Trends in diagnosis and management of idiopathic pulmonary fibrosis in Canada

Weatherald, Jason; McFadden, Robin G.; Fell, Charlene D.

doi:10.1080/24745332.2017.1314778

Cited by 8 publications

(6 citation statements)

References 28 publications

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“…A similar finding is shown in a survey of Canadian academic and community chest physicians or trainees, where only 34% of the responders used the antifibrotic pirfenidone in patients with IPF. (32) The majority of changes in diagnosis occurred in referrals from respiratory medicine and other disciplines. While it is not surprising to see a high frequency of diagnosis changes among patients referred from other non-respiratory disciplines, it is surprising that almost three-quarters of the referrals from respiratory medicine had a change in diagnosis following evaluation by the ILD service.…”

Section: Change In Managementmentioning

confidence: 99%

Impact of an interstitial lung disease service in the diagnosis and management of interstitial lung disease in Singapore

Chai¹,

Tan²,

Lee³

et al. 2020

smedj

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We are a university-affiliated tertiary hospital in Singapore with an ILD multidisciplinary team that comprises a chest physician, two thoracic radiologists, a rheumatologist and a pathologist, all of whom have received prior training from overseas expert ILD centres. In addition, we have a clinical pharmacist who provides disease and medication counselling. We performed a single-centre retrospective review of consecutive patients referred to the ILD clinic with subsequent discussions in ILD MDMs

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Section: Change In Managementmentioning

confidence: 99%

Impact of an interstitial lung disease service in the diagnosis and management of interstitial lung disease in Singapore

Chai¹,

Tan²,

Lee³

et al. 2020

smedj

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“…The most common type of PF is idiopathic pulmonary fibrosis (IPF), accounting for around 17%–37% of all ILDs 5. IPF is a chronic progressive disease, carrying with it potentially significant impacts on both physical and emotional well-being 6–8…”

Section: Introductionmentioning

confidence: 99%

Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol

et al. 2023

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IntroductionInterstitial lung diseases consist of a range of lung disorders, the most prevalent being idiopathic pulmonary fibrosis (IPF). IPF is a chronic, progressive disease, resulting in loss of lung function and potentially significant impacts on quality of life. There is an increasing need to address unmet needs in this population as there is evidence that unmet needs may impact quality of life and health outcomes. The key objective of this scoping review is to define the unmet needs of patients living with a diagnosis of IPF and to identify gaps in the literature relating to unmet needs. Findings will inform the development of services and the introduction of patient-centred clinical care guidelines for IPF.Methods and analysisThis scoping review is guided by the methodological framework for conducting scoping reviews developed by the Joanna Briggs Institute. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews checklist is used for guidance. The following databases will be searched: CINAHL, MEDLINE, PsycINFO, Web of Science, Embase and ASSIA and include a comprehensive grey literature search. The review will report on adult patients >18 with a diagnosis of IPF or pulmonary fibrosis and be limited to publications from 2011 onwards, with no language restrictions applied. Two independent reviewers will screen articles in consecutive stages for relevance against the inclusion and exclusion criteria. Data will be extracted using a predefined data extraction form and analysed using descriptive and thematic analysis. Findings will be presented in tabular form, coupled with a narrative summary of the evidence.Ethics and disseminationEthics approval is not required for this scoping review protocol. We will disseminate our findings using traditional approaches that include open access peer-reviewed publications and scientific presentations.

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“…(3) IPF is a chronic progressive and irreversible disease which can profoundly and devastatingly impact the physical and psychological well-being of individuals. (4, 5)…”

Section: Introductionmentioning

confidence: 99%

A scoping review of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis (IPF)

Bramhill,

Langan,

Mulryan

et al. 2023

Preprint

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TitleA scoping review of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis (IPF).AimsPatients diagnosed with IPF have a high symptom burden and numerous needs that remain largely unaddressed despite advances in available treatment options. There is a need to comprehensively identify patients’ needs and create opportunities to address them. This scoping review aimed to synthesise the available evidence and identify gaps in the literature regarding the unmet needs of patients diagnosed with IPF.MethodsThe protocol for the review was registered with Open Science Framework (DOI 10.17605/OSF.IO/SY4KM). A systematic search was performed in March 2022, in CINAHL, MEDLINE, Embase, PsyhcoInfo, Web of Science Core Collection and ASSIA Applied Social Science Index. A comprehensive review of grey literature was also completed. Inclusion criteria included patients diagnosed with IPF or PF; English language only and date range 2011-2022. A range of review types were included. Data was extracted using a data extraction form. Data was analysed using descriptive and thematic analysis. A total of 884 citations were reviewed. Ethical approval was not required.Results52 citations were selected for final inclusion. Five themes were identified: psychological impact of an IPF diagnosis; adequate information and education: at the right time and in the right way; high symptom burden support needs; referral to palliative care and advanced care planning (ACP) and health service provision-a systems approach.ConclusionThis review highlights the myriad of needs patients with IPF have and highlights the urgent need for a systems approach to care, underpinned by an appropriately resourced multi-disciplinary team. The range of needs experienced by patients with IPF are broad and varied and require a holistic approach to care including targeted research, coupled with the continuing development of patient-focused services and development of a clinical care programme.

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Trends in diagnosis and management of idiopathic pulmonary fibrosis in Canada

Cited by 8 publications

References 28 publications

Impact of an interstitial lung disease service in the diagnosis and management of interstitial lung disease in Singapore

Impact of an interstitial lung disease service in the diagnosis and management of interstitial lung disease in Singapore

Exploration of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis: a scoping review protocol

A scoping review of the unmet needs of patients diagnosed with idiopathic pulmonary fibrosis (IPF)

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