Treatment-Seeking Behaviors of Persons With Rheumatoid Arthritis

Schlaeger, Judith M.; Powell-Roach, Keesha; Golas, Mary; Takayama, Miho; Wilkie, Diana J.

doi:10.1177/0898010117693539

Cited by 8 publications

(6 citation statements)

References 45 publications

(64 reference statements)

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“…of MOOC learners sort guidance on nutrition and inflammation to help manage poorly understood inflammatory conditions, specifically fibromyalgia, chronic fatigue syndrome and rheumatoid arthritis. These conditions lack clear guidelines for symptom management [39,40], and sufferers are more likely to seek health information from social networking sites [41], and report high rates of alternative therapy use [42]. To quell the publics' engagement with unregulated sources of nutrition misinformation, health professionals must learn how to responsibly communicate dietary guidance in the area of inflammation, especially in high-risk patients with complex inflammatory conditions.…”

Section: Discussionmentioning

confidence: 99%

Inflaming Public Interest: A Qualitative Study of Adult Learners’ Perceptions on Nutrition and Inflammation

et al. 2020

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Research suggests national dietary guidelines are losing public resonance, with consumers actively seeking alternate nutrition advice from unregulated online platforms that often propagate misinformation. Improved diet quality can beneficially affect inflammation, and with science relating to nutrition and inflammation also appealing to consumers, this emerging topic provides an opportunity to consider how novel engagement strategies can be used to increase public support of expert-generated advice. This study aimed to qualitatively explore MOOC learners’ perceptions and experiences of following diets believed to help manage inflammation. Data were collected from an evidence-based nutrition-focused Massive Open Online Course (MOOC), which included a unit titled Foods and Inflammation. The Framework method was used to analyze 12,622 learner comments, taken from the MOOC’s online discussion forum and questionnaire. Learners identified avoidance of core food groups, such as dairy and grains, as key in managing inflammation. Dietary advice came mainly from the internet, and health professionals reportedly lacked an appreciation of the learners’ underlying nutrition knowledge, providing oversimplified advice that did not satisfy their scientific curiosity. To help build consumer trust and increase engagement, health professionals need to consider innovative education strategies that utilize novel topics such as nutrition and inflammation, in a safe and accurate manner.

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Section: Discussionmentioning

confidence: 99%

Inflaming Public Interest: A Qualitative Study of Adult Learners’ Perceptions on Nutrition and Inflammation

et al. 2020

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“…If the disease is not controlled in time, it will invade the liver, kidney, and other important organs. Therefore, timely and effective treatment for RA patients is of great significance to their life safety [ 5 ]. Traditional Chinese Medicine (TCM) fumigation can achieve the therapeutic objectives from the outside to the inside and from the inside to the outside in the clinical treatment of RA, and can effectively improve the patients' qi and blood imbalance and meridians occlusion [ 6 ].…”

Section: Related Workmentioning

confidence: 99%

[Retracted] Investigation of the Clinical Efficacy of Acupuncture Combined with Traditional Chinese Medicine Fumigation in the Treatment of Rheumatoid Arthritis by Meta‐Analysis

Tao

Zhang

Wang

2022

Contrast Media & Molecular Imaging

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In order to investigate the clinical efficacy of acupuncture combined with traditional Chinese medicine fumigation in the treatment of rheumatoid arthritis (RA) by meta-analysis, literature related to the treatment of rheumatoid arthritis by acupuncture combined with traditional Chinese medicine fumigation are searched in line with the research direction. Meta-analysis is conducted by RevMan 5.2 software. A total of 17 literature are included and the publication bias of the included literature is low. The experimental results show that acupuncture combined with traditional Chinese medicine fumigation can reduce the inflammatory response and clinical symptoms of RA patients, and the addition of acupuncture can improve the clinical efficacy, which has a certain feasibility of promotion.

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“…Our study sample included mainly relatively highly educated individuals, which has been associated with superior health-care literacy and may increase the engagement in symptoms self-management [ 37 ]. Participants who were less physically impaired were more likely to seek non-pharmacological therapies [ 38 , 39 ]. However, most participants continued to use over-the-counter analgesic including NSAIDs, since acute disease onset, without consulting their GPs, but the side-effects and risk/benefit ratio of long-term use and/or high dose of NSAIDs may be underestimated [ 40 ].…”

Section: Discussionmentioning

confidence: 99%

“What will the doctor give me, the same painkiller?”: a qualitative study exploring health-care seeking and symptoms self-management among patients for the treatment of long-term chikungunya disease, in Curaçao

Doran,

Duits,

Gerstenbluth

et al. 2023

BMC Health Serv Res

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Background Long-term chikungunya disease, characterized by persistent disabling rheumatic symptoms, including poly-arthralgia/arthritis of severe pain intensity, can persist for years after infection with the re-emerging mosquito-borne chikungunya virus. Although persistent symptoms and pain severity are important determinants of health-care seeking and self-management of symptoms, research on these in relation to long-term chikungunya disease is scarce. This study aimed to explore the perceived benefits and perceived barriers concerning health-care seeking, based on the Health Belief Model, and the symptoms self-management strategies used for health outcome improvement among individuals affected by long-term chikungunya disease. Methods An exploratory qualitative descriptive study was conducted with 20 purposively selected adults (17 females and 3 males) with persistent rheumatic symptoms, recruited from an ongoing longitudinal chikungunya cohort, in Curaçao. Semi-structured interviews were carried out, audio-recorded, and transcribed. An iterative coding process was used for themes identification through inductive thematic analyses. Results No perceived benefits in health-care seeking were reported. Identified themes in relation to perceived barriers were: (1) health-care seeking at disease onset; (2) general practitioners (GPs) perceptions and awareness of persistent symptoms; (3) challenges for medical referrals and support; (4) no validation of symptoms and challenges accessing therapy; (5) health system restrictions; and (6) social stigmatization of psychological help. These perceived barriers have led participants to self-manage persistent symptoms. Over-the-counter pharmacological and/or non-pharmacological treatments were used without consulting GPs. Identified themes were: (1) self-medication of symptoms; and (2) self-management true non-pharmacological treatments. Conclusions To promote the benefits of long-term health-care seeking and subsequently reduce the possible harmful use of analgesics, a collaborative physician-patient therapeutic relationship need to be encouraged. To facilitate this, important shifts may be needed in chikungunya sequalae education of both patients and health-care professionals, and policy makers need to revise health systems for the long-term provision of multidisciplinary care to achieve beneficial health outcomes in long-term chikungunya disease.

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Treatment-Seeking Behaviors of Persons With Rheumatoid Arthritis

Abstract: RA patients reported high rates of alternative therapy use. Dissatisfaction with pain levels indicates need for improved pain management. Not talking about pain lends insights into the importance of teaching patients to communicate their pain to others.

Cited by 8 publications

References 45 publications

Inflaming Public Interest: A Qualitative Study of Adult Learners’ Perceptions on Nutrition and Inflammation

Inflaming Public Interest: A Qualitative Study of Adult Learners’ Perceptions on Nutrition and Inflammation

[Retracted] Investigation of the Clinical Efficacy of Acupuncture Combined with Traditional Chinese Medicine Fumigation in the Treatment of Rheumatoid Arthritis by Meta‐Analysis

“What will the doctor give me, the same painkiller?”: a qualitative study exploring health-care seeking and symptoms self-management among patients for the treatment of long-term chikungunya disease, in Curaçao

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