“Trust Me, It’s Different”: Experiences of Peer Case Management of Women Living with HIV in Ontario, Canada

Greene, Saara; Ion, Allyson; Kwaramba, Gladys; Mwalwanda, Mary; Caswell, J. Edgar; Guzha, Esther; Carvalhal, Adriana

doi:10.7202/1034144ar

Cited by 15 publications

(13 citation statements)

References 43 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Some indicators from a parallel qualitative review point to a case-manager-client relationship built on trust and continuity of care and integrated services as being key factors in the success of case management programs [99]. Many programs include peers and people with lived experience acting in case management roles [100][101][102][103], and while this has been identified as important to those confronted with homelessness [104][105][106], such approaches require formal evaluation.…”

Section: Discussionmentioning

confidence: 99%

The effectiveness of case management interventions for the homeless, vulnerably housed and persons with lived experience: A systematic review

et al. 2020

View full text Add to dashboard Cite

Background Individuals who are homeless or vulnerably housed are at an increased risk for mental illness, other morbidities and premature death. Standard case management interventions as well as more intensive models with practitioner support, such as assertive community treatment, critical time interventions, and intensive case management, may improve healthcare navigation and outcomes. However, the definitions of these models as well as the fidelity and adaptations in real world interventions are highly variable. We conducted a systematic review to examine the effectiveness and cost-effectiveness of case management interventions on health and social outcomes for homeless populations. Methods and findings We searched Medline, Embase and 7 other electronic databases for trials on case management or care coordination, from the inception of these databases to July 2019. We sought outcomes on housing stability, mental health, quality of life, substance use, hospitalization, income and employment, and cost-effectiveness. We calculated pooled random effects estimates and assessed the certainty of the evidence using the GRADE approach. Our search identified 13,811 citations; and 56 primary studies met our full inclusion criteria. Standard case management had both limited and short-term effects on substance use and housing outcomes and showed potential to increase hostility and depression. Intensive case

show abstract

Section: Discussionmentioning

confidence: 99%

The effectiveness of case management interventions for the homeless, vulnerably housed and persons with lived experience: A systematic review

et al. 2020

View full text Add to dashboard Cite

show abstract

“…Medical and nutritional experiments in First Nations, residential schools, and Indian hospitals are examples of harmful research (Geddes, 2017;Mosby, 2013;Elder Joan Morris, personal communication, 2015). In response to this and in alignment with community priorities, we used a peer-led CBPR arts-based approach to attend to inherent power imbalances of research (Greene et al, 2015). Respect, relevance, reciprocity, and responsibility (four Rs) are critical in Indigenous research, and arts-based methods can facilitate adherence to these principles (Kirkness & Barnhardt, 1991).…”

Section: Methodsmentioning

confidence: 99%

Indigenous Women Voicing Experiences of HIV Stigma and Criminalization Through Art

Sanderson¹,

Ranville

Gurney³

et al. 2021

IJIH

View full text Add to dashboard Cite

Indigenous women living with HIV are disproportionately affected by the criminalization of HIV nondisclosure. The purpose of this paper is to better understand how the criminalization of HIV nondisclosure shapes the lived experiences of HIV-related stigma, disclosure, and health service among cis and transgender Indigenous women living with HIV (IWLWH). This study was developed based on a community roundtable on HIV criminalization with engagement of legal experts, HIV service organizations, and IWLWH on the unceded traditional territory of the Coast Salish Peoples, including the ter̓ritories of the xwməθkwəy̓ əm (Musqueam), Sḵwx̱ wú7mesh (Squamish), and Səlílwətaɬ (Tsleil-Waututh) Nations (Vancouver, British Columbia, Canada) in 2016 to 2018. Drawing on community-based participatory photovoice methodology, Indigenous Peer Researchers played a central role throughout this project, including planning, facilitation of photo-voice workshops, and analysis. This analysis includes 17 IWLWH. Through a peer-engaged analysis process, the photovoice images and narratives illustrated how the criminalization of HIV nondisclosure is intertwined with colonial violence to shape experiences of social isolation and exclusion, disclosure, access to safe health care, responsibility, fear, and resilience. The legal requirements of HIV nondisclosure are unattainable for many IWLWH who are not able to safely disclose their HIV status, negotiate condom use, and maintain a low viral load. In line with the Truth and Reconciliation Commission of Canada and National Inquiry into Missing and Murdered Indigenous Women and Girls, the justice system must be reoriented from punishment and oppression to healing and wellbeing for all Indigenous women living with HIV. Simultaneously, we call for culturally safe services that protect privacy and recognize strengths of IWLWH.

show abstract

“…Studies about experiences. Of the 23 studies about experiences with peer support, 15 concerned experiences with providing peer support (Table 1; studies 2, 4, 5, 7-9, 15-23), [35][36][37][38][39][40][41][42][43][44][45][46][47][48][49] four addressed experiences with receiving peer support (Table 1, studies 1, 6, 11, 13), [50][51][52][53] and four explored PLHIV's views on both providing and receiving peer support (Table 1, studies 3, 10, 12, 14). [54][55][56][57] Most studies (n = 20, 59%) utilized a qualitative design (Table 2).…”

Section: Categories Of Studies and Their Resultsmentioning

confidence: 99%

A Scoping Review of the Empirical Literature on Peer Support for People Living with HIV

Øgård-Repål

Berg

Fossum

2021

J Int Assoc Provid AIDS Care

View full text Add to dashboard Cite

People living with HIV receiving antiretroviral therapy need support related to linkage to care and self-management in everyday life. Peer support has been found to provide varied support according to the unique needs of the group. This scoping review aims to provide an overview of research on peer support provided to people living with HIV. A search was conducted in eight databases until May 2021, and two reviewers independently screened all identified studies. We sorted the included studies into categories and conducted descriptive analyses. For this communication, we included 34 studies representing three study categories: the experiences of peer support (n = 23), program descriptions (n = 6), and training of peer supporters (n = 5). The studies were published between 2000 and 2021 and included 4275 participants from 10 countries. The flexibility of peer support complements healthcare services, but there is a need to clarify and adjust the ongoing support when living with HIV.

show abstract

“Trust Me, It’s Different”: Experiences of Peer Case Management of Women Living with HIV in Ontario, Canada

Cited by 15 publications

References 43 publications

The effectiveness of case management interventions for the homeless, vulnerably housed and persons with lived experience: A systematic review

The effectiveness of case management interventions for the homeless, vulnerably housed and persons with lived experience: A systematic review

Indigenous Women Voicing Experiences of HIV Stigma and Criminalization Through Art

A Scoping Review of the Empirical Literature on Peer Support for People Living with HIV

Contact Info

Product

Resources

About