Transition Planning for Youth With Special Health Care Needs: Results From the National Survey of Children With Special Health Care Needs

Lotstein, Debra; McPherson, Merle; Strickland, Bonnie; Newacheck, Paul W.

doi:10.1542/peds.2004-1262

Cited by 212 publications

(170 citation statements)

References 22 publications

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“…A literatura sobre transição é rica em especialidades pediátricas que lidam com doenças crônicas como fibrose cística, asma, anemia falciforme, doenças reumatológicas, endócrinas e cardíacas, câncer, transplantes ou aquelas que atendem crianças com necessidades físicas especiais 7,8,10,17,18 . A tônica desses estudos é a necessidade de realização de uma transição planejada, suave e sem interrupções para garantir uma evolução bem-sucedida.…”

Section: A Transiçãounclassified

Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge

Machado¹,

Succi²,

Turato³

2010

J Pediatr (Rio J)

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Objective: To review the literature on transition from pediatric to adult-oriented health care and discuss this issue in the specific context of chronic conditions. Sources: MEDLINE and LILACS were searched for relevant English and French-language articles published between 1990 and 2010. Summary of the findings:The transition of adolescents with chronic diseases from pediatric care to adult-oriented services has been a growing concern among pediatric specialties. In recent years, young people living with HIV/AIDS have begun to reach adulthood, giving rise to several challenges. The studies reviewed herein discuss such relevant topics as: the difference between transfer, an isolated event, and transition, a gradual process; the transition models used in different services; the importance of transitioning in a planned and individualized manner; the need for comprehensive interaction between pediatric and adult-oriented care teams; the importance of joint participation of adolescents, their families, and health professionals in the process; barriers to and factors that promote successful transitions; and the special needs of adolescents with HIV/AIDS in this important period of life. Conclusions:Several authors agree that transitioning adolescents to adult-oriented health care should be a gradual process not determined by age alone. It requires a plan established with ample dialogue among adolescents, their families, and pediatric and adult care teams. However, there is little evidence to support any specific model of health care transition. This should prompt researchers to conduct more prospective studies on the theme, especially in more vulnerable groups such as adolescents living with HIV/AIDS. J Pediatr (Rio J). 2010;86(6):465-472: HIV, adolescents, transition, chronic disease. ResumoObjetivo: Revisar a literatura sobre transição de adolescentes da pediatria para a clínica de adultos, com enfoque na clínica da AIDS, discutindo o tema no contexto das doenças crônicas. Fontes de dados:A pesquisa bibliográfica utilizou os bancos de dados MEDLINE e LILACS , selecionando artigos disponíveis em inglês ou francês. Síntese dos dados:A transição de adolescentes com doenças crô-nicas, sempre atendidos por pediatras, para os serviços de adultos, tem sido uma crescente preocupação nas diversas especialidades pediátricas. Mais recentemente, jovens vivendo com HIV/AIDS estão atingindo essa fase e apresentando diversas dificuldades. Os estudos avaliados nessa revisão discutem alguns tópicos relevantes, como: a diferença entre transferência, um evento isolado, e transição, um processo gradual; os modelos utilizados nos diversos serviços; a importância de a transição ser feita de maneira planejada e individualizada; a necessidade de ampla interação entre as equipes pediátricas e os serviços de adultos; a importância da participação conjunta dos adolescentes, familiares e profissionais de saúde; as barreiras e os fatores que favorecem uma transição bem-sucedida; as necessidades e particularidades dos adolescentes com H...

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Section: A Transiçãounclassified

Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge

Machado¹,

Succi²,

Turato³

2010

J Pediatr (Rio J)

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“…[1][2][3][4][5][6][7][8] The health care transition (HCT) to adult medical care is an aspect of this process that remains a particular problem for YSHCN. 2,5,6,8 Although research shows that YSHCN encounter high rates of unmet needs in terms of HCT preparation, 5,8 they also experience significant gaps in access to care, delayed care, and lack of insurance coverage during HCT. 2,6 Substantial challenges in identifying adult primary care providers (PCPs) or adult specialists to whom they can transition have also been documented.…”

mentioning

confidence: 99%

Health Care Transition Services for Youth With Autism Spectrum Disorders: Perspectives of Caregivers

et al. 2016

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BACKGROUND AND OBJECTIVE: This paper seeks to describe the experience of youth with autism spectrum disorder (ASD) in making the health care transition (HCT) to adult care. METHODS:We surveyed 183 parents and guardians of youth with ASD, assessing the extent to which youth and families experienced and desired HCT services, their satisfaction with services, and obstacles to transition. Descriptive statistics were used to examine HCT measures and Fisher's exact and t tests assessed whether demographic or health measures were associated with service receipt. Any measures with a P value <.05 were included in a logistic regression model, with service receipt as the dependent variable. RESULTS:The receipt of transition services was low overall, with rates for individual services ranging from 3% to 33% and only 60% of the sample receiving any transition service. Despite these low rates, a majority of respondents reported wanting services (73.3%-91.6%), and satisfaction for received services was high (89%-100%). Regression analyses showed depression to be the only variable significantly associated with service receipt. Youth who were identified by their caregivers as having depression experienced a higher rate of transition service receipt than those not identified as having depression. CONCLUSIONS:Findings suggest that there is a great need to address the provision of HCT services for youth with ASD. Although families who received HCT services were generally satisfied, overall rates of service receipt were quite low, and those who were not provided with services generally desired them.

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“…5 To monitor national and state performance on transition and other core outcomes, beginning in 2001, MCHB has partnered every 4 to 5 years with the National Center for Health Statistics to conduct the National Survey of Children with Special Health Care Needs (NS-CSHCN). 6,7 In this article, we report on the transition results from the 2009-2010 NS-CSHCN. We examine population, condition, and health care characteristics associated with successful transition preparation.…”

mentioning

confidence: 99%

Current Status of Transition Preparation Among Youth With Special Needs in the United States

McManus

Pollack

Cooley³

et al. 2013

Pediatrics

Self Cite

227

174

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WHAT'S KNOWN ON THIS SUBJECT:The importance of transition from pediatric to adult health care for youth with special health care needs has gained increasing attention over the past decade, but fewer than half of this population received needed transition preparation in [2005][2006]. abstract OBJECTIVE: To examine current US performance on transition from pediatric to adult health care and discuss strategies for improvement. WHAT THIS STUDY ADDS: METHODS: The 2009-2010 National Survey of Children with SpecialHealth Care Needs is a nationally representative sample with 17 114 parent respondents who have youth with special health care needs (YSHCN) ages 12 and 18. They are asked about transition to an adult provider, changing health care needs, increasing responsibility for health care needs, and maintaining insurance coverage. We analyzed the association of selected characteristics with successful transition preparation. RESULTS:Overall, 40% of YSHCN meet the national transition core outcome. Several factors are associated with transition preparation, including female gender; younger age; white race; non-Hispanic ethnicity; income $400% of poverty; little or no impact of condition on activities; having a condition other than an emotional, behavioral, or developmental condition; having a medical home; and being privately insured.CONCLUSIONS: Most YSHCN are not receiving needed transition preparation. Although most providers are encouraging YSHCN to assume responsibility for their own health, far fewer are discussing transfer to an adult provider and insurance continuity. Although changes in sample design limit trend analysis, there have been no discernible improvements since this transition outcome was measured in the 2005

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Transition Planning for Youth With Special Health Care Needs: Results From the National Survey of Children With Special Health Care Needs

Cited by 212 publications

References 22 publications

Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge

Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge

Health Care Transition Services for Youth With Autism Spectrum Disorders: Perspectives of Caregivers

Current Status of Transition Preparation Among Youth With Special Needs in the United States

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