

African American Organ Donor Registration: A Mixed Methods Design Using the Theory of Planned Behavior

et al. 2014

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Context A large racial disparity exists in organ donation. Objective The purpose of this study was to identify factors associated with becoming a registered organ donor in among African Americans in Alabama. Methods The study utilized a concurrent mixed methods design guided by the Theory of Planned Behavior to analyze African American’s decisions to become a registered organ donor using both qualitative (focus groups) and quantitative (survey) methods. Results The sample consisted of 22 registered organ donors (ROD) and 65 non-registered participants (NRP) from six focus groups completed in urban (n=3) and rural (n=3) areas. Participants emphasized the importance of the autonomy to make one’s own organ donation decision and have this decision honored posthumously. One novel barrier to becoming a ROD was the perception that organs from African Americans were often unusable due to high prevalence of chronic medical conditions such as diabetes and hypertension. Another novel theme discussed as an advantage to becoming a ROD was the subsequent motivation to take responsibility for one’s health. Family and friends were the most common groups of persons identified as approving and disapproving of the decision to become a ROD. The most common facilitator to becoming a ROD was information, while fear and the lack of information were the most common barriers. In contrast, religious beliefs, mistrust and social justice themes were infrequently referenced as barriers to becoming a ROD. Discussion Findings from this study may be useful for prioritizing organ donation community-based educational interventions in campaigns to increase donor registration.

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“…Some studies (e.g. Horton & Horton, 1990) find that knowledge of religious support for donation is positively associated with willingness to donate organs, whereas other studies (Arriola, Robinson, Perryman, & Thompson, 2008) find that knowledge is unrelated to one's willingness to document or discuss donation preferences. Religious norms represent perceptions of RLs' support for organ donation in general, as well as for a given individual's donation decision, specifically (see Morgan, 2004).…”

Section: Introductionmentioning

confidence: 99%

Religion and the decision to donate organs: Exploring the potential role of religious leaders

Vincent

Anker

Feeley

2010

Community & Applied Soc Psy

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The two-step flow model of communication (Katz, 1957) suggests opinion leaders obtain critical information from the mass media and, in turn, communicate this information to interpersonal contacts such as friends, family and co-workers. It is suggested that religious leaders (RLs) may serve as opinion leaders on the topic of organ donation by debunking donation myths, promoting donation during worship services, or communicating the benefit of donation to families faced with the opportunity to participate in living or cadaveric donation. The current study examined the personal knowledge, experiences, and willingness to communicate about organ donation in a sample of RLs (N ¼ 59) in Rochester, New York. Structured interviews were conducted in summer and fall of 2009 with a random sample of RLs. Results indicate a disparity between RLs' expressed personal support for donation and their engagement in donor registration. Approximately one-quarter of RLs have spoken about donation during a religious service and many indicate their knowledge is not sufficient to discuss organ donation in detail. Results elaborate on how RLs may be trained to serve as opinion leaders in the promotion of organ donation.

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Understanding the relationship between knowledge and African Americans’ donation decision-making

Cited by 34 publications

References 49 publications

Correlates of support for living donation among African American adults

Correlates of support for living donation among African American adults

African American Organ Donor Registration: A Mixed Methods Design Using the Theory of Planned Behavior

Religion and the decision to donate organs: Exploring the potential role of religious leaders

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