Trends in African Americans’ Attitudes and Behaviors About Living Donor Kidney Transplantation

Abstract

Interest and pursuit of living donation were greater among study participants with greater exposure to dialysis or transplant settings. Efforts to promote patients' early interest and pursuit of living donor transplants may consider novel strategies to educate patients with less experience about the benefits of living donor kidney transplantation.

How to tackle health literacy problems in chronic kidney disease patients? A systematic review to identify promising intervention targets and strategies

“…Connected to this, we found weak evidence that LHL is more prevalent in non-waitlisted and deceased donor patients compared with waitlisted and living donor patients [ 34 , 61 ]. For other transplant factors, such as treatment preference [ 63 , 67 ] or attending evaluations [ 49 ], no HL associations were found. Furthermore, we found weak evidence that LHL was associated with visiting the nephrologist more often [ 8 ], problems using digital health information [ 64 ] and missing dialysis [ 60 , 66 ].…”

Your Path to Transplant: A randomized controlled trial of a tailored expert system intervention to increase knowledge, attitudes, and pursuit of kidney transplant

“…Targeted education for patients of racial and ethnic minorities and low socioeconomic status (SES) has also been shown to be beneficial, particularly when the education is culturally sensitive, in their own language, subsidizes transplant costs, and addresses barriers more common to these communities including low health literacy, transportation challenges, and cultural norms 17‐20 . However, the impact of educational interventions varies, with some failing to show improvements in knowledge or pursuit of transplant 21,22 …”

“…low health literacy, transportation challenges, and cultural norms (17)(18)(19)(20). However, the impact of educational interventions varies, with some failing to show improvements in knowledge or pursuit of transplant (21,22).…”

“…Targeted education for patients of racial and ethnic minorities and low socioeconomic status (SES) has also been shown to be beneficial, particularly when the education is culturally sensitive, in their own language, subsidizes transplant costs, and addresses barriers more common to these communities including , transportation challenges, and cultural norms(17)(18)(19)(20). However, the impact of educational interventions varies, with some failing to show improvements in knowledge or pursuit of transplant(21,22).Best practices for the design of transplant education recommend honoring the patient's stage of readiness for transplant and delivering modular, culturally sensitive, health literate education over longer time periods (10). Computer-tailored interventions (CTIs) have the ability to create tailored feedback based on an individual patient's specific level of readiness, knowledge gaps, self-efficacy challenges, and socioeconomic derailers and detect changes over time (23).…”

Impact of technology‐based interventions on linking potential kidney donors and transplant candidates: a scoping review

“…There has been a decline in the number of LDKTs in African American and Hispanic individuals since 2004, despite the efforts made in 2014 by the United Network for Organ Sharing (UNOS) to improve access [6,7]. Reasons for these disparities include delays in nephrology care experienced by African American and Hispanic patients with chronic kidney disease (CKD), lack of knowledge about how to solicit a suitable kidney donor, and difficulty finding potential donors in social networks (because of a high burden of hypertension, diabetes, and familial clustering of kidney diseases) [8,9]. Additional personal challenges experienced by patients with ESKD include feeling overwhelmed by illness, guilt about the burden imposed on caregivers, competing psycho‐social needs, and uncertainty about the future health of potential donors [10,11].…”