Transition of respiratory technology dependent patients from pediatric to adult pulmonology care

Agarwal, Amit; Willis, Denise; Tang, Xinyu; Bauer, Martin; Berlinski, Ariel; Com, Gulnur; Ward, Wendy L.; Carroll, John L.

doi:10.1002/ppul.23155

Cited by 26 publications

(14 citation statements)

References 38 publications

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“…Therefore, some study patients may have transitioned out before 21 years of age and were not appropriately censored. Given that older complex patients frequently use pediatric services and few pediatric home ventilation programs have formalized transition processes, we felt that an upper age limit of 21 years was reasonable . Fifth, we did not have access to some information that are worthy of study, namely reasons for (and reasons for not) transitioning to transtracheal ventilation and causes of death.…”

Section: Discussionmentioning

confidence: 99%

A multi‐institutional analysis of children on long‐term non‐invasive respiratory support and their outcomes

Koncicki

Zachariah

Lucas

et al. 2018

Pediatric Pulmonology

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Section: Discussionmentioning

confidence: 99%

A multi‐institutional analysis of children on long‐term non‐invasive respiratory support and their outcomes

Koncicki

Zachariah

Lucas

et al. 2018

Pediatric Pulmonology

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“…There is a constant challenge to address the primary care needs of these individuals, as adults. Standardized transition programs are needed to improve patient satisfaction [ 8 ].…”

Section: Methodsmentioning

confidence: 99%

Building a Comprehensive System of Services to Support Adults Living with Long-Term Mechanical Ventilation

Leasa

Elson

2016

Canadian Respiratory Journal

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Background. Increasing numbers of individuals require long-term mechanical ventilation (LTMV) in the community. In the South West Local Health Integration Network (LHIN) in Ontario, multiple organizations have come together to design, build, and operate a system to serve adults living with LTMV. Objective. The goal was to develop an integrated approach to meet the health and supportive care needs of adults living with LTMV. Methods. The project was undertaken in three phases: System Design, Implementation Planning, and Implementation. Results. There are both qualitative and quantitative evidences that a multiorganizational system of care is now operational and functioning in a way that previously did not exist. An Oversight Committee and an Operations Management Committee currently support the system of services. A Memorandum of Understanding has been signed by the participating organizations. There is case-based evidence that hospital admissions are being avoided, transitions in care are being thoughtfully planned and executed collaboratively among service providers, and new roles and responsibilities are being accepted within the overall system of care. Conclusion. Addressing the complex and variable needs of adults living with LTMV requires a systems response involving the full continuum of care.

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“…A survey of pediatric pulmonology programs found that most did not utilize a standard transition process for ventilator-dependent patients, and many did not have a process in place. 31 Unlike the consensus report for cystic fibrosis adult care, 17 there are no published guidelines addressing transition of ventilator-dependent patients from pediatric to adult care. 32 Although a consensus statement exists for transition of children with special health care needs, 5 different chronic conditions bring unique disease-specific considerations that must be taken into account.…”

Section: Condition-specific Models Of Transitionmentioning

confidence: 99%

Transition From Pediatric to Adult Care for Young Adults With Chronic Respiratory Disease

Willis

2020

Respir Care

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Advances in medicine and technology have led to improved survival rates of children with chronic respiratory disease such as cystic fibrosis, neuromuscular disease, and ventilator dependence. Survival into adulthood has created the need for adult specialists for conditions originating in childhood. Transition from pediatric to adult health care is a process that requires advanced planning and preparation and is not a one-time transfer event. Transition should be standard practice, but many children with special health care do not experience successful transition outcomes. Barriers to successful transition include lack of a standardized process, inadequate planning, and poor communication. Adverse outcomes have occurred in cases of abrupt or haphazard transfers. A successful transition process includes early introduction and ongoing discussion that engages the adolescent to plan and prepare for the eventual transfer of care. Care responsibilities should be gradually shifted from the parent to the adolescent in a manner appropriate for the adolescent's age and developmental status. Good communication and collaboration between pediatric and adult care teams is crucial to ensure a smooth transfer of care. Incorporating the 6 core elements of transition can be helpful in developing a successful transition program. This narrative review summarizes the literature for health care transition from pediatric to adult care including the rationale, barriers, factors associated with successful transition, and special considerations. The intent of this review is to increase clinician awareness of health care transitions and the components necessary for an effective transfer of young adults with chronic respiratory disease. Understanding the transition process is an important consideration for both pediatric and adult clinicians, including respiratory therapists.

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Transition of respiratory technology dependent patients from pediatric to adult pulmonology care

Cited by 26 publications

References 38 publications

A multi‐institutional analysis of children on long‐term non‐invasive respiratory support and their outcomes

A multi‐institutional analysis of children on long‐term non‐invasive respiratory support and their outcomes

Building a Comprehensive System of Services to Support Adults Living with Long-Term Mechanical Ventilation

Transition From Pediatric to Adult Care for Young Adults With Chronic Respiratory Disease

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