Translation and cultural adaptation of the stroke impact scale 2.0 (SIS): a quality-of-life scale for stroke

Brandão, Aline Dias; Teixeira, Natasha Bertocco; Brandão, Maria Claudia; Vidotto, Milena Carlos; Jardim, José Roberto; Gazzotti, Mariana Rodrigues

doi:10.1590/1516-3180.2017.0114281017

Cited by 4 publications

(1 citation statement)

References 19 publications

(12 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The Stroke Impact Scale (SIS) was translated to Portuguese and showed high consistency across different interviewers. [5]. Surveys and data collection concepts which map to visual concepts are also easier to translate, and in some cases do not require translation to be effective [6].…”

Section: Discussionmentioning

confidence: 99%

Towards Multi-Lingual Pneumonia Research Data Collection Using the Community-Acquired Pneumonia International Cohort Study Database

Mattingly¹,

Buckner²,

Pena³

2019

JRI

View full text Add to dashboard Cite

Sharing the results of clinical research continues to play a large role in scientific discovery [1], and more and more funders and publishers are encouraging investigators to adopt sustainable means to share the data used along with their results. For ad-hoc studies the structure of data is not crucial beyond the needs of accurate analysis. However, when data sharing and reproducibility of research are important, time and effort must be invested to structure a dataset to be efficiently combined with other datasets. Efficient means of integrating data from different sources are needed to leverage the full benefits of data sharing because new research questions can be examined using integrated, multi-source data. Studies that are international in scope can provide large, diverse samples of patient populations, but require investment in translation, and the appropriate ontological structuring of data. In this paper we describe the process of extending the Community Acquired Pneumonia Organization (CAPO) clinical research database to support data collection for multiple languages. After English, Spanish is the most common spoken language of members of the Community Acquired Pneumonia Organization with almost 40% of member sites being in Spanish speaking countries. Starting with Spanish we establish a general multi-language workflow for data entry into the CAPO database, with the eventual goal of supporting all CAPO member languages. Methods The study database for CAPO currently resides in a web-hosted instance of the REDCap electronic data capture software. REDCap is a secure web application for building and managing online surveys and databases. Members of CAPO access the REDCap instance remotely from its web URL https:// id.research.louisville.edu/capo using a web browser and their assigned user credentials. Demographic and clinical history information can then be entered for new cases in the database.

show abstract

Section: Discussionmentioning

confidence: 99%

Towards Multi-Lingual Pneumonia Research Data Collection Using the Community-Acquired Pneumonia International Cohort Study Database

Mattingly¹,

Buckner²,

Pena³

2019

JRI

View full text Add to dashboard Cite

show abstract

Does dual task merged in a mixed physical exercise protocol impact the mobility under dual task conditions in mild impaired stroke survivors? A feasibility, safety, randomized, and controlled pilot trial

Antonio

Bonuzzi

Alves

et al. 2022

Disability and Rehabilitation

View full text Add to dashboard Cite

Characterization of muscle strength using the strength domain of the stroke impact scale: An integrative review

Bohannon¹

2021

IES

View full text Add to dashboard Cite

BACKGROUND AND OBJECTIVE: Muscle weakness is among the most common and obvious impairments in older adults and individuals with neurologic disorders. Although impairments in muscle strength are typically characterized using performance measures, the impairments have also been described using patient or observerreport. The objective of this review was to summarize literature describing use of a patientreport instrument, the Strength Domain (SD) of the Stroke Impact Scale (SIS), to grade strength impairments. METHODS: Peer-reviewed literature reporting SD scores for the SIS was identified using computerized searches of the CINAHL, PubMed, and Scopus databases followed by hand searches. Potentially relevant articles were then mined for data on the participants tested, the SIS version used, scores documented, and clinimetric properties reported. RESULTS: Sixty-five articles were judged appropriate based on inclusion and exclusion criteria. The articles involved more than 7000 residents of 22 countries. All articles focused on individuals with stroke (usually chronic), although one also included community-dwelling adults without stroke. The SIS version used was frequently unreported, but 3.0 was version most often specified. For articles reporting SD scale scores the mean ranged from 19.7 to 85.5. Construct (known groups, convergent, and discriminant) validity of the SD was supported by the literature as was its internal consistency and test-retest reliability. Responsiveness of the SD was evinced by numerous studies showing increases in SD scores with time or accompanying effective interventions. However, only one study indicated responsiveness using an anchor-based statistic. CONCLUSIONS: The SD of the SIS is a wellestablished and mostly clinimetrically sound patient-report measure of paretic limb strength among individuals with stroke. Its use with individuals with weakness accompanying aging or diagnoses other than stroke remains to be substantiated.

show abstract

Translation and cultural adaptation of the stroke impact scale 2.0 (SIS): a quality-of-life scale for stroke

Abstract: The translation of the SIS 2.0 scale was easy to understand and it had good reproducibility among stroke patients.

Cited by 4 publications

References 19 publications

Towards Multi-Lingual Pneumonia Research Data Collection Using the Community-Acquired Pneumonia International Cohort Study Database

Towards Multi-Lingual Pneumonia Research Data Collection Using the Community-Acquired Pneumonia International Cohort Study Database

Does dual task merged in a mixed physical exercise protocol impact the mobility under dual task conditions in mild impaired stroke survivors? A feasibility, safety, randomized, and controlled pilot trial

Characterization of muscle strength using the strength domain of the stroke impact scale: An integrative review

Contact Info

Product

Resources

About