Treatments for Psychological Problems and Syndromes

Borg, Charmaine; Jong, Peter J. de

doi:10.1002/9781118877142

Cited by 6 publications

(1 citation statement)

References 59 publications

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“…Acceptance and Commitment Therapy (ACT) is a form of psychotherapy that promotes psychological exibility, which involves being open, aware and in contact with the present moment, and engaging in activities consistent with one's goals and values [5][6][7]. A review of meta-analyses including 133 randomized-controlled trials concluded that ACT is e cacious for all conditions examined [8] and ACT interventions have improved self-management, treatment adherence and adjustment among people with chronic physical conditions including cancer, cardiac disease, type 2 diabetes, epilepsy, multiple sclerosis, cerebral palsy, and paediatric brain injury [9].…”

Section: Introductionmentioning

confidence: 99%

Using Patient Feedback to Adapt Intervention Materials Based on Acceptance and Commitment Therapy for People Receiving Renal Dialysis

Elander

Kapadi

Coyne

et al. 2021

Preprint

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Background: Theory-based intervention materials must be carefully adapted to meet the needs of users with specific physical conditions. Acceptance and Commitment Therapy (ACT) has been adapted successfully for cancer, chronic pain, diabetes, irritable bowel syndrome, multiple sclerosis, and a range of other conditions, but not so far for people receiving renal haemodialysis. This paper presents findings from a study to adapt ACT-based intervention materials specifically for renal dialysis. Methods: Draft written materials consisting of four stories depicting fictitious individuals who used ACT-related techniques to help overcome different challenges and difficulties related to dialysis were adapted using a systematic patient consultation process. The participants were 18 people aged 19 to 80 years, with chronic kidney disease and receiving renal dialysis. Individual, semi-structured interviews were conducted to elicit participants’ views about how the content of the draft materials should be adapted to make them more realistic and relevant for people receiving renal dialysis and how the materials should be presented and delivered to people receiving renal dialysis. The interview transcripts were analysed using a qualitative adaptation of the Delphi method in which themes are used as a framework for translating feedback into proposals for modifications.Results: The analysis of patient feedback supported the use of patient stories but suggested they should be presented by video and narrated by real dialysis patients. They also indicated specific adaptations to make the stories more credible and realistic. Participant feedback was translated into proposals for change that were considered along with clinical, ethical and theoretical factors. The outcome was a design for a video-based intervention that separated the stories about individuals from the explanations of the specific ACT techniques and provided greater structure, with material organised into smaller chunks. This intervention is adapted specifically for people receiving renal dialysis while retaining the distinctive theoretical principles of ACT.Conclusions: The study shows the value of consulting patients in the development of intervention materials and illustrates a process for integrating patient feedback with theoretical, clinical and practical considerations in intervention design.

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Section: Introductionmentioning

confidence: 99%

Using Patient Feedback to Adapt Intervention Materials Based on Acceptance and Commitment Therapy for People Receiving Renal Dialysis

Elander

Kapadi

Coyne

et al. 2021

Preprint

View full text Add to dashboard Cite

show abstract

Child Risk Factors: Impact on Early Childhood Mental Health

Gouze,

Hopkins,

Lavigne

2024

Early Childhood Psychopathology

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Using patient feedback to adapt intervention materials based on acceptance and commitment therapy for people receiving renal dialysis

et al. 2021

View full text Add to dashboard Cite

Background Theory-based intervention materials must be carefully adapted to meet the needs of users with specific physical conditions. Acceptance and Commitment Therapy (ACT) has been adapted successfully for cancer, chronic pain, diabetes, irritable bowel syndrome, multiple sclerosis, and a range of other conditions, but not so far for people receiving renal haemodialysis. This paper presents findings from a study to adapt ACT-based intervention materials specifically for renal dialysis. Methods Draft written materials consisting of four stories depicting fictitious individuals who used ACT-related techniques to help overcome different challenges and difficulties related to dialysis were adapted using a systematic patient consultation process. The participants were 18 people aged 19–80 years, with chronic kidney disease and receiving renal dialysis. Individual, semi-structured interviews were conducted to elicit participants’ views about how the content of the draft materials should be adapted to make them more realistic and relevant for people receiving renal dialysis and about how the materials should be presented and delivered to people receiving renal dialysis. The interview transcripts were analysed using a qualitative adaptation of the Delphi method in which themes are used as a framework for translating feedback into proposals for modifications. Results The analysis of patient feedback supported the use of patient stories but suggested they should be presented by video and narrated by real dialysis patients. They also indicated specific adaptations to make the stories more credible and realistic. Participant feedback was translated into proposals for change that were considered along with clinical, ethical and theoretical factors. The outcome was a design for a video-based intervention that separated the stories about individuals from the explanations of the specific ACT techniques and provided greater structure, with material organised into smaller chunks. This intervention is adapted specifically for people receiving renal dialysis while retaining the distinctive theoretical principles of ACT. Conclusions The study shows the value of consulting patients in the development of intervention materials and illustrates a process for integrating patient feedback with theoretical, clinical and practical considerations in intervention design.

show abstract

Treatments for Psychological Problems and Syndromes

Cited by 6 publications

References 59 publications

Using Patient Feedback to Adapt Intervention Materials Based on Acceptance and Commitment Therapy for People Receiving Renal Dialysis

Using Patient Feedback to Adapt Intervention Materials Based on Acceptance and Commitment Therapy for People Receiving Renal Dialysis

Child Risk Factors: Impact on Early Childhood Mental Health

Using patient feedback to adapt intervention materials based on acceptance and commitment therapy for people receiving renal dialysis

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