Transition to adulthood in individuals with ASD: What does the employment look like?

Ghanouni, Parisa; R, Raphael

doi:10.1080/13639080.2022.2048253

Cited by 3 publications

(1 citation statement)

References 75 publications

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“…Managing access and traveling to services can also be a significant burden ( 8 , 9 , 16 , 19 , 20 ). Thirdly, individual characteristics are a factor of access, as services for adults without co-occuring intellectual disability (ID) and complex communication needs (CCN) or with challenging behaviors are especially sparse ( 9 , 19 , 21 ). Finally, a very important factor is the parents’ ability to gather information on services and activities, by mobilizing their own resources ( 8 , 16 , 22 – 24 ).…”

Section: Introductionmentioning

confidence: 99%

“…in the middle of nowhere…” Access to, and quality of, services for autistic adults from parents’ perspectives: a qualitative study

Németh,

Győri,

Ehmann

et al. 2024

Front. Psychiatry

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IntroductionAdequate education, employment, and services for autistic individuals contribute significantly to their and their parents’ quality of life. Services and support for adults are dramatically more limited than those for children. The main purpose of this study was to explore how parents perceive factors supporting/hindering access to services, and how they assess the quality of services.MethodsQualitative data provided by 12 parents via a semi-structured interview with a broader focus on parental quality of life and its factors were analyzed. Their autistic children were between 20 and 34 years of age. A thematic analysis was performed on parts of the narratives on their adult periods of life.ResultsA complex pattern of parental perception of supportive and hampering factors influencing access to services unfolded. The sparsity of services/activities and reliable information on them made the space for autonomous decisions on service take highly limited. Parents have modest expectations on quality of services, evaluating them along two key aspects: a safe, positive atmosphere, and communication between parents and professionals. Other aspects of individualized autism-specific support were not or just rarely mentioned.DiscussionParents perceive themselves as investing a lot of effort and resources in getting some form of regular service and/or activity for their adult child. However, these parental efforts often fail, their child becoming inactive, and dependent on their presence. This suggests system-level problems with services for autistic adults in Hungary, with literature showing it is not specific to this country.

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