Troubling the IRB: Institutional Review Boards’ Impact on Art Educators Conducting Social Science Research Involving Human Subjects

Sanders, James E.; Ballengee-Morris, Christine

doi:10.1080/00393541.2008.11518744

Cited by 14 publications

(15 citation statements)

References 20 publications

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“…In addition to issues related to consent and ethics among BDSM community members, ethical issues also arise in the study of BDSM by academic researchers. Institutional Review Boards (IRBs) were first established in 1974, specifically for federally funded biomedical research, in response to a series of egregious research practices that did harm to participants, who were often deceived as to the true objective of the study (Sanders and Ballengee-Morris, 2008). By 1981, much research using human subjects was subject to IRB review (Sanders and Ballengee-Morris, 2008).…”

Section: Institutional Review Boards and Research Ethicsmentioning

confidence: 99%

Consent and ethics within sex work and research: An academic and practitioner perspective

Thompson

Couple

2020

Sexualities

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In this short piece, we explore some areas of consent within BDSM in relation to our roles as a practitioner and as an academic researcher. Beverly Yuen Thompson is a sociology professor who specializes in ethnographies of deviant subcultures with an emphasis on an intersectional approach. In this short piece, she uses her experience of conducting a long-term ethnography in a BDSM community. Miss Couple (2018) is the author of The Ultimate Guide to Bondage: Creating Intimacy through the Art of Restraint and a relationship and intimacy coach. Miss Couple was previously a manager of a BDSM establishment, from which she draws on her experience for this piece.

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Section: Institutional Review Boards and Research Ethicsmentioning

confidence: 99%

Consent and ethics within sex work and research: An academic and practitioner perspective

Thompson

Couple

2020

Sexualities

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“…8 , 86–88 IRBs should judge these approaches on their merits and within the context of the particular scenario. For instance, IRBs may see proposals that invoke mature minor research clauses, 4 , 85 , 88 which have been employed in both TGGD youth research and to aid in building trust with youth frustrated with being infantilized. 85 , 88 , 89 Implementing these clauses may require a number of unique safeguards, such as the use of independent advocates to assure participants' rights.…”

Section: Criteriamentioning

confidence: 99%

“…For instance, IRBs may see proposals that invoke mature minor research clauses, 4 , 85 , 88 which have been employed in both TGGD youth research and to aid in building trust with youth frustrated with being infantilized. 85 , 88 , 89 Implementing these clauses may require a number of unique safeguards, such as the use of independent advocates to assure participants' rights. Other researchers have used innovative approaches to ensuring capacity to consent, as in Kuper's 90 use of a four-item true–false questionnaire that tested comprehension of the informed consent document and blocked survey participation until it was correctly completed.…”

Section: Criteriamentioning

confidence: 99%

“…IRBs may attempt to defensively avoid institutional investigations or external lawsuits by discouraging and/or placing unnecessary restrictions on research investigating controversial topics. 88 This may be a particular challenge in the case of research on TGGD individuals, as this population is both extremely vulnerable to social stigma and currently the subject of intense political and social debate. However, to ignore this topic is to do a serious disservice to the individuals affected by it and deny them research needed to improve their lives.…”

Section: Criteriamentioning

confidence: 99%

“…Although some caution is justified, too much may result in obstructive processes, lengthen the time taken to approve IRB applications, discourage research into complex topics, and cause researchers to avoid controversial issues and innovative research. 6 , 88 IRBs should, therefore, consider the risks associated with not undertaking transgender health research alongside those involved in undertaking any given project.…”

Section: Criteriamentioning

confidence: 99%

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Guidance and Ethical Considerations for Undertaking Transgender Health Research and Institutional Review Boards Adjudicating this Research

et al. 2017

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The purpose of this review is to create a set of provisional criteria for Institutional Review Boards (IRBs) to refer to when assessing the ethical orientation of transgender health research proposals. We began by searching for literature on this topic using databases and the reference lists of key articles, resulting in a preliminary set of criteria. We then collaborated to develop the following nine guidelines: (1) Whenever possible, research should be grounded, from inception to dissemination, in a meaningful collaboration with community stakeholders; (2) language and framing of transgender health research should be non-stigmatizing; (3) research should be disseminated back to the community; (4) the diversity of the transgender and gender diverse (TGGD) community should be accurately reflected and sensitively reflected; (5) informed consent must be meaningful, without coercion or undue influence; (6) the protection of participant confidentiality should be paramount; (7) alternative consent procedures should be considered for TGGD minors; (8) research should align with current professional standards that refute conversion, reorientation, or reparative therapy; and (9) IRBs should guard against the temptation to avoid, limit, or delay research on this subject.

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Examining Chinese social sciences graduate students’ understanding of research ethics: implications for their research ethics education

Huang

Wang

2023

Humanit Soc Sci Commun

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Using the research ethics scale (Huang et al., 2021) and follow-up interviews, this study examined Chinese social sciences graduate students’ understanding of research ethics of empirical studies involving human subjects. The participants included 463 Chinese graduate students majoring in teacher education, English education, management, and economics. The quantitative findings suggested that these graduate students had a fairly good understanding of researchers’ ethical responsibilities and developed general human subjects’ ethical awareness; furthermore, there existed significant research experience and gender-by-research experience interaction effects on their understanding of researchers’ ethical responsibilities and human subjects’ ethical awareness, respectively. The qualitative results indicated that the participants had realized the importance of ethics reviews for social sciences research including human subjects; and they identified best ways to promote research ethics education for social sciences graduate students in Chinese higher education. Implications for Chinese university leaders, program developers, and research methods professors are discussed.

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Troubling the IRB: Institutional Review Boards’ Impact on Art Educators Conducting Social Science Research Involving Human Subjects

Cited by 14 publications

References 20 publications

Consent and ethics within sex work and research: An academic and practitioner perspective

Consent and ethics within sex work and research: An academic and practitioner perspective

Guidance and Ethical Considerations for Undertaking Transgender Health Research and Institutional Review Boards Adjudicating this Research

Examining Chinese social sciences graduate students’ understanding of research ethics: implications for their research ethics education

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