Trust between patients and health websites: a review of the literature and derived outcomes from empirical studies

Vega, Laurian; Montague, Enid; DeHart, Tom

doi:10.1007/s12553-011-0010-3

Cited by 33 publications

(34 citation statements)

References 63 publications

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“…Figure 2 shows the average amount of videos positioned within ranking intervals (1)(2)(3)(4)(5)(6)(7)(8)(9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19)(20), (21)(22)(23)(24)(25)(26)(27)(28)(29)(30)(31)(32)(33)(34)(35)(36)(37)(38)(39)(40), (41-60), (61-80) and (81-100), calculated over the 20 queries. We see for example that on average, approximately 2 % of the top-20 ranked videos came from hospitals, 9% from organizations, while 3% came from active users.…”

Section: Resultsmentioning

confidence: 99%

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Retrieval of trustworthy health videos from YouTube

Karlsen

Morell

Fernández-Luque

et al. 2014

IEEE-EMBS International Conference on Biomedical and Health Informatics (BHI)

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Health information retrieval and YouTube can be used as powerful tools aimed to improve users' health knowledge. However, YouTube videos must be carefully analysed in order to avoid misleading health content, such as inaccurate health information, non-up-to-date treatments, false medical products promoted by for-profit organizations, and information not related to health. This paper presents an approach for retrieving trustworthy health videos from YouTube. Our algorithm automatically identifies videos coming from credible sources (such as hospitals and health organizations) and re-ranks YouTube results so that such videos are given priority in the ranking list. Video metadata and YouTube social interaction information is used to automatically determine if a video is provided by such a credible source. The algorithm is tested and results show that the amount of recommendable videos ranked within top-10 increase when using our Domain-based ranking, compared with the original YouTube ranking. R. Karlsen is with the

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Section: Resultsmentioning

confidence: 99%

“…As pointed out in [17,27], assessing trust is difficult. We have in this test chosen to evaluate whether a video is "recommendable" or not based on a combination of two components; relevance to the query and perceived reliability.…”

Section: Discussionmentioning

confidence: 99%

Retrieval of trustworthy health videos from YouTube

Karlsen

Morell

Fernández-Luque

et al. 2014

IEEE-EMBS International Conference on Biomedical and Health Informatics (BHI)

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“…Patients are often unsure about which websites to trust and are concerned about accessing potentially misleading or illegitimate health information [37,38]. The outdated, inaccurate, and unreliable web-based information can mislead the public for their understanding of the stroke and stroke management.…”

Section: Trustworthinessmentioning

confidence: 99%

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation (Preprint)

Lee¹,

Shin²,

An³

2018

Preprint

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Background: The websites are common resources of health-information to stroke survivors and caregivers to obtain information and resources for continual management of stroke and the long-term sequels. Korean Americans (KAs) are frequent users of the webbased health information related to stroke management. The high stroke risk factors and mortality in KAs and lack of insurance, thus limited access to long-term care explains KAs' reliance on the web-based information. Quality of information on the websites is often questioned. Objective: This study aimed to provide a systematic evaluation of stroke-related websites regarding (1) trustworthiness (2) readability, and (3) the suitability for stroke prevention and self-management in KAs. Methods: The search terms 'stroke,' 'CVA,' '중풍 [jungpung],' and '뇌졸증[noejoljung]' were used to find stroke-related websites on Google and Yahoo. A total of 156 websites appeared on the 1 st and 2 nd pages. After eliminating duplicates and irrelevant websites (n=116), a total of 42 websites (15 in English and 27 in Korean) were evaluated using the National Library of Medicine's health websites evaluation tool for trustworthiness; SMOG for readability; and Suitability Assessment of Materials (SAM) for suitability. All three instruments used the 3-point Likert scale: superior (=2), adequate (=1), or not suitable (=0). Results: Overall, 26 (61.9%) websites received a rating of "adequate" or above for trustworthiness; however, in currency/timeline, the information on 47.6% hasn't been updated more than a year. In terms of authority, 33% failed to provide the publisher and contact information. Regarding accuracy, 50% of the websites didn't cite sources of health information. The overall readability was not suitable; only two (4.8%) websites were rated 5 th grade or lower reading level. In the suitability evaluation, only one website was rated as "superior," 25 (59.5%) websites were "adequate," and 16 (38.1%) websites were "not suitable." Among the suitability subcategory criteria, many websites were limited in graphical directions, interactive motivations for desired healthy behaviors, and multiplelanguage translations. Conclusion: The existing stroke-related websites in either English or Korean are trustworthy and suitable, yet precise citation of evidence-based information will improve trustworthiness. The high reading level of the information may set a barrier to utilization of web-based health information to KAs with a lower level of education. With the consideration of culturally relevant information in multiple languages, graphical examples, multimedia, and interaction features are the areas for improvement in suitability. The improved features can reduce the reading burden of stroke patients/caregivers and build more confidence or self-efficacy when applying the information for condition management and rehabilitation in daily living. These strategies are especially crucial to KAs, who inevitably seek web-based information to fill the gap between their demand and access to he...

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“…Trust in the information source, including online sources, has been associated with higher likelihood to make health changes (Bleich et al 2007; Huh et al 2005; Huston et al 2009) and increased self-efficacy to make changes (Hillen et al 2011; Ye 2010). Although patient trust in web-based health information has been reported to be comparable to that received from a health professional (Hesse et al 2005; Vega et al 2011; Zulman et al 2011), it is unclear how consumers regard DTC genomic testing, a process that occurs online entirely. Given the varying quality of health information online (Bernhardt et al 2002; Eysenbach and Kohler 2002), motivating information-seekers to “comparison shop” for health information, the perceived credibility of the information source (“source credibility”) may impact trust (Freeman and Spyridakis 2004; Wagner et al 2012).…”

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confidence: 99%

Public Trust in Genomic Risk Assessment for Type 2 Diabetes Mellitus

Mills

Barry

Haga

2013

Journal of Genetic Counseling

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Patient trust in personal medical information is critical to increasing adherence to physician recommendations and medications. One of the anticipated benefits of learning of one’s genomic risk for common diseases is the increased adoption of screening, preventive care and lifestyle changes. However, the equivocal results thus far reported of the positive impact of knowledge of genomic risk on behavior change may be due to lack of patients’ trust in the results. As part of a clinical study to compare two methods of communication of genomic risk results for Type 2 diabetes mellitus (T2DM), we assessed patients’ trust and preferred methods of delivery of genomic risk information. A total of 300 participants recruited from the general public in Durham, NC were randomized to receive their genomic risk for T2DM in-person from a genetic counselor or online through the testing company’s web-site. Participants completed a baseline survey and three follow-up surveys after receiving results. Overall, participants reported high levels of trust in the test results. Participants who received their results in-person from the genetic counselor were significantly more likely to trust their results than those who reviewed their results on-line (p=0.005). There was not a statistically significant difference in levels of trust among participants with increased genetic risk, as compared to other those with decreased or same as population risk (p = 0.1154). In the event they undergo genomic risk testing again, 55% of participants overall indicated they would prefer to receive their results online compared to 28% that would prefer to receive future results in-person. Of those participants preferring to receive results online, 77% indicated they would prefer to have the option to speak to someone if they had questions with the online results (compared to accessing results online without the option of professional consultation). This is the first study to assess satisfaction with genomic risk testing by the method of delivery of the test result. The higher rate of trust in results delivered in-person suggests that online access reports may not result in serious consideration of results and lack of adoption of recommended preventive recommendations.

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Trust between patients and health websites: a review of the literature and derived outcomes from empirical studies

Cited by 33 publications

References 63 publications

Retrieval of trustworthy health videos from YouTube

Retrieval of trustworthy health videos from YouTube

Trustworthiness, Readability, and Suitability of Web-Based Information for Stroke Prevention and Self-Management for Korean Americans: Critical Evaluation (Preprint)

Public Trust in Genomic Risk Assessment for Type 2 Diabetes Mellitus

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