Understanding the local and international stakeholders in rheumatic heart disease field in Tanzania and Uganda: A systematic stakeholder mapping

Abstract

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Burden of disease and barriers to comprehensive care for rheumatic heart disease in South Africa: an updated systematic review protocol

“…This work will also help identify key areas for future research across sectors, which may encourage further collaboration among national stakeholders in RHD. The results of the proposed systematic review will be published in a peer-reviewed journal, allowing for wider dissemination beyond SA, which will feed into the current information on the profile of RHD in Africa 7 8…”

“…As conceptualised by Wyber in 2013,16 this objective will look at 24 of the 25 specific facets of a comprehensive RHD programme, excluding burden of disease (figure 1). The search strategy will be informed by the systematic review protocol published by Moloi et al ,28 which identified stakeholders in RHD in Uganda and Tanzania using a mixed-methods approach that included case series, reports, editorials/commentaries and grey literature 8…”

“…7 Stakeholders across multiple sectors and countries are involved in addressing RHD in this region, highlighting the complexity and need for collaboration in building national RHD programmes in Africa. 8 Earlier data from Johannesburg (1976) and Cape Town (1981), SA showed a prevalence of approximately 7 per 1000 in school-aged children by cardiac auscultation. 9 10 Surgical reports from the pre-1994 era reported significant morbidity and mortality of up to 8% per year, especially in the young.…”

“…The search strategy will be informed by the systematic review protocol published by Moloi et al, 28 which identified stakeholders in RHD in Uganda and Tanzania using a mixed-methods approach that included case series, reports, editorials/commentaries and grey literature. 8 Inclusion and exclusion criteria, search strategy and data management Like objective one, all studies on RHD published between March 2014 and December 2022 (inclusive) are eligible for inclusion, with no age restriction on patient population. Studies during this same period that investigate relevant aspects of GAS infection and ARF, from preventative strategies to diagnosis and management will also be considered.…”

“…Despite high rates of morbidity and mortality from RHD in East Africa, there is evidence of critical data gaps in the areas of GAS and ARF epidemiology as well as healthcare usage patterns and their determinants 7. Stakeholders across multiple sectors and countries are involved in addressing RHD in this region, highlighting the complexity and need for collaboration in building national RHD programmes in Africa 8. Earlier data from Johannesburg (1976) and Cape Town (1981), SA showed a prevalence of approximately 7 per 1000 in school-aged children by cardiac auscultation 9 10.…”