Under-detection of autism among First Nations children in British Columbia, Canada

Lindblom, Anne

doi:10.1080/09687599.2014.923750

Cited by 27 publications

(48 citation statements)

References 15 publications

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“…Additional research is needed internationally to develop and evaluate methods for increasing access to assessment and diagnosis, possibly by implementing diagnostic pathways that are accessible [ 18 , 84 ], culturally sensitive to the historical experiences of Indigenous people [ 7 , 85 ], and that cater for the effect of culture on symptom expression [ 11 , 86 ]. Doing so will help to inform prevalence rates of ASD in Indigenous populations.…”

Section: Discussionmentioning

confidence: 99%

Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue

Shochet

Orr

Kelly

et al. 2020

Int J Equity Health

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Background: People with autism spectrum disorder (ASD) face many psychosocial challenges throughout life, highlighting the need for programs and resources promoting psychosocial wellbeing. Indigenous peoples with ASD and/or other neurodevelopmental disorders must overcome cultural and social barriers to access such supports. This study aimed to identify psychosocial programs and resources developed worldwide for this population by systematically reviewing research evaluating programs aiming to promote the psychosocial wellbeing of this population and/or their caregivers; and collating and reviewing resources developed to promote their psychosocial wellbeing. Methods: Searches were last conducted in December 2019. The systematic review searched 28 electronic databases, and 25 electronic databases were searched for resources promoting psychosocial wellbeing. Additional published and unpublished studies were identified from relevant reviews, authors of eligible articles, and experts working in Indigenous Health. Articles and resources were screened for inclusion using pre-defined criteria. Articles included in the systematic review were assessed for quality using the Mixed Methods Assessment Tool. The diversity and paucity of outcomes reported precluded pooling of study findings for meta-analysis. Results: Seven articles situated in the USA (2), Canada (3) and Australia (2); and eleven resources developed in Australia (9), Canada (1) and New Zealand (1) met inclusion criteria. All articles showed some promising findings for improving psychosocial wellbeing for Indigenous children with ASD and/or another neurodevelopmental disorder, and 5 of 7 evaluated the cultural adaptation of an existing evidence-based program for an Indigenous population. However, methodological quality was moderate or low (57% and 43% of articles respectively) and no studies had adult participants. The psychosocial wellbeing supports provided by the 11 resources included psychoeducation, community support, and services/workshops.

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Section: Discussionmentioning

confidence: 99%

Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue

Shochet

Orr

Kelly

et al. 2020

Int J Equity Health

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“…Autism prevalence has risen (Centers for Disease Control and Prevention, 2012). Despite this, autism appears to be underdetected among First Nations children in British Columbia (Lindblom, 2014). British Columbia offers autism funding to families to enable them to purchase intervention services for their child (Ministry of Children and Family Development, 2015).…”

Section: Autismmentioning

confidence: 99%

‘It gives them a place to be proud’ – Music and social inclusion. Two diverse cases of young First Nations people diagnosed with autism in British Columbia, Canada

Lindblom

2016

Psychology of Music

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PostprintThis is the accepted version of a paper published in Psychology of Music. This paper has been peerreviewed but does not include the final publisher proof-corrections or journal pagination. Educational Studies, Karlstad University, Sweden. School of Educational Sciences and Psychology, University of Eastern Finland, Joensuu, Finland. 1"It gives them a place to be proud" -Music and social inclusion. Two diverse cases of young First Nations people diagnosed with autism in British Columbia, Canada. AbstractGrowing up and becoming an active participant in society can be challenging for young people. Factors such as ethnicity, disability, and gender can, separately, compose difficulties.When combined, they can develop into insurmountable obstacles. The use of music interventions and activities to overcome some of these obstacles is explored in this article, using two cases of young First Nations people diagnosed with autism, in British Columbia, Canada. Although there are similarities, the differences in severity of ASD, place of residence and school situation, to mention a few factors, make a huge difference in their daily lives.Their contrasting possibilities to be present and participate in society may have implications for their social inclusion in adulthood. Results show that both traditional and contemporary music interventions can provide foundations for inclusion and they need to be carefully designed for each individual.

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“…Several do not have Internet access or a computer at home. Due to the scarcity of First Nations children diagnosed with autism (Lindblom 2014) time was also an issue, since research partners had to be found, contacted and consent to participation, during the course of the six weeks of fieldwork in 2013.…”

Section: Methods and Proceduresmentioning

confidence: 99%

“…Although ASD prevalence is reported to be rising globally, autism appears to be under-detected among First Nations children in BC, Canada (Lindblom, 2014). In a review of publications on Indigenous Peoples and ASD in the global context, possible reasons for under-detection of autism could possibly be diagnostic substitution (Coo et al, 2008), symptom representation (Roy & Balaratnasingam, 2010), ethnic or cultural, or effects of historical discrimination (Anthony, 2009; Begeer, Bouk, Boussaid, Terwogt, & Koot, 2009; Bernier, Mao, & Yen, 2010; Burstyn, Sithole, & Zwaigenbaum, 2010; Kapp, 2011; Kim, 2012; Leonard et al, 2011; Mandell & Novak, 2005; Mandell et al, 2009; Ouellette-Kuntz et al, 2006; Roy & Balaratnasingam, 2010; Tincani, Travers, & Boutot, 2009).…”

Section: Introductionmentioning

confidence: 99%

“…DiGuiseppi, Durkin, Giarelli et al, 2009;& Kapp, 2011). In conclusion, I noted "It is essential that barriers of ethnic bias, discrimination and the impact of historical oppression are eliminated to ensure that First Nations and other aboriginal children with autism have the possibilities to reach their full potential and that their rights are recognized and respected" (Lindblom, 2014(Lindblom, , p. 1257). …”

Section: Introductionmentioning

confidence: 99%

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Exploring autism and music interventions through a First Nations lens

Lindblom

2017

AlterNative: An International Journal of Indigenous Peoples

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This research project set out to examine the meaning of music for five First Nations children diagnosed with autism spectrum disorder in British Columbia, Canada. A pan-tribal framework within an Indigenist research paradigm was used. Data were collected during visits in 2013 and 2014. Five First Nations children with different tribal affiliations and living locations, their families, and professionals were engaged in the project. Methods were conversations, observations, filmed observations, interventions, and notes. It was found that current autism discourses and practices are based on a deficit model within Western paradigms, and therefore not compatible with inclusive, First Nations worldviews and perceptions of autism representations. Music is used for purposes such as relaxation, communication, and when studying. Indigenous music is not used in targeted music interventions. This article presents unique material, emphasizing the lack of cultural sensitivity, and colonial residue in music interventions for First Nations children with autism.

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Under-detection of autism among First Nations children in British Columbia, Canada

Cited by 27 publications

References 15 publications

Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue

Psychosocial resources developed and trialled for Indigenous people with autism spectrum disorder and their caregivers: a systematic review and catalogue

‘It gives them a place to be proud’ – Music and social inclusion. Two diverse cases of young First Nations people diagnosed with autism in British Columbia, Canada

Exploring autism and music interventions through a First Nations lens

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