Trust, choice and power in mental health care: Experiences of patients with psychosis

Laugharne, Richard; Priebe, Stefan; Garland, Natasha; Clifford, Damian

doi:10.1177/0020764011408658

Cited by 80 publications

(101 citation statements)

References 15 publications

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“…This entails to feel trust in professionals [21, 22, 24-28, 31-33, 35], as well as having mutual trust in the relationship, where the trusted professional trusts the individual in return [26,28,32,35,40].…”

Section: To Know and To Trustmentioning

confidence: 99%

Section: Time and Availabilitymentioning

confidence: 99%

“…One basic, helpful component is the opportunity of having long-term relationships [22, 24, 26, 28-30, 32, 34, 37]; something that is described as providing continuity [22,24,26,28,29] and consistency [32]. Trust can take a long time to develop [27,31] and this can be facilitated by long-term relationships [24,26,28,29,32]. Having relationships that lasts over time also makes it possible to really get to know each other [24,26,29,34,37,40], and gives the professionals better background knowledge to help with treatment and support [26,30,40].…”

Section: Time and Availabilitymentioning

confidence: 99%

“…To have regularity in seeing professionals can promote a feeling of security regarding seeing the professional again and when that will happen [28,33]. Furthermore, for professionals to be physically available, to be accessible and acknowledge requests when they occur [23, 24, 27, 29, 31-34, 37, 38, 41] and be able to help when challenges arise [22,23,27,30,31,36,39,41] is described as helpful.…”

Section: Time and Availabilitymentioning

confidence: 99%

“…Moreover, professionals can serve as an important source of information for individuals. By providing information about things such as the care system, mental illness, medication, and rights and obligations, professionals can provide individuals with a wider understanding of the situation and how to handle it [21,28,29,31,33,[35][36][37][38]41]. ''She understands me, but she's trained for that.…”

Section: Advantages Tied To the Professional Positionmentioning

confidence: 99%

See 4 more Smart Citations

The Art of Helpful Relationships with Professionals: A Meta-ethnography of the Perspective of Persons with Severe Mental Illness

2015

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Relationships with professionals have been shown to be helpful to persons with severe mental illness (SMI) in relation to a variety of services. In this article, we aimed to synthesize the available qualitative research to acquire a deepened understanding of what helpful relationships with professionals consists of, from the perspective of persons with SMI. To do this, we created a meta-ethnography of 21 studies, through which ten themes and an overarching interpretation were created. The findings show that helpful relationships with professionals are relationships where the persons with SMI get to spend time with professionals that they know and trust, who gives them access to resources, support, collaboration and valued interpersonal processes, which are allowed to transgress the boundaries of the professional relationship. The overarching interpretation shows that the relationship that persons with SMI form with professionals is a professional relationship as well as an interpersonal relationship. Both these dimensions entail actions and processes that can be helpful to persons with SMI. Therefore, it is important to recognize and acknowledge both the functional roles of service user and service provider, as well as the roles of two persons interacting with each other, in a manner that may go beyond the purview of the traditional professionalism. Furthermore, the helpful components of this DOI 10.1007/s11126-015-9347-5 relationship are determined by the individual preferences, needs and wishes of persons with SMI.

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Section: To Know and To Trustmentioning

confidence: 99%

Section: Time and Availabilitymentioning

confidence: 99%

Section: Time and Availabilitymentioning

confidence: 99%

Section: Time and Availabilitymentioning

confidence: 99%

Section: Advantages Tied To the Professional Positionmentioning

confidence: 99%

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The Art of Helpful Relationships with Professionals: A Meta-ethnography of the Perspective of Persons with Severe Mental Illness

2015

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Internet usage and patient's trust in physician during diagnoses: A knowledge power perspective

Wallace

2017

Asso for Info Science & Tech

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Does patients' Internet search of disease information affect their trust in physicians during diagnosis? This study proposes a research model from a knowledge power perspective, that is, Internet search affects patients' perception of their knowledge level. Our empirical study of more than 400 subjects suggests that for patients who searched online for disease information, the inconsistency between their self-diagnosis expectations and their physician's diagnosis reduces their trust in their physician. The effect is stronger for those who spent more time on Internet search. Patients with chronic conditions are less affected by the inconsistency, as are patients of physicians with a higher professional status. This study also found that physicians' interaction quality in the diagnosis process-how well they communicate with their patient-still plays a dominant role in gaining patient's trust. This finding suggests that even in the high-tech age, high-touch remains an important factor to physician-patient trust.

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The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics

et al. 2022

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Psychosis is the most ineffable experience of mental disorder. We provide here the first co‐written bottom‐up review of the lived experience of psychosis, whereby experts by experience primarily selected the subjective themes, that were subsequently enriched by phenomenologically‐informed perspectives. First‐person accounts within and outside the medical field were screened and discussed in collaborative workshops involving numerous individuals with lived experience of psychosis as well as family members and carers, representing a global network of organizations. The material was complemented by semantic analyses and shared across all collaborators in a cloud‐based system. The early phases of psychosis (i.e., premorbid and prodromal stages) were found to be characterized by core existential themes including loss of common sense, perplexity and lack of immersion in the world with compromised vital contact with reality, heightened salience and a feeling that something important is about to happen, perturbation of the sense of self, and need to hide the tumultuous inner experiences. The first episode stage was found to be denoted by some transitory relief associated with the onset of delusions, intense self‐referentiality and permeated self‐world boundaries, tumultuous internal noise, and dissolution of the sense of self with social withdrawal. Core lived experiences of the later stages (i.e., relapsing and chronic) involved grieving personal losses, feeling split, and struggling to accept the constant inner chaos, the new self, the diagnosis and an uncertain future. The experience of receiving psychiatric treatments, such as inpatient and outpatient care, social interventions, psychological treatments and medications, included both positive and negative aspects, and was determined by the hope of achieving recovery, understood as an enduring journey of reconstructing the sense of personhood and re‐establishing the lost bonds with others towards meaningful goals. These findings can inform clinical practice, research and education. Psychosis is one of the most painful and upsetting existential experiences, so dizzyingly alien to our usual patterns of life and so unspeakably enigmatic and human.

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Trust, choice and power in mental health care: Experiences of patients with psychosis

Cited by 80 publications

References 15 publications

The Art of Helpful Relationships with Professionals: A Meta-ethnography of the Perspective of Persons with Severe Mental Illness

The Art of Helpful Relationships with Professionals: A Meta-ethnography of the Perspective of Persons with Severe Mental Illness

Internet usage and patient's trust in physician during diagnoses: A knowledge power perspective

The lived experience of psychosis: a bottom‐up review co‐written by experts by experience and academics

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