Turkish Version of Evaluation of Ankylosing Spondylitis Quality of Life Questionnaire in Patients With Ankylosing Spondylitis:  A Validation and Reliability Study

Öncülokur, Nagehan

doi:10.5606/archrheumatol.2018.6614

Cited by 8 publications

(18 citation statements)

References 33 publications

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“…English, Dutch , Spanish , Chinese , US/Canadian English , Canadian French , French , German , Italian , Spanish , Swedish , Greek , Tunisian , and Turkish .…”

Section: Ankylosing Spondylitismentioning

confidence: 99%

Patient‐Reported Outcomes in Rheumatology Patients With Limited English Proficiency and Limited Health Literacy

Bedoya¹,

Davis²,

Hirsh³

2020

Arthritis Care & Research

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“…English, Dutch , Spanish , Chinese , US/Canadian English , Canadian French , French , German , Italian , Spanish , Swedish , Greek , Tunisian , and Turkish .…”

Section: Ankylosing Spondylitismentioning

confidence: 99%

Patient‐Reported Outcomes in Rheumatology Patients With Limited English Proficiency and Limited Health Literacy

Bedoya¹,

Davis²,

Hirsh³

2020

Arthritis Care & Research

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“…As a result, 48 publications were selected after the title and abstract screening. 22 articles [ 8 , 14 – 34 ] were enrolled according to the inclusion criteria and 15 [ 8 , 15 – 25 , 28 , 29 , 31 ] of them were included in meta-analysis. A PRISMA flow diagram was created to describe the study selection process (Fig.…”

Section: Resultsmentioning

confidence: 99%

“…A total of 12 self-rating instruments were included in this study. 13 studies [ 8 , 15 – 25 , 31 ] administered the ASQOL questionnaire, two [ 28 , 29 ] assessed the EASi-QoL questionnaire, one reported the revised Leeds disability questionnaire (RLDQ) [ 20 ], the combined AS questionnaire for quality of life (CASQ-QoL) [ 30 ] questionnaire, the EuroQol [ 14 ] questionnaire, the patient-generated index (PGI) [ 27 ], the short form-36 health survey (SF-36) [ 26 ], the short form-12 health survey (SF-12) [ 14 ], and the modified ankylosing spondylitis-arthritis impact measurement scales 2 (AS-AIMS2) [ 34 ] respectively. One study attempted to develop an AS patient quality of life measurement scale (SQOL-AS) [ 32 ] in the Chinses population, and another one focused on comparing the characteristics of the EQ-5D and SF-6D scales [ 33 ].…”

Section: Resultsmentioning

confidence: 99%

The validity and reliability of quality of life questionnaires in patients with ankylosing spondylitis and non-radiographic axial spondyloarthritis: a systematic review and meta-analysis

Luo

Chen

Yang

et al. 2022

Health Qual Life Outcomes

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Background Patients who suffered from ankylosing spondylitis (AS) or non-radiographic axial spondyloarthritis (nr-axSpA) often have poor quality of life (QoL) and there has been a substantial increase in research on acceptable questionnaires for assessment of QoL. This systematic review aims at examining the validity and reliability of QoL questionnaires in patients with AS/nr-axSpA. Methods Randomized controlled trials (RCTs), cohort trials, and cross-sectional trails were retrieved by searching seven databases. Primary outcomes included test–retest reliability and construct validity. Secondary outcomes included internal consistency, structural validity, responsiveness and so on. Data extraction and analyses were conducted according to the Cochrane standards. The Agency for Healthcare Research and Quality (AHRQ) checklists was used to assess the risk of bias for each included study. We used the Consensus-based Standards for the Selection of Health Status Measurement Instruments (COSMIN) to assess the methodological quality and measurement property of included instruments. The quality of evidence on pre-specified outcomes were assessed by the Grades of Recommendations, Development and Evaluation (GRADE) approach. Results 22 publications containing 10 self-rating instruments were included in this study. Most studies were cross-sectional in design and a total of 3,085 participants were enrolled. 19 studies had moderate to high test–retest reliability. Cronbach’s alpha (α) Coefficients were generally high (0.79–0.97) for overall scales. The ankylosing spondylitis quality of life (ASQOL) and evaluation of ankylosing spondylitis quality of life (EASi-QoL) questionnaires showed the strongest measurement properties in high-quality studies. The correlation coefficient for test–retest reliability of the ASQOL questionnaire was 0.85 (95% CI 0.80 to 0.89). The pooled Cronbach’s α coefficients of the ASQOL questionnaire and the EASi-QoL questionnaire were high. Bath Ankylosing Spondylitis Disease Activity Index (BASDAI) and Bath Ankylosing Spondylitis Functional Index (BASFI) were considered as two validity criteria. For the ASQOL and EASi-QoL questionnaire, pooled convergent validity associations with BASDAI and BASFI were low to strong (0.24–0.81). Conclusions This study indicated acceptable reliability and stability of included QoL questionnaires. The ASQOL and the EASi-QoL questionnaires are validated and reliable disease-specific questionnaires for the assessment of QoL in patients with AS/nr-axSpA.

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“…It is increasingly recognized that the generic and disease specific instruments are complementary. [ 22 , 23 ] However, few studies provide information on interpretation of results, which is important for their application in clinical trials and clinical care. In the present study, the most preferable general health status questionnaire, SF-36, was used for assessing the impact of AS on health related QoL along with ASQoL, which is a disease-specific tool.…”

Section: Discussionmentioning

confidence: 99%

The Correlations Between Disease Specific Quality of Life, Short Form-36 and Clinical Variables in Patients With Ankylosing Spondylitis

Alkan¹,

Yıldız²,

Ardıç³

2020

Arch Rheumatol

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Objectives This study aims to assess the correlations between disease specific quality of life (QoL), general health status and clinical variables in patients with ankylosing spondylitis (AS), and also to determine a cutoff value for the disease specific QoL questionnaire. Patients and methods A total of 124 patients (80 males, 44 females; mean age 40.6±11.1 years; range, 20 to 65 years) who fulfilled the modified New York criteria for AS were included in this cross-sectional study. All patients received a comprehensive rheumatologic assessment including disease specific instruments for disease activity, functional status, spinal mobility and QoL. Furthermore, short form-36 (SF-36) was used to determine general health status. Pain levels of the patients were assessed with visual analog scale (VAS). Pearson’s analysis was used to assess correlation among variables, with moderate, strong, or very strong correlations if the value was between 0.40-0.69, 0.70-0.89, and 0.90-0.99, respectively. To determine a cutoff value for the ankylosing spondylitis quality of life (ASQoL) score, the area under the receiver operating characteristic curve (AUC) was computed according to clinical parameters which have the strongest correlations with ASQoL. Results The mean ASQoL score was 8.8±4.9. There was a significantly positive correlation between ASQoL and disease activity, functional status, spinal mobility and pain VAS whereas there was a significantly negative correlation between ASQoL and the SF-36 subscale scores except for mental health and emotional role (p<0.001). The strongest positive correlation was found between ASQoL and the Bath Ankylosing Spondylitis Disease Activity Index (r=0.721, p<0.001) whereas the strongest negative correlation was found between ASQoL and the first question of SF-36 (r=-0.844, p<0.001). A cutoff value of eight in ASQoL showed good discriminative properties for impaired QoL where sensitivity and specificity were simultaneously maximized according to disease activity (AUC=0.84 [95% confidence interval (CI): 0.770-0.908, p<0.001]) and the patients’ global health status (AUC=0.85 [95% CI: 0.782-0.923, p<0.001]) in patients with AS. Conclusion There was a strong correlation between ASQoL and disease activity as well as the patients’ global health status in patients with AS. A cutoff value of eight in ASQoL could be used with good discriminative properties for impaired QoL in AS.

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Turkish Version of Evaluation of Ankylosing Spondylitis Quality of Life Questionnaire in Patients With Ankylosing Spondylitis: A Validation and Reliability Study

Cited by 8 publications

References 33 publications

Patient‐Reported Outcomes in Rheumatology Patients With Limited English Proficiency and Limited Health Literacy

Patient‐Reported Outcomes in Rheumatology Patients With Limited English Proficiency and Limited Health Literacy

The validity and reliability of quality of life questionnaires in patients with ankylosing spondylitis and non-radiographic axial spondyloarthritis: a systematic review and meta-analysis

The Correlations Between Disease Specific Quality of Life, Short Form-36 and Clinical Variables in Patients With Ankylosing Spondylitis

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