Understanding palliative care learning: A narrative inquiry exploring health care professionals’ memorable experiences

Kilbertus, Frances; King, Keely; Robinson, Susan; Cristancho, Sayra; Burm, Sarah

doi:10.1016/j.ssmqr.2022.100098

Cited by 2 publications

(1 citation statement)

References 51 publications

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“…Palliative care practice is an emotionally complex and evocative process, and one which healthcare professionals report feeling unprepared for [37]. Several reasons exist for this, including receiving little formal education about palliative care, lack of confidence in the ability to manage patient and family care, and the practitioner's own personal feelings of grief and loss [38].…”

Section: Discussionmentioning

confidence: 99%

Preparing for Death While Investing in Life: A Narrative Inquiry and Case Report of Home-Based Paediatric Palliative, End-of-Life, and After-Death Care

Noyes,

Delaney,

Lang

et al. 2023

Children

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Paediatric palliative care is pivotal for addressing the complex needs of children with incurable diseases and their families. While home-based care offers a familiar and supportive environment, delivering comprehensive services in this context is challenging. The existing literature on home-based palliative care lacks detailed guidance for its organization and implementation. This qualitative narrative inquiry explores the organization and provision of home-based paediatric palliative care. Data were collected from healthcare practitioners using conversations, storytelling, and reflective journaling. Schwind’s Narrative Reflective Process was applied to synthesize the data, resulting in an in-depth case description. The narrative approach illuminates the complexities of home-based paediatric palliative, end-of-life, and after-death care. Key findings encompass the importance of early-care coordination, interprofessional collaboration, effective symptom management, emotional and psychosocial support, and comprehensive end-of-life planning. Through the case study of the child patient, the challenges and strategies for providing holistic, family-centred care within the home environment are described. Practical insights gained from this report can inform the development and improvement of home-based palliative care programs, benefiting researchers, practitioners, and policymakers seeking to optimize care for children and families in similar contexts.

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Section: Discussionmentioning

confidence: 99%