Treatment referral before and after the introduction of the Liverpool Patients Concerns Inventory (PCI) into routine head and neck oncology outpatient clinics

Ghazali, Naseem; Kanatas, Anastasios; Langley, Daniel J. R.; Scott, B.; Lowe, Derek; Rogers, Simon N.

doi:10.1007/s00520-011-1222-9

Cited by 29 publications

(36 citation statements)

References 18 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Due to the significant impact this can have on patients' quality of life (QoL), guidelines for patient-centered care call for these concerns to be responded to with empathy [6][7][8] and signposting to further psychological and other support services where appropriate [9]. Improvements have been accomplished by developing additional guidelines and communication training in how to detect and manage emotional distress for care providers [4,10].…”

Section: Introductionmentioning

confidence: 99%

Using fundamental frequency of cancer survivors’ speech to investigate emotional distress in out-patient visits

Kandsberger

Rogers

Zhou

et al. 2016

Patient Education and Counseling

Self Cite

View full text Add to dashboard Cite

2 Highlights  Emotions in clinical conversations of cancer patients studied by a coding system and speech prosody  Emotional energy f0 was associated with cues and concerns as coded by VR-CoDES system  An additional aid to study emotional speech with potential to reveal hidden content and meaning AbstractObjective: Emotions, are in part conveyed by varying levels of fundamental frequency of voice pitch (f0). This study tests the hypothesis that patients display heightened levels of emotional arousal (f0) during Verona Coding Definitions of Emotional Sequences (VR-CoDES) cues and concerns versus during neutral statements. Methods:The audio recordings of sixteen head and neck cancer survivors' follow-up consultations were coded for patients' emotional distress. Pitch (f0) of coded cues and concerns, including neutral statements was extracted. These were compared using a hierarchical linear model, nested for patient and pitch range, controlling for statement speech length. Utterance content was also explored. Results:Clustering by patient explained 30% of the variance in utterances f0. Cues and concerns were on average 13.07 Hz higher than neutral statements (p = 0.02). Cues and concerns in these consultations contained content with a high proportion of recurrence fears. Conclusion:The present study highlights the benefits and challenges of adding f0 and potential other prosodic features to the toolkit of coding emotional distress in the health communication setting. Practice implications:The assessment of f0 during clinical conversations can provide additional information for research into emotional expression.3

show abstract

Section: Introductionmentioning

confidence: 99%

Using fundamental frequency of cancer survivors’ speech to investigate emotional distress in out-patient visits

Kandsberger

Rogers

Zhou

et al. 2016

Patient Education and Counseling

Self Cite

View full text Add to dashboard Cite

show abstract

“…Given the complexities of oral and dental care that may be unique in oncology, the need to understand the cancer diagnosis and stage, the treatment provided or planned, the prognosis of cancer treatment, the complications of therapy and the impact of the medical issues that continue following cancer therapy, and the identification of experienced and knowledgeable dental providers in the community may be a challenge [59,73]. The financial difficulties are also significant, even when dental insurance is available, due to the extensive and complex needs and even more challenging when dental insurance is limited or not available [62,71]. The definition of "medically necessary oral/dental care" and other means of funding the costs of care are not well defined.…”

Section: Resultsmentioning

confidence: 99%

“…It is essential that an informed and experienced dentist who is familiar with oro-dental needs of cancer patients and has an understanding of the impact cancer and cancer therapy may have upon dental treatment be part of the oncology team or at least be consulted [2,62]. Integrated oncology teams have been suggested to provide the complex range of services across the cancer continuum.…”

Section: Cancer Survivorsmentioning

confidence: 99%

Appropriate and necessary oral care for people with cancer: guidance to obtain the right oral and dental care at the right time

Epstein

Güneri

Barasch

2014

Support Care Cancer

View full text Add to dashboard Cite

Purpose The identification of experienced and knowledgeable dental specialists to provide appropriate oral care for cancer patients, as well as the integration of this care within general oncology management, may be a challenge. This paper discusses the general and additional requirements for dental care providers to support the cancer patient and provide prevention and/or treatment for oral complications of cancer therapy. Methods We performed a literature review of specific issues regarding the oral cavity and adjacent structures in the cancer patient, including detection and early diagnosis of oral malignancy. We incorporated the systemic effects of cancer and its therapy that affect oral disease and treatment. We present a summary of how to seek expert dental care for cancer patients and for referral from the dental and medical community. Results Due to the complexity conferred by the disease and its treatment, cancer patients require educated, experienced dentists for treatment and/or prevention of oral-related morbidity. Correct diagnosis and evidence-based prophylactic and therapeutic oral care can significantly improve patient quality of life and reduce morbidity and healthcare costs. Conclusions The knowledge and expertise of dental professionals regarding prevention/treatment of complications and secondary malignant lesions in cancer patients are critical. Integration of oral care with the oncology care and in survivors requires effective communication between dental and medical providers beginning ideally at diagnosis. These clinicians may be identified at the cancer center, nearby hospital dental programs, and, less commonly, in the community.

show abstract

“…The three specialists most selected by patients were speech therapist by 22 patients (26%), dentist by 20 patients (24%) and psychologist by 15 patients (18%) (Figure 2). The median (interquartile range -IQR) number of PCI items selected was eight (5)(6)(7)(8)(9)(10)(11)(12)(13), ranging between 0 and 42 items, with 75 patients (89%) selecting at least one item. The median (IQR) number of specialists indicated was one (0-2), ranging between zero and eight specialists, with 30 patients (36%) selecting at least one specialist.…”

Section: Translation Process and Pretest Surveymentioning

confidence: 99%

“…[6][7][8][9] In conjunction with the Merseyside Regional Head & Neck Cancer Centre Support Group, Rogers et al 10,11 and Ghazali et al 12 developed the Patient Concerns Inventory -Head and Neck (PCI-H&N), which has been included in the British H&N National Annual audit (DAHNO) as an indicator of quality of care. It consists of an inventory based on the collection of items from various health-related quality of life (HRQOL) questionnaires.…”

mentioning

confidence: 99%

Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation

Jungerman

Toyota

Montoni

et al. 2017

Rev. Assoc. Med. Bras.

Self Cite

View full text Add to dashboard Cite

Objective: The purpose of this study was to translate, culturally validate and evaluate the Patients Concerns Inventory -Head and Neck (PCI-H&N) in a consecutive series of Brazilian patients. Method: This study included adult patients treated for upper aerodigestive tract (UADT) cancer. The translation and cultural adaptation of the PCI-H&N followed internationally accepted guidelines and included a pretest sample of patients that completed the first Brazilian Portuguese version of the PCI. Use, feasibility and acceptability of the PCI were tested subsequently in a consecutive series of UADT cancer patients that completed the final Brazilian Portuguese version of the PCI and a Brazilian Portuguese version of the University of Washington Quality of Life Questionnaire (UW-QOL). Associations between physical and socio-emotional composite scores from the UW-QOL and the PCI were analyzed. Results: Twenty (20) patients participated in the pretest survey (translation and cultural adaptation process), and 84 patients were analyzed in the cultural validation study. Issues most selected were: fear of cancer returning, dry mouth, chewing/ eating, speech/voice/being understood, swallowing, dental health/teeth, anxiety, fatigue/tiredness, taste, and fear of adverse events. The three specialists most selected by the patients for further consultation were speech therapist, dentist and psychologist. Statistically significant relationships between PCI and UW-QOL were found. Conclusion: The translation and cultural adaptation of the PCI into Brazilian Portuguese language was successful, and the results demonstrate its feasibility and usefulness, making this a valuable tool for use among the Brazilian head and neck cancer population.Keywords: surveys and questionnaires, quality of life, head and neck neoplasms, validity and reliability, outcomes research.

show abstract

Treatment referral before and after the introduction of the Liverpool Patients Concerns Inventory (PCI) into routine head and neck oncology outpatient clinics

Abstract: Routine use of PCI promotes target efficiency by directing and apportioning appropriate services to meet the needs for supportive care of head and neck cancer survivors.

Cited by 29 publications

References 18 publications

Using fundamental frequency of cancer survivors’ speech to investigate emotional distress in out-patient visits

Using fundamental frequency of cancer survivors’ speech to investigate emotional distress in out-patient visits

Appropriate and necessary oral care for people with cancer: guidance to obtain the right oral and dental care at the right time

Patient Concerns Inventory for head and neck cancer: Brazilian cultural adaptation

Contact Info

Product

Resources

About