Understanding and awareness of dementia in the Sikh community

Uppal, Gobinderjit; Bonas, Sheila; Philpott, Helen

doi:10.1080/13674676.2013.816941

Cited by 17 publications

(29 citation statements)

References 24 publications

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“…All the participants regarded dementia as memory loss, and the various symptoms of dementia were mostly perceived as reflective of the normal ageing process and other physical illnesses rather than cognitive decline. Overall, the findings of this study corroborate those of two qualitative research studies that were conducted by La Fontaine et al [17] and Uppal et al [20], who focused on dementia awareness among other South Asian (Indian Punjabi and Sikh) communities in the UK. These two studies also used hypothetical dementia-related vignettes to better understand the participants' knowledge of dementia.…”

Section: Discussionsupporting

confidence: 89%

“…The stigma attached to dementia is a consistent theme that has emerged in all of the other published literature about South Asian communities' perceptions, attitudes, and knowledge of dementia [17,18,20,[24][25][26][27][28]. One significant result of the current study is that the findings on this matter contrasted with those of previous studies.…”

Section: Discussionsupporting

confidence: 54%

“…These two studies also used hypothetical dementia-related vignettes to better understand the participants' knowledge of dementia. While the participants of the study by Uppal et al [20] had little prior knowledge of dementia, the participants in this current study had never heard of dementia before.…”

Section: Discussionmentioning

confidence: 80%

“…and Y.H.). The vignettes were adapted from vignettes that were previously tested and used for their cultural appropriateness in studies conducted among South Asian communities [17][18][19][20]. The term "dementia" was not stated in the vignettes; however, they featured a hypothetical older woman who was of Bangladeshi descent.…”

Section: Data Collectionmentioning

confidence: 99%

See 3 more Smart Citations

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Hossain

Stores

Hakak

et al. 2019

Dement Geriatr Cogn Disord

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Background: Increasing life expectancy worldwide means more people will develop dementia. Despite the rapid growth in older Bangladeshi immigrants living in the UK, there is little evidence of how community members understand and view the process of ageing and dementia. However, Bangladeshis have a higher risk of developing type 2 diabetes and heart disease, both of which are important indicators of dementia development in old age. This study aimed to explore and analyse the perception and knowledge of, and attitudes towards, ageing and dementia among the Bangladeshi community. Methods: A qualitative research approach guided two separate focus group discussions held with Bangladeshi adults in Portsmouth, UK. A topic guide was used alongside two vignettes depicting either early-or latestage dementia to stimulate discussion. The data were recorded, transcribed, and analysed thematically using NVivo qualitative software. Results: Three main themes emerged: (1) knowledge and perceptions of dementia; (2) perceived causes of dementia; and (3) perceptions of stigma about dementia. Lack of knowledge and understanding of dementia was evident, but the stigma about dementia was non-existent. This study fills a research gap by providing qualitative research examining knowledge about and attitudes towards dementia among a Bangladeshi community in England. Conclusion: Future research must highlight the importance of raising dementia awareness among, and providing information about dementia caregiving to, Bangladeshi community members, as well as providing religiously sensitive healthcare services.of dementia among Bangladeshi community members, has been highlighted. The results will provide insight for service providers, policy makers, and researchers into how dementia is perceived in the Bangladeshi community and why it has remained unreported and labelled within the broader BAME communities. It is also hoped that this study has explored the concept of dementia in depth and examined the impact of stigma on individuals, caregivers, and communities.

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Section: Discussionsupporting

confidence: 89%

Section: Discussionsupporting

confidence: 54%

Section: Discussionmentioning

confidence: 80%

Section: Data Collectionmentioning

confidence: 99%

See 2 more Smart Citations

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Hossain

Stores

Hakak

et al. 2019

Dement Geriatr Cogn Disord

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“…To ensure equitable levels of support, factors influencing access for minority ethnic (ME) groups need to be addressed. Different communities, such as South Asians or black Caribbeans, are reported to have different understandings of dementia than the indigenous population (Lawrence et al, 2011;Uppal et al, 2014). Consequently, these groups may define symptoms and causes of mental illnesses differently (Lawrence et al, 2006), which can influence access to services and appropriate care (Jimenez et al, 2013).…”

mentioning

confidence: 99%

Perceptions of self-defined memory problems vary in south Asian minority older people who consult a GP and those who do not: a mixed-method pilot study

Giebel

Challis

Worden

et al. 2015

Int J Geriatr Psychiatry

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Differences in perceptions may influence the decision about consulting a GP. Similarly, consultation for memory problems appears linked to extent physical health problems and mental health consultation (depression). These variations reported on a small scale in this pilot study suggest the need to explore the impact of perceptions on rates of GP consultation, so as to improve timely diagnosis and access to appropriate services.

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Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review

Waheed

Mirza

Waheed

et al. 2019

Int J Methods Psych Res

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Objective Identifying existing recruitment and methodological issues within dementia research conducted in UK studies that included ethnic minorities. Methods We searched for and included any publication detailing dementia research in the UK that included any ethnic minority. The search results and all titles and abstracts were screened according to the inclusion criteria followed by screening of the full texts. We extracted data regarding the recruitment and methodological issues faced by the researchers. This data was combined and listed, and related issues were grouped into overarching themes and subthemes. Results Of 52 publications suitable for analysis, 33 provided data collated into six themes: attitudes and beliefs about dementia in ethnic minority communities, recruitment process, data collection issues, practical issues, researcher characteristics, and lack of published research and normative data. These themes allowed us to identify three areas responsible for addressing these recruitment and methodological issues: community and patient education, health services, and researchers' training. Conclusions This is the first review identifying recruitment and methodological issues within UK dementia research that included ethnic minorities. We now have a compilation of reported existing issues and a framework of areas responsible for addressing them and devising solutions.

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Understanding and awareness of dementia in the Sikh community

Cited by 17 publications

References 24 publications

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Dementia Knowledge and Attitudes of the General Public among the Bangladeshi Community in England: A Focus Group Study

Perceptions of self-defined memory problems vary in south Asian minority older people who consult a GP and those who do not: a mixed-method pilot study

Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review

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