Understanding the interplay of cancer patients’ instrumental concerns and emotions

Brandes, Kim; Goot, M.J. van der; Smit, Edith G.; Weert, Julia C.M. van; Linn, Annemiek J.

doi:10.1016/j.pec.2017.02.002

Cited by 11 publications

(8 citation statements)

References 36 publications

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“…The first topic was developed to obtain an overview of the concerns patients have experienced during their illness. The findings regarding these concerns have been published elsewhere (Brandes et al, ). The second topic aimed to gather ideas for a communication tool that supports concern expression.…”

Section: Methodsmentioning

confidence: 84%

“…Results of this previous study revealed that patients frequently explain their concerns as an interplay of instrumental concerns and emotions. We concluded that instrumental concerns must be taken into account in the operationalisation of concerns in research because instrumental concerns are often accompanied by emotions (e.g., receiving insufficient information and frustration) and emotions are often accompanied by instrumental concerns (e.g., fear and difficulties with searching, finding and judging of information; Brandes et al, ).…”

Section: Discussionmentioning

confidence: 98%

“…Cancer patients experience many concerns during their disease trajectory (Beach & Dozier, ). These concerns are composed of instrumental concerns and emotions, and may involve medical, psychosocial and practical topics (Brandes, Van der Goot, Smit, Van Weert, & Linn, ). The accumulation of these concerns may lead to detrimental outcomes, such as high levels of distress and depression, which may be prevented if these concerns are discussed during a consultation (Street, Makoul, Arora, & Epstein, ).…”

Section: Introductionmentioning

confidence: 99%

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Cancer patients' needs for support in expressing instrumental concerns and emotions

et al. 2019

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Introduction The aim of our study was to provide an overview of intervention guidelines on how to address patients' practical needs for support in expressing instrumental concerns and emotions regarding medical, psychosocial and practical topics. Methods Six focus groups of cancer patients and survivors (N = 39) were organised. An interview guide was created that consisted of three topics: (a) concerns, (b) needs for support, and (c) a Concern Prompt List. Using the framework method, the transcripts were coded and analysed in Atlas T.I. Results Patients prefer to receive practical and emotional support, help with preparation, prompts/cues, instructions on how to perform the behaviour (i.e., express their concerns or emotions), feedback, a different structure for the consultation and tailoring. Most of these techniques should preferably be delivered via interpersonal communication. Needs sometimes differ for instrumental concerns and emotions. Only some needs for support were exclusively related to instrumental concerns or emotions. The typical needs for support were not solely linked to the medical, psychosocial and practical topics. Conclusion Different needs to express instrumental concerns and emotions throughout the disease trajectory are categorised. These needs provide input for developing interventions to support concern expression.

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Section: Methodsmentioning

confidence: 84%

Section: Discussionmentioning

confidence: 98%

Section: Introductionmentioning

confidence: 99%

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Cancer patients' needs for support in expressing instrumental concerns and emotions

et al. 2019

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“…These after-effects, some permanent, can interfere with the maintenance or recovery of roles which are important to them (Annunziata et al, 2018;Cavers et al, 2019). It is common for people to experience unpleasant thoughts and feelings regarding their experience with cancer (Brandes et al, 2017;Deimling et al, 2017). One common reaction is to attempt to avoid such feelings, encouraged and reinforced, furthermore, by the cultural context (Hayes, 2004).…”

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confidence: 99%

Behavioral Activation and Acceptance and Commitment Therapy in the Treatment of Anxiety and Depression in Cancer Survivors: A Randomized Clinical Trial

et al. 2020

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Behavioural Activation (BA) and Acceptance and Commitment Therapy (ACT) aim to reduce the inflexible avoidance of painful thoughts, feelings and memories and to encourage involvement in relevant activities, objectives which are clearly relevant to the situation of cancer survivors with emotional problems. With a view to evaluating and comparing the efficacy of both therapies, applied on a group basis, a randomized controlled trial was developed. Cancer survivors (age 18–65 years) with anxiety and/or depression were assigned at random to two experimental groups (BA; ACT) and a waiting list control group (WL). Of the 66 cancer survivors randomized to trial (intention-to-treat sample), 46 participants ( M = 51.49; SD = 6.88) completed the intervention (BA, n = 17; ACT, n = 12; WL, n = 17) (per-protocol sample). The emotional state, experiential avoidance and behavioural activation of the participants was evaluated in the pre- and post-treatment and in a 3-month follow-up using standardized instruments. Both treatment groups showed statistically significant changes, indicating an improvement in all the result variables in the post-treatment and follow-up as compared to the pre-treatment. BA showed better results than ACT regarding impact on anxiety and activation. This greater efficacy may have been due to factors such as the emphasis placed in BA on behavioural activation and the central role played in it by functional analysis. The key role played by experiential avoidance and behavioral activation in the maintenance and treatment of emotional problems in cancer survivors is discussed. Raw data are available online ( http://dx.doi.org/10.17632/m7w688khs8.1 )

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“…Multiple reasons can be given for these unmet needs. Patient-related reasons include unmentioned concerns, a lack of trust in a particular medical expert, and information overload [26]. Examples of medical expert-related concerns are time constraints and a lack of experience [27].…”

Section: Interpersonal Communicationmentioning

confidence: 99%

Patients’ Convergence of Mass and Interpersonal Communication on an Online Forum: Hybrid Methods Analysis (Preprint)

Sanders¹,

Araujo²,

Vliegenthart³

et al. 2020

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BACKGROUND Patients are increasingly taking an active role in their health. In doing so, they combine both mass and interpersonal media to gratify their cognitive and affective needs (i.e., convergence). Due to methodological challenges when studying convergence, a detailed view of how patients are using different types of media for needs fulfilment is missing. OBJECTIVE Obtain insight into the frequency of reported convergence, how convergence affects what posters write online, motives for posting, and the needs posters try to fulfill. METHODS Using a hybrid method of content analysis and supervised machine learning, this study used naturally occurring data to fill this research gap. We analyzed opening posts (N = 1,708) of a forum targeted towards cancer patients and their relatives (Kanker.nl). RESULTS The results show that nearly one-third of the forum opening posts contained signs of convergence in mass or interpersonal media. Posts containing mass media references disclosed less personal information and were more geared towards community enhancement and sharing experiences compared to posts without convergence. Furthermore, compared to posts without signs of convergence, posts that include interpersonal media references disclosed more personal information, and posters were more likely to ask for the experiences of fellow users to fulfill their needs. Within posts containing signs of convergence, posts including interpersonal media references reported fewer shortages of information, disclosed more information about the disease and were more active in seeking other posters’ experiences compared to posts containing mass media references. CONCLUSIONS The current study shows how intertwined media platforms are for patients. The insights of this study can be used to adapt the health care system towards a new type of health information-seeking behavior in which one medium is not trusted to fulfill all needs. Instead, providers should incorporate the intertwinement of sources by providing patients with reliable websites and forums through which they can fulfill their needs. CLINICALTRIAL

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Understanding the interplay of cancer patients’ instrumental concerns and emotions

Abstract: The results of this study can be used to support providers in recognizing concerns that are expressed by patients in consultations.

Cited by 11 publications

References 36 publications

Cancer patients' needs for support in expressing instrumental concerns and emotions

Cancer patients' needs for support in expressing instrumental concerns and emotions

Behavioral Activation and Acceptance and Commitment Therapy in the Treatment of Anxiety and Depression in Cancer Survivors: A Randomized Clinical Trial

Patients’ Convergence of Mass and Interpersonal Communication on an Online Forum: Hybrid Methods Analysis (Preprint)

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