Translation and cross-cultural adaptation of the PEDI-CAT: Dutch version

Bos, N.; Engel, Madelon F; Rijswijk, Nina J van; Verheijden, Johannes; Coster, Wendy J.; Moed, Richard

doi:10.3233/prm-180544

Cited by 7 publications

(13 citation statements)

References 19 publications

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“…The insights about language and comprehensiveness of the PEM-CY, that were gained by the think-aloud interviews, lead to major equivalent changes in our study. Similar effects are reported with the cross-cultural adaptation of another participation measure, the Pediatric Evaluation of Disability Inventory -Computer Adaptive Test (PEDI-CAT), when translated and adapted into Dutch [35]. Specifically, the fact that all participants were parents of children and adolescents with disabilities, challenged our perceptions and understanding of normative participation.…”

Section: Discussionmentioning

confidence: 54%

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Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Krieger

Schulze

Boyd

et al. 2020

Preprint

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Background Concepts such as participation and environment may differ across cultures.Consequently, to use a measure like the Participation and Environment Measure for Children and Youth (PEM-CY) in other than the original English-speaking contexts, cultural adaptation needs to be assured. The aim of this study was to cross-culturally translate and adapt the PEM-CY into German as it is used in Germany, Austria and Switzerland.Methods Fifteen parents of children and adolescents with disabilities from three German speaking countries participated in three rounds of think-aloud interviews. We followed the procedure of cultural equivalence guidelines including two additional steps. Data was analyzed by content analysis using semantic, idiomatic, experiential and conceptual equivalence.Results Results show adaptations mainly focused on experiential and conceptual equivalence. Examples of experiential equivalence included adapting the examples of activities in the PEM-CY toreflect typical ones in German speaking countries. Conceptual equivalence mainly addressed aspects of "involvement" and "environment" of children and adolescents and was reached through adaptations such as enhanced instructions and structures, and additional definitions. Conclusion This study presents a cross-cultural translation and adaptation process to develop aGerman version of the PEM-CY that is suitable for Germany, Austria and Switzerland. As participation and environment are both complex concepts to measure, conceptual equivalence posed the highest challenges for this cultural adaptation. A culturally adapted version of PEM-CY (German) is now available for research, practice and further validation.

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Section: Discussionmentioning

confidence: 54%

“…This study followed the cross-cultural adaptation guidelines by Beaton [25] because of their procedural clarity and broad usage [16,35,36]. All stages in the process were found useful and were followed.…”

Section: Discussionmentioning

confidence: 99%

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Krieger

Schulze

Boyd

et al. 2020

Preprint

View full text Add to dashboard Cite

show abstract

“…This study followed the cross-cultural adaptation guidelines by Beaton [28] because of their procedural clarity and broad usage [16,38,39]. All stages in the process were found useful and were followed.…”

Section: Discussionmentioning

confidence: 99%

“…Involving the team from CanChild ensured communication and agreement on conceptual equivalence, and ongoing developer input helped to maintain the measure's constructs. As suggested in the literature [16,38], these steps prevented problems in operationalization and in obtaining normative intercultural comparison at a later stage [14,40]. Although pilot testing is not fully described in Beatons' guidelines [28], we included a think-aloud method [33] with parents of children with disabilities.…”

Section: Discussionmentioning

confidence: 99%

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Krieger

Schulze

Boyd

et al. 2020

Preprint

View full text Add to dashboard Cite

Background: Concepts such as participation and environment may differ across cultures. Consequently, to use a measure like the Participation and Environment Measure for Children and Youth (PEM-CY) in other than the original English-speaking contexts, cultural adaptation needs to be assured. The aim of this study was to cross-culturally translate and adapt the PEM-CY into German as it is used in Germany, Austria and Switzerland.Methods: Fifteen parents of children and adolescents with disabilities from three German speaking countries participated in three rounds of think-aloud interviews. We followed the procedure of cultural equivalence guidelines including two additional steps. Data was analyzed by content analysis using semantic, idiomatic, experiential and conceptual equivalence.Results: Results show adaptations mainly focused on experiential and conceptual equivalence, with conceptual equivalence being the most challenging to reach. Examples of experiential equivalence included adapting the examples of activities in the PEM-CY to reflect those typical in German speaking countries. Conceptual equivalence mainly addressed aspects of “involvement” and “environment” of children and adolescents and was reached through adaptations such as enhanced instructions and structures, and additional definitions.Conclusion: This study presents a cross-cultural translation and adaptation process to develop a German version of the PEM-CY that is suitable for Germany, Austria and Switzerland. Using a modified cultural adaptation process, a culturally adapted version of PEM-CY (German) is now available for research, practice and further validation.

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“…The PEDI-CAT has been translated and cross-culturally adapted into several versions, including Spanish, Dutch and Brazilian-Portuguese [ 19 , 20 ]. It has been used to assess motor functioning in children with learning disorders and children with spina bifida, as well as all domains of functioning in autism spectrum disorder (ASD), Down syndrome, cerebral palsy, Angelman syndrome, infants and toddlers receiving EI services and many others [ 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 ].…”

Section: Introductionmentioning

confidence: 99%

Adaptive Skills in FXS: A Review of the Literature and Evaluation of the PEDI-Computer Adaptive Test (PEDI-CAT) to Measure Adaptive Skills

et al. 2020

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As adaptive skills (AS) are dynamic and may indicate the success of an intervention, they are a common domain measured in clinical trials. Typical interview tools for measuring AS are time-consuming, and questionnaire measures often lead to inconsistent information. The present study was designed to evaluate the feasibility, validity and test-retest performance of the Pediatric Evaluation of Disability Inventory Computer Adaptive Test (PEDI-CAT) in Fragile X syndrome (FXS). The PEDI-CAT is administered via tablet and uses the item response theory to efficiently determine the items administered. The PEDI-CAT was administered to 42 individuals with FXS (27 males; 15 females) aged 1.6–50.9 years (M = 14.9; SD = 11.2), followed by the Vineland-3 (VABS-3) interview for comparison. Administration was efficient (M = 21.7 min; SD = 9.5; range 8–45 min; mode = 19). Males and females did not significantly differ on the PEDI-CAT domains, except for daily activities (t(40) = −2.22, p = 0.037). Floor effects were significant for both measures, although the PEDI-CAT showed more floor effects in the mobility (35.7%) and social-cognitive (50%) domains. PEDI-CAT daily activities, mobility, social-cognitive and responsibility domains were all significantly correlated with most of the VABS-3 domains (all rho > 0.5; p < 0.01). Test-rest of the PEDI-CAT was comparable to the VABS-3. Results suggest that the PEDI-CAT is efficient, and minimal training is needed to administer it; however, it lacks specificity and shares a high rate of floor effects with the VABS-3.

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Translation and cross-cultural adaptation of the PEDI-CAT: Dutch version

Cited by 7 publications

References 19 publications

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Cross-cultural adaptation of the Participation and Environment Measure for Children and Youth (PEM-CY) into German: a qualitative study in three countries

Adaptive Skills in FXS: A Review of the Literature and Evaluation of the PEDI-Computer Adaptive Test (PEDI-CAT) to Measure Adaptive Skills

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