Translation and cultural adaptation of parent-report developmental assessments: Improving rigor in methodology

DuBay, Michaela; Watson, Linda R.

doi:10.1016/j.rasd.2019.02.005

Cited by 27 publications

(18 citation statements)

References 42 publications

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“…This potential mismatch raises questions about whether measures are biased against certain cultural groups, and in turn, whether group differences (e.g., based on race, ethnicity, or culture) reflect true differences or measurement error. Most autism assessment measures have been developed and validated with relatively nondiverse samples and generally have not followed best practices for linguistic or cross-cultural validation, 49 and are likely less valid when used cross-culturally. 47 The concept of cultural validation is exemplified by Magaña and Smith.…”

Section: Cultural Perspectives On Autism In Adulthoodmentioning

confidence: 99%

“…29 Select measures that were developed and normed with culturally diverse populations or that have undergone comprehensive cross-cultural adaptation and validation. 49 When translating and adapting measures, use multiple native translators, check the translation quality, and ensure that linguistic and cultural equivalence is achieved. 49 This includes ensuring semantic equivalence (i.e., similar meaning within words and sentence structures), prioritizing meaning over literal translations of idioms or colloquialisms, and ensuring that concepts being measured and corresponding items are present in that culture.…”

Section: Measurementmentioning

confidence: 99%

“…49 When translating and adapting measures, use multiple native translators, check the translation quality, and ensure that linguistic and cultural equivalence is achieved. 49 This includes ensuring semantic equivalence (i.e., similar meaning within words and sentence structures), prioritizing meaning over literal translations of idioms or colloquialisms, and ensuring that concepts being measured and corresponding items are present in that culture. 49 When designing new measures, avoid using idioms, metaphors, or other culturally bound phrases (e.g., ''reading between the lines'').…”

Section: Measurementmentioning

confidence: 99%

“…49 This includes ensuring semantic equivalence (i.e., similar meaning within words and sentence structures), prioritizing meaning over literal translations of idioms or colloquialisms, and ensuring that concepts being measured and corresponding items are present in that culture. 49 When designing new measures, avoid using idioms, metaphors, or other culturally bound phrases (e.g., ''reading between the lines''). 63,64 Pretest new or adapted measures.…”

Section: Measurementmentioning

confidence: 99%

“…Conduct psychometric analyses to evaluate the reliability and validity of new and/or adapted measures and establish norms for racial, ethnic, or cultural groups. 49…”

Section: Measurementmentioning

confidence: 99%

See 4 more Smart Citations

Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts

Long

Gordillo

Orsmond

2020

Autism in Adulthood

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The relatively nascent empirical knowledge base regarding autism in adulthood provides an opportunity to adopt a contextual approach that conceptualizes autism features, outcomes, and supportive services as interactions between the characteristics of the condition and contextual factors across the life course. Although a contextual approach encompasses many aspects of a person's identity and social ecology, we focus here on the closely interrelated family and cultural contexts, which have been poorly integrated into adult autism research. We argue that designing studies with a priori attention to context (e.g., family and culture) will improve the relevance and comprehensiveness of findings, which in turn will improve construct validity and provide a more accurate understanding of autism-related outcomes in adulthood. Similarly, designing and/or selecting measures that have been validated with culturally and linguistically diverse samples will improve the utility of findings and reduce spurious or null effects. More contextually informed methodologies will lead to improved generalizability and practical applications of findings. We offer concrete guidance regarding how to increase the social ecological perspective within adult autism research as it relates to study conceptualization, methodology, and measurement.

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Section: Cultural Perspectives On Autism In Adulthoodmentioning

confidence: 99%

Section: Measurementmentioning

confidence: 99%

Section: Measurementmentioning

confidence: 99%

Section: Measurementmentioning

confidence: 99%

“…Conduct psychometric analyses to evaluate the reliability and validity of new and/or adapted measures and establish norms for racial, ethnic, or cultural groups. 49…”

Section: Measurementmentioning

confidence: 99%

See 3 more Smart Citations

Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts

Long

Gordillo

Orsmond

2020

Autism in Adulthood

View full text Add to dashboard Cite

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Recommendations to encourage participation of individuals from diverse backgrounds in psychiatric genetic studies

MacDermod

Pettie

Carrino

et al. 2022

American J of Med Genetics Pt B

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We present innovative research practices in psychiatric genetic studies to ensure representation of individuals from diverse ancestry, sex assigned at birth, gender identity, age, body shape and size, and socioeconomic backgrounds. Due to histories of inappropriate and harmful practices against marginalized groups in both psychiatry and genetics, people of certain identities may be hesitant to participate in research studies. Yet their participation is essential to ensure diverse representation, as it is incorrect to assume that the same genetic and environmental factors influence the risk for various psychiatric disorders across all demographic groups. We present approaches developed as part of the Eating Disorders Genetics Initiative (EDGI), a study that required tailored approaches to recruit diverse populations across many countries. Considerations include research priorities and design, recruitment and study branding, transparency, and community investment and ownership. Ensuring representation in participants is costly and funders need to provide adequate support to achieve diversity in recruitment in prime awards, not just as supplemental afterthoughts. The need for diverse samples in genetic studies is critical to minimize the risk of perpetuating health disparities in psychiatry and other health research.Although the EDGI strategies were designed specifically to attract and enroll individuals with eating disorders, our approach is broadly applicable across psychiatry and other fields.

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Measurement invariance of the Childhood Autism Rating Scale (CARS) across six countries

Stevanović¹,

Costanzo

Fucà

et al. 2021

Autism Research

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The Childhood Autism Rating Scale (CARS) is a simple and inexpensive tool for Autism spectrum disorder (ASD) assessments, with evidenced psychometric data from different countries. However, it is still unclear whether ASD symptoms are measured the same way across different societies and world regions with this tool, since data on its cross-cultural validity are lacking. This study evaluated the crosscultural measurement invariance of the CARS among children with ASD from six countries, for whom data were aggregated from previous studies in India (n = 101), Jamaica (n = 139), Mexico (n = 72), Spain (n = 99), Turkey (n = 150), and the United States of America (n = 186). We analyzed the approximate measurement invariance based on Bayesian structural equation modeling. The model did not fit the data and its measurement invariance did not hold, with all items found non-invariant across the countries. Items related to social communication and interaction (i.e., relating to people, imitation, emotional response, and verbal and nonverbal communication) displayed lower levels of cross-country noninvariance compared to items about stereotyped behaviors/sensory sensitivity (i.e., body and object use, adaptation to change, or taste, smell, and touch response). This study found that the CARS may not provide cross-culturally valid ASD assessments. Thus, cross-cultural comparisons with the CARS should consider first which items operate differently across samples of interest, since its cross-cultural measurement non-invariance could be a source of cross-cultural variability in ASD presentations. Additional studies are needed before drawing valid recommendations in relation to the cultural sensitivity of particular items.

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Translation and cultural adaptation of parent-report developmental assessments: Improving rigor in methodology

Cited by 27 publications

References 42 publications

Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts

Improving the Validity and Generalizability of Adult Autism Research Through Incorporating Family and Cultural Contexts

Recommendations to encourage participation of individuals from diverse backgrounds in psychiatric genetic studies

Measurement invariance of the Childhood Autism Rating Scale (CARS) across six countries

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