Tweeting About Prostate and Testicular Cancers: What Are Individuals Saying in Their Discussions About the 2013 Movember Canada Campaign?

Bravo, Caroline A.; Hoffman‐Goetz, Laurie

doi:10.1007/s13187-015-0838-8

Cited by 23 publications

(19 citation statements)

References 20 publications

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“…This is a free application that allows easy access to 1% of all Twitter data in real time, filtered by specific criteria (eg, keywords) [ 76 , 77 ]. Lastly, SM can be directly used by health researchers to support prevention interventions to raise awareness and engage populations [ 78 ] and to crowdfund by promoting their research on SM. Indeed, crowdfunding can be eased by establishing professional contacts through SM and sharing campaigns [ 79 ].…”

Section: Discussionmentioning

confidence: 99%

The Use of Social Media for Health Research Purposes: Scoping Review

Bour¹,

Ahne²,

Schmitz³

et al. 2021

J Med Internet Res

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Background As social media are increasingly used worldwide, more and more scientists are relying on them for their health-related projects. However, social media features, methodologies, and ethical issues are unclear so far because, to our knowledge, there has been no overview of this relatively young field of research. Objective This scoping review aimed to provide an evidence map of the different uses of social media for health research purposes, their fields of application, and their analysis methods. Methods We followed the scoping review methodologies developed by Arksey and O’Malley and the Joanna Briggs Institute. After developing search strategies based on keywords (eg, social media, health research), comprehensive searches were conducted in the PubMed/MEDLINE and Web of Science databases. We limited the search strategies to documents written in English and published between January 1, 2005, and April 9, 2020. After removing duplicates, articles were screened at the title and abstract level and at the full text level by two independent reviewers. One reviewer extracted data, which were descriptively analyzed to map the available evidence. Results After screening 1237 titles and abstracts and 407 full texts, 268 unique papers were included, dating from 2009 to 2020 with an average annual growth rate of 32.71% for the 2009-2019 period. Studies mainly came from the Americas (173/268, 64.6%, including 151 from the United States). Articles used machine learning or data mining techniques (60/268) to analyze the data, discussed opportunities and limitations of the use of social media for research (59/268), assessed the feasibility of recruitment strategies (45/268), or discussed ethical issues (16/268). Communicable (eg, influenza, 40/268) and then chronic (eg, cancer, 24/268) diseases were the two main areas of interest. Conclusions Since their early days, social media have been recognized as resources with high potential for health research purposes, yet the field is still suffering from strong heterogeneity in the methodologies used, which prevents the research from being compared and generalized. For the field to be fully recognized as a valid, complementary approach to more traditional health research study designs, there is now a need for more guidance by types of applications of social media for health research, both from a methodological and an ethical perspective. International Registered Report Identifier (IRRID) RR2-10.1136/bmjopen-2020-040671

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Section: Discussionmentioning

confidence: 99%

The Use of Social Media for Health Research Purposes: Scoping Review

Bour¹,

Ahne²,

Schmitz³

et al. 2021

J Med Internet Res

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“…On the other hand, content produced for social media-based campaigns can be unrelated to the campaign’s target. For example, it was found that the majority of Movember campaign-related tweets did not associate with prostatic and testicular cancer awareness [ 39 ], and the majority of tweets produced during breast cancer awareness week did not promote any specific preventive behaviors [ 40 ]. Despite the importance of developing related content, research into the correlation between social media-based awareness campaigns and behavior change is minimal because it is a new avenue in public health awareness [ 41 ].…”

Section: Introductionmentioning

confidence: 99%

The Potential Role of Social Media Platforms in Community Awareness of Antibiotic Use in the Gulf Cooperation Council States: Luxury or Necessity?

Zowawi¹,

Abedalthagafi²,

Mar³

et al. 2015

J Med Internet Res

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The increasing emergence and spread of antimicrobial resistance (AMR) is a serious public health issue. Increasing the awareness of the general public about appropriate antibiotic use is a key factor for combating this issue. Several public media campaigns worldwide have been launched; however, such campaigns can be costly and the outcomes are variable and difficult to assess. Social media platforms, including Twitter, Facebook, and YouTube, are now frequently utilized to address health-related issues. In many geographical locations, such as the countries of the Gulf Cooperation Council (GCC) States (Saudi Arabia, United Arab Emirates, Kuwait, Oman, Qatar, and Bahrain), these platforms are becoming increasingly popular. The socioeconomic status of the GCC states and their reliable communication and networking infrastructure has allowed the penetration and scalability of these platforms in the region. This might explain why the Saudi Ministry of Health is using social media platforms alongside various other media platforms in a large-scale public awareness campaign to educate at-risk communities about the recently emerged Middle East respiratory syndrome coronavirus (MERS-CoV). This paper discusses the potential for using social media tools as cost-efficient and mass education platforms to raise awareness of appropriate antibiotic use in the general public and in the medical communities of the Arabian Peninsula.

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“…Due to this, content on social media is interactive, where patients and caregivers are able to obtain information while also contributing to a networked process of content development and diffusion (Chou et al, ). Recent research documents that patients and their caregivers use social media as a way to share their illness experiences (Gage, ; Gomez‐Zuniga et al, ; Chou et al, ; Clerici et al, ; Greene et al, ; Greaves et al, 2013; Wicks et al, 2013) and engage in health‐related discussion (Bravo & Hoffman‐Goetz, ; Chou, Prestin, & Kunath, ; Tsuya et al, ).…”

Section: Introductionmentioning

confidence: 99%

Examining social media use among parents of children with cancer

LaValley

Gage‐Bouchard

Mollica

et al. 2015

Proc. Assoc. Info. Sci. Tech.

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Americans are increasingly using social media for healthrelated communication. Facebook is the most widely used social media platform in the US. Much of the previous research on social media and health communication has focused on Facebook Groups related to a specific disease, or Facebook Pages related to an advocacy organization. However, less is known about how people communicate about health on personal Facebook Pages. In this study we expand upon previous research by examining the patterns of Facebook use among one unique population: parents caring for a child with cancer. We examined themes in cancerrelated exchanges through a content analysis of 12 months of data from 18 publically available Facebook Pages hosted by parents of children with Acute Lymphoblastic Leukemia (15,852 total posts). Four categories of health-related Facebook usage emerged: documenting the cancer journey, (2) promoting awareness and advocacy about pediatric cancer, (3) sharing emotional strain associated with caregiving, and (4) mobilizing symbolic and instrumental forms of support. Our findings show that Facebook Pages offer a platform for people to share their cancer experiences, promote advocacy and awareness, and mobilize social support. Information professionals, particularly those who work with consumer and patient populations, should remain aware that social media platforms can provide layperson-generated, user-centered content that meets the informational, emotional, and logistical needs of caregivers and patients.

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Tweeting About Prostate and Testicular Cancers: What Are Individuals Saying in Their Discussions About the 2013 Movember Canada Campaign?

Cited by 23 publications

References 20 publications

The Use of Social Media for Health Research Purposes: Scoping Review

The Use of Social Media for Health Research Purposes: Scoping Review

The Potential Role of Social Media Platforms in Community Awareness of Antibiotic Use in the Gulf Cooperation Council States: Luxury or Necessity?

Examining social media use among parents of children with cancer

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