Transition to Adult-Oriented Health Care: Perspectives of Youth and Adults with Complex Physical Disabilities

Young, Nancy L.; Barden, Wendy; Mills, W; Burke, Tricia A.; Law, Mary; Boydell, Katherine M.

doi:10.3109/01942630903245994

Cited by 90 publications

(59 citation statements)

References 27 publications

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“…The lack of another, better, alternative had them accepting less. All participants identified challenges in transition, including: lack of access to health care; lack of professionals' knowledge; lack of information and uncertainty regarding the transition process (Young et al, 2009). Providing interventions that decrease the negative feelings associated with transition (e.g.…”

Section: Discussionmentioning

confidence: 98%

Health Care Transition Experiences of Young Adults With Cerebral Palsy

Carroll

2015

Journal of Pediatric Nursing

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Section: Discussionmentioning

confidence: 98%

Health Care Transition Experiences of Young Adults With Cerebral Palsy

Carroll

2015

Journal of Pediatric Nursing

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“…8 Young et al found that a common barrier to transition in Canada for individuals who suffer from SB, cerebral palsy, and acquired brain injury was an inability to access adult physician specialists, which is an unforeseen finding due to Canada's government-funded healthcare system. 13 It was determined that 7/9 pediatric urologists from the province of Ontario do not provide ongoing care to SB patients after the age of 18. Koyle et al have proposed that the alternate funding plan in Ontario potentially hampers provider continuity and suggested a culture change was necessary.…”

Section: Discussionmentioning

confidence: 99%

The transition process of spina bifida patients to adult-centred care: An assessment of the Canadian urology landscape

Wajchendler¹,

Anderson²,

Koyle³

2017

CUAJ

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Introduction: Due to medical advances over the past three decades, the vast majority of children with spina bifida (SB) now survive into adulthood. As a result, there is a need to implement a well-defined urological transition process for these patients from the pediatric to adult environment. The objective of this study was to identify and analyze the current medical practices employed and the attitudes regarding transition by Canadian pediatric urologists caring for the SB population. Methods: A survey consisting of 14 questions pertaining to physician demographics, current practice, and attitudes towards the transition process of SB patients was distributed at the 2015 annual Pediatric Urologists of Canada (PUC) conference. The survey respondents remained anonymous, and the data were collected and analyzed. Results: A total of 28 surveys were collected from urologists across Canada (25 full-time pediatric, three also providing adult care), representing a >75% response rate. The transition process was suggested to begin at the age of 18 or older by 43% (12/28) of pediatric urologists. The majority, 86% (24/28), do not currently use a questionnaire or a checklist to determine transition readiness of patients. Forty-six percent (13/28) of pediatric urologists do not provide ongoing urological care to their patients after referral has been made to adult-centred care. In the province of Ontario, in which 39% (11/28) of the pediatric urologists practice, 82% (9/11) are full-time pediatric urologists and 78% (7/9) do not provide ongoing care to SB patients after the age of 18. Conclusions: A significant minority of Canadian pediatric urologists perceive that the transition process should begin at the age of 18 or older. As such, it can be inferred that transfer of care and transition are synonymous, not independent. Simplistically, this suggests that transition represents an event rather than a longitudinal process. The fact there is no defined ongoing urological care as a component of this process, suggests the potential for substandard quality of care after these patients graduate to the adult sector. Different provincial healthcare systems and funding plans may further hinder this transition of care by denying provider continuity based on reimbursement plans.

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“…The rational for classifying all YSHCN in the same category was to prevent gaps and duplication of services, which became apparent in the second half of the century until a unified definition was developed which would help in the allocation of resources (McPherson et al, 1998). Furthermore, YSHCN face similar barriers that can prevent successful transition to adult care (Betz, 2007;Reiss, Gibson, & Walker, 2005;Young et al, 2009). Although YSHCN have many different diagnoses, they all would need to be offered the same services for transition (AAP, AAFP & ACP, 2011).…”

Section: Gaps In the Literaturementioning

confidence: 97%

Measuring Acuity and Patient Progress for Youth With Special Health Care Needs in Transition Care Utilizing Nursing Outcomes

Celona

2015

Journal of Pediatric Nursing

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Transition to Adult-Oriented Health Care: Perspectives of Youth and Adults with Complex Physical Disabilities

Abstract: The challenges of clinical transition were universal. More extensive information and support is needed during transition to ensure an efficient move to appropriate adult-oriented health care.

Cited by 90 publications

References 27 publications

Health Care Transition Experiences of Young Adults With Cerebral Palsy

Health Care Transition Experiences of Young Adults With Cerebral Palsy

The transition process of spina bifida patients to adult-centred care: An assessment of the Canadian urology landscape

Measuring Acuity and Patient Progress for Youth With Special Health Care Needs in Transition Care Utilizing Nursing Outcomes

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