Translation and cultural adaptation of the Integrated Palliative care Outcome Scale including cognitive interviewing with patients and staff

Abstract

BackgroundTo expand our clinical and scientific knowledge about holistic outcomes within palliative care, there is a need for agreed-upon patient-reported outcome measures. These patient-reported outcome measures then require translation and cultural adaptation, either from country-specific languages to English, or the other way around. The aim of this study was to translate and cross-culturally adapt the Integrated Palliative care Outcome Scale (IPOS) to the Swedish care context.MethodsSwedish versions of IPOS Patient and IPOS Staff were developed and culturally adapted using recommended guidelines including cognitive interviews with patients (n = 13) and staff (n = 15) from different care contexts including general and specialised palliative care.ResultsThe comprehension and judgement difficulties identified in the pre-final patient and staff versions were successfully solved during the cognitive interviewing process. IPOS was well accepted by both patients and staff, none of the questions were experienced as inappropriate, and all questions were judged important.ConclusionsIn this study, we translated and culturally adapted the patient and staff versions of IPOS, and demonstrated face and content validity and acceptability of the scale through cognitive interviewing with patients and staff within residential care facility, surgical and specialised palliative home care units. Cognitive interviewing in parallel with patients and staff in rounds, with tentative analysis in between, was a suitable method for identifying and solving challenges with comprehension and evaluation in the pre-final version of IPOS. The Swedish IPOS is now available for use in a variety of clinical care settings.Electronic supplementary materialThe online version of this article (10.1186/s12904-017-0232-x) contains supplementary material, which is available to authorized users.

Challenges in the cultural adaptation of the German Myeloma Patient Outcome Scale (MyPOS): an outcome measure to support routine symptom assessment in myeloma care

“…Comprehension issues consistently reported in the literature concern item Q5, feeling depressed. The association of the term 'depressed' with a medical diagnosis was also noted in a study testing a Swedish version of the IPOS [48]. Similar to our finding, the Swedish research group opted for a colloquial term.…”

Psychometric properties of the Czech Integrated Palliative Outcome Scale: reliability and content validity analysis

“…IPOS was found to have excellent reliability [12][13][14][15][16] and face and content validity was also confirmed in several studies using cognitive interviews [11,17,18] Convergent validity has been confirmed for the original and German IPOS [13], Japanese version of IPOS [14] and French IPOS [16]. In many other countries the process of validation is ongoing and all language version which are currently available, such as Portuguese, Polish, Greek etc., can be found online (www.pos-pal.org).This study aims to provide a valid version of IPOS in Czech and to report the psychometric properties of IPOS from this first pilot Czech study.…”

Psychometric properties of the Czech Integrated Palliative Outcome Scale: Reliability and content validity analysis

“…IPOS was found to have excellent reliability (12)(13)(14)(15)(16) and face and content validity was also confirmed in several studies using cognitive interviews (11,17,18) Convergent validity has been confirmed for the original and German IPOS (13), Japanese version of IPOS (14) and French IPOS (16). In many other countries the process of validation is ongoing and all language version which are currently available, such as Portuguese, Polish, Greek etc., can be found online (www.pos-pal.org).This study aims to provide a valid version of IPOS in Czech and to report the psychometric properties of IPOS from this first pilot Czech study.…”