Understanding the experiences and needs of lesbian, gay, bisexual and trans <scp>A</scp>ustralians living with dementia, and their partners

Barrett, Catherine; Crameri, Pauline; Lambourne, Sally; Latham, J.R.; Whyte, Carolyn

doi:10.1111/ajag.12271

Cited by 48 publications

(68 citation statements)

References 7 publications

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“…Eight of the 17 papers included case reports (Anetzberger, 2004;Ward, 2000), an article describing the development of a telephone support group for gay and lesbian people living with dementia (Moore, 2002), and five qualitative studies describing the experience of LGBT people living with dementia and their family caregivers (Barrett, Crameri, Lambourne, Latham, & Whyte, 2015;Price, 2008Price, , 2010Price, , 2011Price, , 2012.…”

Section: Dementia/hiv-related Dementiamentioning

confidence: 99%

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Changing the culture of neurodisability through language and sensitivity of providers: Creating a safe place for LGBTQIA+ people

Moreno

Laoch

Zasler

2017

NRE

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Abstract. BACKGROUND:There is an increasing interest in sexual and gender diversity in neurorehabilitation. Healthcare professionals wanting to improve their practice know the importance of understanding the needs and expectations of specific communities. OBJECTIVE: To critically review the literature about neurological disorders in people who identify as lesbian, gay, bisexual, transgender, queer, intersex, asexual, and people with other sexual orientations and forms of gender expression (LGBTQIA+). METHODS: Systematic search in electronic databases (CINAHL, EMBASE, Medline, PsycINFO, Scopus, and Web of Science) and identification of relevant studies. RESULTS: Quantitative and qualitative findings are summarized and reported by neurological disorders: a) neurodisability/epilepsy (17.7%), b) intellectual disability/autism spectrum disorders (19.6%), c) dementia/HIV-related dementia (39.2%), d) spinal cord injury (7.8%), and e) traumatic brain injury/stroke (15.7%). CONCLUSIONS:LGBTQIA+ people with neurodisabilities and their partners/families of choice can conceal their sexual orientation or gender identity for fear of diminished quality of care. Their invisibility translates into health disparities, lack of policies and services that meet their unique needs. Dementia is the most common neurodisability documented in LGBTQIA+ people. We provide recommendations to increase LGBTQIA+ cultural competency for clinical practice, research, and policy to help different stakeholders to promote a positive change in the culture of neurodisability.

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Section: Dementia/hiv-related Dementiamentioning

confidence: 99%

“…Another qualitative study explored the experiences and needs of 30 LGBT Australians living with dementia and their partners (Barrett et al, 2015).…”

Section: Dementia/hiv-related Dementiamentioning

confidence: 99%

Changing the culture of neurodisability through language and sensitivity of providers: Creating a safe place for LGBTQIA+ people

Moreno

Laoch

Zasler

2017

NRE

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“…However, there is a lack of understanding of what these initiatives have meant for older lesbian and gay people in terms of their expectations for and experiences of aged‐care, and whether all people have been able to benefit from these initiatives. Studies conducted in Australia have examined experiences and perceptions of residential‐care, which broadly show a range of concerns and fears, including management of identity disclosure, lack of safe spaces for intimate relationships and the need for culturally safe and inclusive services (Barrett, ; Barrett, Crameri, Lambourne, Latham, & Whyte, ; Cartwright, Hughes, & Lienert, ; Chamberlain & Robinson, ; Crameri, Barrett, Latham, & Whyte, ; Harrison, ; Hughes, , ; Lovelock, ; Waite, ). Research has also found lesbian and gay people tend to have low awareness regarding their legal options, with most avoiding or not being given the opportunity to discuss the issue with healthcare providers (Hughes & Cartwright, , ).…”

Section: Introductionmentioning

confidence: 99%

Experiences and perceptions of residential and home care services among older lesbian women and gay men in Australia

Waling

Lyons

Alba

et al. 2019

Health Soc Care Community

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The needs of older lesbian and gay people regarding access and use of aged‐care services remain underresearched. This paper reports the findings of 33 qualitative interviews with older lesbian women and gay men about their perceptions and experiences of residential aged‐care and home‐based aged‐care services in Australia. The focus of this paper is their preparedness for using aged‐care services. The results highlight that participants had a number of concerns related to accessing residential‐care services in particular, including perceptions of a lack of inclusivity and concerns of potential for discrimination and hostility, loss of access to community and partners, decreased autonomy and concerns relating to quality of care and the potential for elder abuse. Participants noted a number of strategies they employed in avoiding residential‐care services, including the use of home‐care services, renovating the home for increased mobility, moving to locations with greater access to outside home‐care services, a preference for lesbian/gay‐specific housing and residential‐care options if available, and the option of voluntary euthanasia to ensure dignity and autonomy. Participants, on the whole, were hopeful that they would never require the use of residential‐care services, with some believing that having current good health or the support of friends could prevent this from happening. The findings suggest that older lesbian and gay people have a variety of concerns with aged‐care and may need additional support and education to improve their perceptions and experiences of services, whether these are needed presently or in the future.

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“…Findings indicated that respect for the older person's dignity, privacy, rights and choices was important in promoting sexuality (Heath, ; Heron & Taylor, ; McAuliffe, Bauer, & Nay, ; Milspaw, Brandon, & Sher, ) while also acknowledging that the attitudes and morals of others could be compromised by sexual expression (McAuliffe et al, ). Staff and family attitudes towards the sexuality of older people were sometimes perceived as a barrier to the expression of sexuality (Barrett, Crameri, Lambourne, Latham, & Whyte, ). Findings indicated that while staff and family members have rights and advocacy roles (Wilkins, ), these are sometimes given more importance than the rights of the older person (Lenahan & Ellwood, ; Roach, ), often due to fear of gossip (Frankowski & Clark, ) or litigation (Lenahan & Ellwood, ; Tarzia, Fetherstonhaugh, & Bauer, ).…”

Section: Resultsmentioning

confidence: 99%

Organisational enablers and barriers to the recognition of sexuality in aged care: A systematic review

2019

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Aim To identify organisational characteristics and practices that promote or inhibit the recognition of sexuality in the care of older people in health and aged care settings. Background Sexuality in old age is poorly understood by health professionals and rarely addressed in care planning and delivery. Nurse managers are ideally placed to lead organisations in promoting a culture of acceptance that enables the expression of sexuality. Evaluation A search for research/expert opinion papers published from January 2004 to February 2017 was undertaken. Two reviewers performed data extraction and appraisal of 34 included studies using Joanna Briggs Institute tools. The primarily qualitative research was analysed to identify 152 findings that were organised into 22 categories and combined into four syntheses. Key issue(s) An organisation's philosophies frame the way older people's sexuality is perceived. Cultivating a culture and environment of acceptance, engagement and knowledge and delivering care in a way that promotes opportunity for safe and private expression of sexuality are key enabling factors. Conclusion(s) Organisations and nurse leaders can support and facilitate older adults’ expression of their sexuality through the review and development of philosophies, policies, procedures, staff attitudes and knowledge and the creation of a conducive environment. Implications for Nursing Management Nurse managers play a pivotal role in developing a sexuality‐positive organisational ethos by ensuring policies, care practices, the environment and amenities are supportive of the expression of sexuality and by role modelling attitudes of respect and inclusivity.

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Understanding the experiences and needs of lesbian, gay, bisexual and trans Australians living with dementia, and their partners

Cited by 48 publications

References 7 publications

Changing the culture of neurodisability through language and sensitivity of providers: Creating a safe place for LGBTQIA+ people

Changing the culture of neurodisability through language and sensitivity of providers: Creating a safe place for LGBTQIA+ people

Experiences and perceptions of residential and home care services among older lesbian women and gay men in Australia

Organisational enablers and barriers to the recognition of sexuality in aged care: A systematic review

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