Trust and temporality in participatory research

Armstrong, Andrea; Flynn, Emma; Salt, Karen; Briggs, Jo; Clarke, Rachel; Vines, John; MacDonald, Alistair

doi:10.1177/14687941211065163

Cited by 16 publications

(29 citation statements)

References 49 publications

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“…6 It is crucial to understand the temporality and dynamics of trust which means that trust needs to be continuously worked on through a collaborative approach. 30 Groups ensure transparency and consistency around how decisions are made, to maintain a sense of trust. 9…”

Section: Development Of the Co-production Groupmentioning

confidence: 99%

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Trauma‐informed co‐production: Collaborating and combining expertise to improve access to primary care with women with complex needs

McGeown

Potter

Stone

et al. 2023

Health Expectations

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IntroductionHealth, social care, charitable and justice sectors are increasingly recognising the need for trauma‐informed services that seek to recognise signs of trauma, provide appropriate paths to recovery and ensure that services enable people rather than retraumatise. Foundational to the development of trauma‐informed services is collaboration with people with lived experience of trauma. Co‐production principles may provide a useful framework for this collaboration, due to their emphasis on lived experience, and intent to address power imbalances and promote equity. This article aims to examine trauma‐informed and co‐production principles to consider the extent to which they overlap and explore how to tailor co‐production approaches to support people who have experienced trauma.MethodsBridging Gaps is a collaboration between women who have experienced complex trauma, a charity that supports them, primary care clinicians and health researchers to improve access to trauma‐informed primary care. Using co‐production principles, we aimed to ensure that women who have experienced trauma were key decision‐makers throughout the project. Through reflective notes (n = 19), observations of meetings (n = 3), interviews with people involved in the project (n = 9) and reflective group discussions on our experiences, we share learning, successes and failures. Data analysis followed a framework approach, using trauma‐informed principles.ResultsCo‐production processes can require adaptation when working with people who have experienced trauma. We emphasise the need for close partnership working, flexibility and transparency around power dynamics, paying particular attention to aspects of power that are less readily visible. Sharing experiences can retrigger trauma. People conducting co‐production work need to understand trauma and how this may impact upon an individual's sense of psychological safety. Long‐term funding is vital to enable projects to have enough time for the establishment of trust and delivery of tangible results.ConclusionsCo‐production principles are highly suitable when developing trauma‐informed services. Greater consideration needs to be given as to whether and how people share lived experiences, the need for safe spaces, honesty and humility, difficult dynamics between empowerment and safety and whether and when blurring boundaries may be helpful. Our findings have applicability to policy‐making, funding and service provision to enable co‐production processes to become more trauma‐informed.Public ContributionBridging Gaps was started by a group of women who have experienced complex trauma, including addiction, homelessness, mental health problems, sexual exploitation, domestic and sexual violence and poverty, with a general practitioner (GP) who provides healthcare to this population, alongside a support worker from the charity One25, a charity that supports some of the most marginalised women in Bristol to heal and thrive. More GPs and healthcare researchers joined the group and they have been meeting fortnightly for a period of 4 years with the aim of improving access to trauma‐informed primary care. The group uses co‐production principles to work together, and we aim to ensure that women who have experienced trauma are key decision‐makers throughout our work together. This article is a summary of our learning, informed by discussion, observations and interviews with members of the group.

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Section: Development Of the Co-production Groupmentioning

confidence: 99%

“…Building relationships is essential to co‐production 6 . It is crucial to understand the temporality and dynamics of trust which means that trust needs to be continuously worked on through a collaborative approach 30 …”

Section: Introductionmentioning

confidence: 99%

Trauma‐informed co‐production: Collaborating and combining expertise to improve access to primary care with women with complex needs

McGeown

Potter

Stone

et al. 2023

Health Expectations

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“…While the initial decision to maintain anonymity was motivated by the desire to foster psychological safety, recent research suggests that anonymity impedes active contribution and shared ownership in participatory research (Godfrey-Faussett, 2022). In addition, psychological safety can be achieved by creating a cohesive bond based on strong interpersonal relationships and can help maintain trust and collective action (Armstrong et al, 2022;Christens & Speer, 2015). The mismatch between the research team's intention and the perception of the Community Advisory Board members highlights the importance of collecting feedback on the participatory research process itself, which is an important tool to foster reflexivity and encourage a constant reevaluation of known and unknown assumptions (Olmos-Vega et al, 2022).…”

Section: Provide Pronouns To Provide Pronouns To Address Members Of T...mentioning

confidence: 99%

Co-Design for Participatory Neurodiversity Research: Collaborating With a Community Advisory Board to Design a Research Study

Cunff

Logan

Ford

et al. 2023

Journal of Participatory Research Methods

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Inclusive research practice characterized by the involvement of neurodivergent people in meaningful roles has been described as a “requirement of excellence” in neurodiversity research. This report describes a co-design process in partnership with a Community Advisory Board undertaken to develop a research study involving neurotypical and neurodivergent students as participants. From the formation of the partnership with seven Community Advisory Board members to the outcomes of the co-design process, this report details the methods associated with each step, as well as the benefits and challenges collated in collaboration with members of the Community Advisory Board. Opportunities for improvement in co-design for participatory neurodiversity research are suggested.

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“…Stemming in part from structural inequities in grantmaking, of particular relevance to this article are the limited time and resources available for academic and community entities to engage in the critical stage of equitable partnership development, and lack of knowledge and skills in how to effectively conduct research in diverse partnerships [13][14][15][16] . There are few co-learning opportunities to establish partnerships prior to applying for a research grant, and most calls for proposals have a short turn-around, hindering partnership development.…”

Section: Introductionmentioning

confidence: 99%

“…It takes time and co-learning to develop trusting and inclusive CBPR partnerships, particularly among those who have not previously worked together across race/ethnicity and other social positions, as in many predominantly White research/academic institutions working with community partners and communities of color [12,13,16]. Securing research funding for new CBPR partnerships is challenging as there is rarely compensation for the time and energy needed to establish relationships, particularly for junior faculty and community partners.…”

Section: Introductionmentioning

confidence: 99%

Building the foundation for equitable and inclusive research: Seed grant programs to facilitate development of diverse CBPR community–academic research partnerships

Coombe¹,

Simbeni²,

Neal³

et al. 2022

J. Clin. Trans. Sci.

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Trust and temporality in participatory research

Cited by 16 publications

References 49 publications

Trauma‐informed co‐production: Collaborating and combining expertise to improve access to primary care with women with complex needs

Trauma‐informed co‐production: Collaborating and combining expertise to improve access to primary care with women with complex needs

Co-Design for Participatory Neurodiversity Research: Collaborating With a Community Advisory Board to Design a Research Study

Building the foundation for equitable and inclusive research: Seed grant programs to facilitate development of diverse CBPR community–academic research partnerships

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