Uncertainty, Vulnerability, and Isolation: Factors Framing Quality of Life with Aphasia in a South African Township

Legg, Carol; Penn, Claire

doi:10.1007/978-94-007-3018-2_2

Cited by 9 publications

(3 citation statements)

References 30 publications

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“…Legg (2010) used anthropological methods to conduct an extensive study of the lived experience of persons with aphasia living in an impoverished environment, in which challenges of life included financial hardship and limited social and health resources. They reported living in extreme hardship with reduced social networks, intergenerational tensions, and experiences of crime exploitation and stigma (Legg & Penn, 2013a, 2013b. Her study showed how feelings of uncertainty, vulnerability, and isolation emerged for people living with aphasia under such conditions.…”

Section: Aphasia In South Africamentioning

confidence: 98%

“…In one study on stroke in a context of poverty (Legg & Penn, 2013a, 2013b, residents in an informal settlement highlighted particular struggles of the elderly, as well as the burden for women in terms of access to community services, stigmatization, and exploitation. In patriarchal African society, older women's rights to property inheritance are violated commonly and they are at risk of abuse, violence, and exploitation.…”

Section: Other Policy Issuesmentioning

confidence: 99%

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Asking New Questions and Seeking New Answers

Penn¹

2014

Topics in Language Disorders

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Emerging policy in South Africa has had a marked impact on delivery of service by speech-language pathologists, particularly in the field of aphasia. This article describes major policy influences in the areas of language use, health, education, disability, and the elderly, which have had an impact on service delivery. Aphasia assessment and intervention, in particular, are profoundly influenced by the unique sociopolitical context and opportunities are created for developing innovative perspectives, which expand traditional frameworks and scope of practice. Relevant practice requires awareness both of enabling policy and of the impact of issues such as poverty and culture on assessment and intervention. The profession of speech-language pathology has a powerful potential role in advocacy and social reform and to help develop policy, interrogate traditional models of training, and derive research that is relevant and contributes to a global debate. Key words: aphasia, health inequities, language policy, South Africa Without language, one cannot talk to people and understand them; one cannot share their hopes and aspirations, grasp their history, appreciate their poetry, or savor their songs.Nelson Mandela (1995), Long Walk to Freedom

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Section: Aphasia In South Africamentioning

confidence: 98%

Section: Other Policy Issuesmentioning

confidence: 99%

Asking New Questions and Seeking New Answers

Penn¹

2014

Topics in Language Disorders

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“…This is often the case for poor families living in areas that hold strongly to traditional customs and religion (Tigerera & Makhubele 2019;Tshabalala 2014). Different cultural perceptions and societal understanding of health and disability might mean that the access and provision of health and social services for children with disability by their parents and family members might vary (Legg & Penn 2013;Maart & Jelsma 2014). Depending on one's belief system, some of the responses from a parent of a child with disability might include some visitations to one or all of the following: biomedical and/or allopathic health practitioners; indigenous healers; and listening to and gaining advice on belief-systems, some of which might be traditional, such as witchcraft and religious belief systems, to search for a cure.…”

Section: Introductionmentioning

confidence: 99%

The black hole of dealing with a disability diagnosis: Views of South African rural parents

Duma¹,

Tshabalala

Mji

2021

African Journal of Disability

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Background: Lack of support systems in the management of health and rehabilitation related problems, including the stigma of giving birth to a child with disability, results in some parents ignoring the doctor’s prognosis of lifelong disability.Objectives: The study was conducted in the Eastern Cape province (ECP) of South Africa (SA) on parents’ views in caring for children with disability in an area with minimal health facilities in a rural setting.Method: Data was collected using exploratory descriptive qualitative methods. A Xhosa-speaking researcher facilitated six focus group discussions and conducted one individual in-depth interview with 37 parents or caregivers of children with disability residing at Happy home. Only one father was interviewed. Thematic analysis was used in interpreting data obtained from interviews.Results: The findings revealed themes indicating key concerns of parents, which were as follows: challenges with disability diagnosis, negative attitudes of health professionals, health and rehabilitation related problems, and lack of support from families and community.Conclusion: Caring for children with disability in a rural setting where services are minimal or not available to the poorest people who mostly need such services is not easy. Thus, to respond appropriately to the health and support needs of children with disability, it is crucial to understand the social context and needs of their families and caregivers. Due to size of the study, findings cannot be generalised. Recommendations are made for further studies to explore the vital issues affecting parents of children with disabilities.

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Introduction to the Preliminary Framework of a New Analytical Perspective

Klemmensen

2018

Integrating the Participants’ Perspective in the Study of Language and Communication Disorders

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Uncertainty, Vulnerability, and Isolation: Factors Framing Quality of Life with Aphasia in a South African Township

Cited by 9 publications

References 30 publications

Asking New Questions and Seeking New Answers

Asking New Questions and Seeking New Answers

The black hole of dealing with a disability diagnosis: Views of South African rural parents

Introduction to the Preliminary Framework of a New Analytical Perspective

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