Treatment non‐adherence in teenage and young adult cancer patients: a preliminary study of patient perceptions

Abstract

A scale reflecting low-risk NA behaviour had good internal reliability and was associated with not seeking help when pyrexic. Ignoring a temperature was also associated with contemplating stopping treatment. We are now conducting a prospective study using the measure to assess validity against a range of information regarding NA.

Rethinking Adherence: A Proposal for a New Approach to Risk Assessment

“…4,5 Most studies have focused solely on measures of pharmacoadherence (the extent to which a patient follows a prescribed medication regimen), 6-12 with few investigating health-related behaviors or psychosocial components of adherence among AYAs. [13][14][15][16] Much of the literature is decades old; authors have speculated that there is no incentive to perform new investigations because adherence rates in other AYA populations (e.g., patients with cystic fibrosis, 17 asthma, 18 diabetes, 19 or inflammatory bowel disease 20 ) are comparable to those in cancer patients. 4 Divergent methodologies further preclude a complete understanding of how to appropriately identify and intervene with non-adherent patients across the cancer continuum.…”

The Information Security Organization

“…Non-compliance with treatment plans is often observed in young people 102 . This extends to their attendance at hospital for treatment or clinic appointments.…”

“…One of the great medical advances of the last 50-60 years, at least in high income countries (HICs), has been the improvement in survival for children with cancer from little expectation of cure in the 1960s to 75-80% long-term survival now 413,414 . Survival for TYA with malignancies has not improved quite as fast 415 attributed to di erences in the cell biology of tumours seen in the 16-25 age range 416 , plus delays in diagnosis 417 and higher rates of treatment non-adherence 102,418 . However, the greatest disparity is not between children and young adults diagnosed in HICs but between both children and young people living in low/middle income countries (LMIC) and those in resource-rich ones.…”

What meaning can take the occurrence of a cancer in a teenager?

“…L'observance est complexe et se décline de multiples façons, depuis la fidélité exemplaire au refus complet d'un traitement. Cinquante pour cent des adolescents souffrant de maladies chroniques ne respectent pas les recommandations médicales [5].…”