Trialling a patient-led cancer care website in an acute cancer care setting

Milne, Donna; Sheeran, Lisa; Holmes, Matthew; Tidhar, Gil; Aranda, Sanchia

doi:10.1177/1744987112458668

Cited by 9 publications

(11 citation statements)

References 23 publications

(18 reference statements)

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“…Only one study focused exclusively on patients with advanced disease (Gustafson et al, 2013). Type of study varied widely from randomized controlled trials (Carmack et al, 2013; Gustafson et al, 2013; Schover et al, 2012), to feasibility and acceptability studies (e.g., focus group evaluations, usability testing) (Diefenbach & Butz, 2004; Milne et al, 2012; Zulman et al, 2012), to trial or intervention descriptions (Reis, McGinty, & Jones, 2003; Silveira et al, 2011). …”

Section: Resultsmentioning

confidence: 99%

“…Individual stress and coping models, which grounded one study (Silveira et al, 2011), view social support as a form of coping assistance and posit that person-, social-, and illness-related factors influence how people appraise and cope with an illness (Thoits, 1986). Self-regulation theory (Baumeister, Heatherton, & Tice, 1994; Cameron & Leventhal, 2012) grounded two studies (Diefenbach & Butz, 2004; Milne et al, 2012). Resource theories (e.g., social cognitive theory (Lepore & Revenson, 2007), which grounded or had elements in two studies (Carmack et al, 2013; Reis, McGinty, & Jones, 2003), view the partner and relationship as resources patients can draw upon for assistance during difficult life events.…”

Section: Resultsmentioning

confidence: 99%

“…One study had a primary focus on enhancing decision-making (Diefenbach & Butz, 2004). In five studies, the goal was to use IHCTs to improve patient-caregiver communication (Milne et al, 2012; Reis, McGinty, & Jones, 2003; Schover et al, 2012; Silveira et al, 2011; Zulman et al, 2012). Finally, one study used IHCTs to help promote healthy lifestyle behaviors in couples (Carmack et al, 2013).…”

Section: Resultsmentioning

confidence: 99%

“…However, human computer interaction and social computing researchers have been working to understand how best to use IHCTs to support the information and emotional needs of patients and caregivers (Newman et al, 2011; Tixier & Lewkowicz, 2011; Weiss & Lorenzi, 2005; 2006) and several studies involving the use of IHCTs in the delivery of dyadic interventions have recently been published (DuBenske et al, in press; Milne et al, 2012; Silveira et al, 2011; Zulman et al, 2012). In this article, we seek to advance our understanding of the role IHCTs can play in psychosocial interventions for cancer patients and their caregivers.…”

mentioning

confidence: 99%

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Psychosocial Interventions for Patients and Caregivers in the Age of New Communication Technologies: Opportunities and Challenges in Cancer Care

Badr

Carmack

Diefenbach

2015

Journal of Health Communication

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Interactive health communication technologies (IHCTs) present a new opportunity and challenge for cancer control researchers who focus on couple and family-based psychosocial interventions. In this article we first present findings from a systematic review of eight studies that utilized IHCTs in psychosocial interventions with cancer patients and their caregivers. Although this research area is still in its infancy, studies suggest that it is feasible to incorporate IHCTs in such interventions, that IHCTs are generally well-accepted by patients and caregivers, and that the choice of technology is largely dependent on intervention target (i.e., patient, caregiver, or both) and outcomes (e.g., decision-making, symptom management, lifestyle behaviors). A major research gap has been the lack of integration of Web 2.0 technologies (e.g., social media), despite the fact that social support and communication are frequently targeted components of interventions that involve cancer patients and their caregivers. Given this, we next present findings from a qualitative study that we conducted to describe the different needs and preferences of 13 cancer survivors and 12 caregivers with regard to social media use. Finally, we discuss some of the opportunities and challenges of using IHCTs in psychosocial interventions for cancer patients and their caregivers and propose directions for future research.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

mentioning

confidence: 99%

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Psychosocial Interventions for Patients and Caregivers in the Age of New Communication Technologies: Opportunities and Challenges in Cancer Care

Badr

Carmack

Diefenbach

2015

Journal of Health Communication

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“…26 Another study assessing the feasibility, functionality, and usability of a patient-led cancer care web platform found that patients perceived the website as useful, but many found it too complex to use. 27 Issues regarding difficulty of use, low self-efficacy, and anxiety related to the use of a home telecare management system have been reported in patients with congestive heart failure and chronic obstructive pulmonary disease. 28 The patients' perceptions of the usefulness of electronic medical records have also been evaluated in patients with chronic inflammatory bowel disease and the results indicated that providing access to Internet-based electronic medical records had little usefulness to patients on its own, without being actively made useful in conjunction with health care professionals.…”

Section: Patient Perceptions Of Acceptability Satisfaction Quality mentioning

confidence: 99%

Computer-based interactive health communications for people with chronic disease

Casey¹,

Clough²,

Mihuta³

et al. 2014

SHTT

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Chronic diseases (CD) -such as cardiovascular, diabetes, cancer, and chronic respiratory diseases -are projected to be the most common causes of mortality and morbidity by 2030. Use of a participatory decision-making model that emphasizes a partnership among practitioners, patients, and their families to achieve desired goals is a key strategy in achieving optimal outcomes. The Interactive Health Communication Applications (IHCAs) can support participatory decision making by providing the unique infrastructure needed to deliver support for the multiple requirements of patients with CD. The aim of this paper is to provide a descriptive review of the use of IHCAs in the treatment of chronic disease. Patient acceptability and satisfaction were identified as key issues that can be enhanced by ensuring that IHCAs provide: 1) emotional support and empowerment; 2) education and information from health professionals; and 3) telecommunication instead of onsite visiting. An important benefit of IHCAs can be an improved quality of communication between the patients and the health care professionals, which is a critical and predictive factor of treatment outcomes for many patients with CD. Similarly, there is good evidence to suggest that IHCAs can improve the patients' adherence to both medication and behavioral regimens designed to both treat and manage CDs. However, it is important to recognize that the technological development and effective implementation of an ICHA is a complex multidisciplinary operation that needs to take into account the needs of the various stakeholders as well as making use of the most suitable technology.

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A systematic review of mixed methods research on human factors and ergonomics in health care

Carayon

Kianfar

et al. 2015

Applied Ergonomics

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This systematic literature review provides information on the use of mixed methods research in human factors and ergonomics (HFE) research in health care. Using the PRISMA methodology, we searched four databases (PubMed, PsycInfo, Web of Science, and Engineering Village) for studies that met the following inclusion criteria: (1) field study in health care, (2) mixing of qualitative and quantitative data, (3) HFE issues, and (4) empirical evidence. Using an iterative and collaborative process supported by a structured data collection form, the six authors identified a total of 58 studies that primarily address HFE issues in health information technology (e.g., usability) and in the work of healthcare workers. About two-thirds of the mixed methods studies used the convergent parallel study design where quantitative and qualitative data were collected simultaneously. A variety of methods were used for collecting data, including interview, survey and observation. The most frequent combination involved interview for qualitative data and survey for quantitative data. The use of mixed methods in healthcare HFE research has increased over time. However, increasing attention should be paid to the formal literature on mixed methods research to enhance the depth and breadth of this research.

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Trialling a patient-led cancer care website in an acute cancer care setting

Cited by 9 publications

References 23 publications

Psychosocial Interventions for Patients and Caregivers in the Age of New Communication Technologies: Opportunities and Challenges in Cancer Care

Psychosocial Interventions for Patients and Caregivers in the Age of New Communication Technologies: Opportunities and Challenges in Cancer Care

Computer-based interactive health communications for people with chronic disease

A systematic review of mixed methods research on human factors and ergonomics in health care

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