Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures

Carlozzi, Noelle E.; Ianni, Phillip A.; Lange, Rael T.; Brickell, Tracey A.; Kallen, Michael A.; Hahn, Elizabeth A.; French, Louis M.; Cella, David; Miner, Jennifer A.; Tulsky, David S.

doi:10.1016/j.apmr.2018.06.026

Cited by 27 publications

(28 citation statements)

References 52 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Additionally, the ceiling effects (13.50%, 12.70%) were higher than those found by Carlozzi et al (3.63%, 7.27%). The average T scores for the PROMIS Ability to Participate in Social Roles and Activities short form and the PROMIS Satisfaction with Social Roles and Activities short form were 51.49 ± 9.86 and 50.36 ± 9.92, respectively, higher than the scores reported by Carlozzi et al (49.80 ± 8.60 and 47.80 ± 8.30) [ 41 ]. Therefore, compared to the patients with traumatic brain injury investigated by Carlozzi et al [ 41 ], patients with breast cancer might have better social function.…”

Section: Discussioncontrasting

confidence: 53%

“…Regarding reliability, all items were above the minimal acceptable criterion of 0.70, comparable with the original English version and suggesting acceptable reliability of the measures [ 19 , 41 ]. Although no floor or ceiling effects were found, the floor effects in this study (4.11%, 2.84%) were higher than those reported by Carlozzi et al (1.30%, 1.30%) [ 41 ]. Additionally, the ceiling effects (13.50%, 12.70%) were higher than those found by Carlozzi et al (3.63%, 7.27%).…”

Section: Discussionmentioning

confidence: 80%

See 1 more Smart Citation

Psychometric evaluation of the PROMIS social function short forms in Chinese patients with breast cancer

Cai

Huang

et al. 2021

Health Qual Life Outcomes

View full text Add to dashboard Cite

Background The diagnosis of breast cancer and the subsequent treatment undermine patients’ participation in social activities. This study aimed to carry out a cross-cultural adaption and analysis of the construct validity and reliability of the Chinese version of the PROMIS social function short forms in patients with breast cancer. Methods This study utilized a cross-sectional research design, and was registered in the Chinese Clinical Trial Registry (ChiCTR2000035439). After a standardized cross-cultural adaption process, a psychometric evaluation was performed of the Chinese version of the PROMIS social function short forms. Using convenience sampling, eligible patients with breast cancer from tertiary hospitals in China were enrolled from January 2019 to July 2020. Participants completed the sociodemographic information questionnaire, the PROMIS social function short forms, the Functional Assessment of Cancer Therapy-Breast, the PROMIS emotional support short form and the PROMIS anxiety short form. Results Data were collected from a sample of 633 patients whose mean age was 48.1 years. The measures showed an absence of floor and ceiling effects. Regarding construct validity, the results of confirmatory factor analysis supported the original two-factor structure of the PROMIS social function short forms. In addition, the measures were found to have acceptable known-group validity, measurement invariance, and convergent and discriminate validity. Regarding reliability, the Cronbach’s α was high for all items (> 0.70). Conclusion The Chinese version of the PROMIS social function short forms was demonstrated to be a valid and reliable measure for the assessment of social function in Chinese patients with breast cancer. Additional psychometric evaluation is needed to draw firm conclusions.

show abstract

Section: Discussioncontrasting

confidence: 53%

Section: Discussionmentioning

confidence: 80%

Psychometric evaluation of the PROMIS social function short forms in Chinese patients with breast cancer

Cai

Huang

et al. 2021

Health Qual Life Outcomes

View full text Add to dashboard Cite

show abstract

“…In most cases the reference group for t -scores is the general U.S. adult population, as was the case for the scales used in this study. These scales have demonstrated good validity and reliability in a variety of clinical groups including cancer [4, 5, 25].…”

Section: Methodsmentioning

confidence: 99%

“…Patients were additionally asked each day to respond to a single item of appetite modified for daily use from the Symptom Distress Scale [15] (“Consider how your appetite was today, and select the item that best describes it”: 1- “My appetite was normal and I could enjoy good food”, 2- “My appetite was somewhat less than normal”, 3- “I didn’t really enjoy my food”, 4- “I had to force myself to eat my food” "5- “I could not stand the thought of food”). This item has demonstrated good validity using Item Response Theory analysis [4]. Patients also entered daily their body weight in pounds as measured by the study scale, an average was computed of these weights across days 1–14.…”

Section: Methodsmentioning

confidence: 99%

Patient reported outcomes can improve performance status assessment: a pilot study

Broderick

May

Schwartz

et al. 2019

J Patient Rep Outcomes

View full text Add to dashboard Cite

Background Patient performance status is routinely used in oncology to estimate physical functioning, an important factor in clinical treatment decisions and eligibility for clinical trials. However, validity and reliability data for ratings of performance status have not been optimal. This study recruited oncology patients who were about to begin emetogenic palliative or adjuvant chemotherapy for treatment of solid tumors. We employed actigraphy as the gold standard for physical activity level. Correspondences between actigraphy and oncologists’ and patients’ ratings of performance status were examined and compared with the correspondences of actigraphy and several patient reported outcomes (PROs). The study was designed to determine feasibility of the measurement approaches and if PROs can improve the accuracy of assessment of performance status. Methods Oncologists and patients made performance status ratings at visit 1. Patients wore an actigraph and entered weekly PROs on a smartphone app. Data for days 1–14 after visit 1 were analyzed. Chart reviews were conducted to tabulate all unexpected medical events across days 1–150. Results Neither oncologist nor patient ratings of performance status predicted steps/hour (actigraphy). The PROMIS® Physical Function PRO (average of Days 1, 7, 14) was associated with steps/hour at high (for men) and moderate (for women) levels; the PROMIS® Fatigue PRO predicted steps for men, but not for women. Unexpected medical events occurred in 57% of patients. Only body weight in female patients predicted events; oncologist and patient performance status ratings, steps/hour, and other PROs did not. Conclusions PROMIS® Physical Function and Fatigue PROs show good correspondence with steps/hour making them easy, useful tools for oncologists to improve their assessment of performance status, especially for male patients. Female patients had lower levels of steps/hour than males and lower correlations among the predictors, suggesting the need for further work to improve performance status assessment in women. Assessment of pre-morbid sedentary behavior alongside current Physical Functioning and Fatigue PROs may allow for a more valid determination of disease-related activity level and performance status.

show abstract

“…This report is complemented by several companion articles that provide a more in-depth examination of each of the domains highlighted in this paper. [39][40][41][42][43][44][45][46]…”

mentioning

confidence: 99%

The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

Carlozzi

Kallen

Hanks

et al. 2019

Archives of Physical Medicine and Rehabilitation

Self Cite

View full text Add to dashboard Cite

show abstract

Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures

Abstract: The PROMIS CAT and SF social health measures have potential clinical utility for use in caregivers of civilians and SMVs with TBI.

Cited by 27 publications

References 52 publications

Psychometric evaluation of the PROMIS social function short forms in Chinese patients with breast cancer

Psychometric evaluation of the PROMIS social function short forms in Chinese patients with breast cancer

Patient reported outcomes can improve performance status assessment: a pilot study

The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

Contact Info

Product

Resources

About