Traumatic Brain Injury and the Use of Documentary Narrative Media to Redress Social Stigma

Krahn, Timothy

doi:10.1007/978-94-007-4707-4_126

Cited by 9 publications

(10 citation statements)

References 125 publications

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“…6 People who are discharged from hospital after TBI are often referred to as "walking wounded," a label which can diminish the broad impacts and need for adaptation to challenges in everyday life. 7 National Institute for Health and Care Excellence (NICE) guidance in England 8 recommends that, on discharge from hospital following head injury, patients should be provided with an information sheet. Information giving has limited effectiveness in other conditions, such as stroke.…”

Section: Backg Rou N Dmentioning

confidence: 99%

Supporting self‐management after traumatic brain injury: Codesign and evaluation of a new intervention across a trauma pathway

Mäkelä

Jones

Abreu

et al. 2019

Health Expectations

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Background Supported self‐management (SSM) is a recognized approach for people with long‐term conditions but, despite the prevalence of unmet needs, little is known about its role for people with traumatic brain injury (TBI). Objectives To codesign an SSM intervention with people with TBI and evaluate feasibility of implementation through multidisciplinary staff across a trauma pathway. Setting and participants People who had previously been admitted to a Major Trauma Centre following TBI and family members participated in a series of codesign activities. Staff attended SSM workshops and used the intervention with patients in acute and rehabilitation settings. Methods We used Normalization Process Theory constructs to guide and interpret implementation. Knowledge, beliefs and confidence of staff in SSM were assessed through pre‐ and post‐training questionnaires, and staff, patients' and families' experiences were explored through semi‐structured interviews. Qualitative data were analysed thematically, and clinical measures were mapped against a matched sample. Results Codesigned resources were created and used within an SSM approach for which 110 staff participated in training. Evaluation demonstrated significant differences in staff SSM confidence and skills, following training. Qualitative evaluation revealed adoption by staff, and patients' and families' experiences of using the resources. Challenges included reaching staff across complex pathways to achieve collective implementation. Conclusion This is the first project to demonstrate feasibility of SSM for people after TBI starting in an acute trauma setting. Through an open approach to codesign with a marginalized group, the SSM resources were valued by them and held meaning and relevance for staff.

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Section: Backg Rou N Dmentioning

confidence: 99%

Supporting self‐management after traumatic brain injury: Codesign and evaluation of a new intervention across a trauma pathway

Mäkelä

Jones

Abreu

et al. 2019

Health Expectations

View full text Add to dashboard Cite

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Section: Achieving Social Engagementmentioning

confidence: 99%

“…36,40 To help with this understanding, practitioners can disclose the effects of an injury to employers where it is likely to be helpful (it is not always). 36,40,41…”

Section: Achieving Social Engagementmentioning

confidence: 99%

“…Invisible injuries often elicit stigma analogous to the stigma surrounding mental illness, 35 especially when the injury leads to problematic behaviour. To avoid this stigma and to be seen as worthy of employment, many survivors choose not to disclose the injury to employers, 36 because they rightly fear that employers and colleagues will see them as strange or less competent. 36,37 The problem with concealing the injury is that co-workers do notallow for the injury's effects.…”

Section: (Continued)mentioning

confidence: 99%

“…To avoid this stigma and to be seen as worthy of employment, many survivors choose not to disclose the injury to employers, 36 because they rightly fear that employers and colleagues will see them as strange or less competent. 36,37 The problem with concealing the injury is that co-workers do notallow for the injury's effects. As a result, they attribute problematic behaviours that result from the injury to a personality that will not change rather than the injury that may heal.…”

Section: (Continued)mentioning

confidence: 99%

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Is independence enough? Rehabilitation should include autonomy and social engagement to achieve quality of life

McClure

Leah

2020

Clin Rehabil

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Purpose: This discussion paper argues that holding independence as the central goal for rehabilitation has limitations that hinder successful outcomes. It shows why autonomy and social engagement should also serve as goals of rehabilitation, in order to achieve quality of life and effective functioning. Methods: The paper reviews problems arising from the over-emphasis on independence in rehabilitation. Although independence is a valuable goal on some tasks, it is sometimes not possible or desirable and is best complimented by autonomy and social engagement. Autonomy recognises that enacting some goals requires the support of other people. Autonomy is thus linked to social engagement (connectivity) in the workplace and personal relationships. The paper applies this framework to motor and cognitive disabilities. Results: The inclusion of autonomy and social engagement as goals for rehabilitation addresses the limitations of independence and can serve the unifying aim of enhancing the person’s quality of life. These goals apply equally to motor disabilities and the cognitive and behavioural effects of injuries which affect personal and work relationships. Conclusions: Rehabilitation is likely to be more effective if it aims at a combination of independence, autonomy and social engagement, in service of the goal of a good quality of life.

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Misconceptions about Stroke: Causal Attributions for Stroke-Related Symptoms Reflect the Age of the Survivor

2017

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With visible disabilities, observers tend to overgeneralise from the disability. In contrast, with invisible disabilities such as traumatic brain injury and stroke, observers often fail to allow for challenges resulting from the disability. Persons who have suffered a stroke claim that people misunderstand their symptoms and stigmatise them as a result of these symptoms. This misunderstanding, which happens particularly with young survivors of stroke, may reflect people's causal attributions for symptoms that follow a stroke. Using a scenario design, this cross-sectional study examined whether people attribute ambiguous symptoms that may result from stroke to other causes (the stroke survivor's personality and age) and whether these attributions reflect the age of the stroke survivor. Participants (N = 120) read scenarios describing a male who was aged either 22, 72, or whose age was unstated and who showed four symptom changes: fatigue, depression, irritability and reduced friendships. For each symptom change, participants rated three causal attributions: the person's age, his personality and stroke. The age of the person in the scenario affected attributions; when the person in the scenario was 22, participants attributed his symptoms significantly more to his personality than to his age or stroke, whereas when he was 72, participants attributed his symptoms more to his age than to his personality or stroke and when his age was unstated, they attributed his symptoms equally to age, stroke and personality. Because misattributions for stroke symptoms hinder rehabilitation, therapy can target people's misattributions to enhance rehabilitation for survivors of stroke.

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Traumatic Brain Injury and the Use of Documentary Narrative Media to Redress Social Stigma

Cited by 9 publications

References 125 publications

Supporting self‐management after traumatic brain injury: Codesign and evaluation of a new intervention across a trauma pathway

Supporting self‐management after traumatic brain injury: Codesign and evaluation of a new intervention across a trauma pathway

Is independence enough? Rehabilitation should include autonomy and social engagement to achieve quality of life

Misconceptions about Stroke: Causal Attributions for Stroke-Related Symptoms Reflect the Age of the Survivor

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