Transition of Adolescents With HIV to Adult Care: Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions

Gilliam, Patricia; Ellen, Jonathan M.; Leonard, Lori; Kinsman, Sara B.; Jevitt, Cecilia; Straub, Diane M.

doi:10.1016/j.jana.2010.04.003

Cited by 92 publications

(130 citation statements)

References 14 publications

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“…Recentemente, Gilliam et al 47 publicaram um artigo sobre as características e práticas atuais para a transição de adolescentes seguidos em uma rede de intervenções para jovens com HIV ("Adolescent Trials Network for HIV/AIDS Interventions"). Foram realizadas entrevistas com 19 pessoas de 14 clínicas da rede.…”

Section: Adolescência E Hiv/aidsunclassified

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Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge

Machado¹,

Succi²,

Turato³

2010

J Pediatr (Rio J)

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Objective: To review the literature on transition from pediatric to adult-oriented health care and discuss this issue in the specific context of chronic conditions. Sources: MEDLINE and LILACS were searched for relevant English and French-language articles published between 1990 and 2010. Summary of the findings:The transition of adolescents with chronic diseases from pediatric care to adult-oriented services has been a growing concern among pediatric specialties. In recent years, young people living with HIV/AIDS have begun to reach adulthood, giving rise to several challenges. The studies reviewed herein discuss such relevant topics as: the difference between transfer, an isolated event, and transition, a gradual process; the transition models used in different services; the importance of transitioning in a planned and individualized manner; the need for comprehensive interaction between pediatric and adult-oriented care teams; the importance of joint participation of adolescents, their families, and health professionals in the process; barriers to and factors that promote successful transitions; and the special needs of adolescents with HIV/AIDS in this important period of life. Conclusions:Several authors agree that transitioning adolescents to adult-oriented health care should be a gradual process not determined by age alone. It requires a plan established with ample dialogue among adolescents, their families, and pediatric and adult care teams. However, there is little evidence to support any specific model of health care transition. This should prompt researchers to conduct more prospective studies on the theme, especially in more vulnerable groups such as adolescents living with HIV/AIDS. J Pediatr (Rio J). 2010;86(6):465-472: HIV, adolescents, transition, chronic disease. ResumoObjetivo: Revisar a literatura sobre transição de adolescentes da pediatria para a clínica de adultos, com enfoque na clínica da AIDS, discutindo o tema no contexto das doenças crônicas. Fontes de dados:A pesquisa bibliográfica utilizou os bancos de dados MEDLINE e LILACS , selecionando artigos disponíveis em inglês ou francês. Síntese dos dados:A transição de adolescentes com doenças crô-nicas, sempre atendidos por pediatras, para os serviços de adultos, tem sido uma crescente preocupação nas diversas especialidades pediátricas. Mais recentemente, jovens vivendo com HIV/AIDS estão atingindo essa fase e apresentando diversas dificuldades. Os estudos avaliados nessa revisão discutem alguns tópicos relevantes, como: a diferença entre transferência, um evento isolado, e transição, um processo gradual; os modelos utilizados nos diversos serviços; a importância de a transição ser feita de maneira planejada e individualizada; a necessidade de ampla interação entre as equipes pediátricas e os serviços de adultos; a importância da participação conjunta dos adolescentes, familiares e profissionais de saúde; as barreiras e os fatores que favorecem uma transição bem-sucedida; as necessidades e particularidades dos adolescentes com H...

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Section: Adolescência E Hiv/aidsunclassified

“…Os achados revelaram não estar bem definido o conceito de uma transição "bem-sucedida" entre os centros participantes, não havendo um consenso sobre pontos importantes para um programa de transição. Foi também salientada a falta de estratégias para avaliação do seguimento desses jovens após a mudança de equipe de saúde 47 .…”

Section: Adolescência E Hiv/aidsunclassified

Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge

Machado¹,

Succi²,

Turato³

2010

J Pediatr (Rio J)

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“…For instance, of 282 ALHIV receiving pediatrics or adolescent services, only 38% had discussed a transition to adult care with their provider on at least one occasion [11]. A study in USA involving 14 HIV sites also demonstrates the need for consensus on definitions and key elements of transition [16]. The WHO guiding document on HIV and adolescents recommends that transition from childhood to adulthood should be a focus for policymakers and program managers [11].…”

Section: Discussionmentioning

confidence: 99%

Adolescent HIV Care and Treatment in Uganda: Care Models, Best Practices and Innovations to Improve Services

Asire¹,

Nabukeera-Barungi²,

Elyanu³

et al. 2017

J Infect Dis Preve

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“…58 An alternative to using longitudinal studies to evaluate the impact of transition on patient outcomes and assess overall improvement in the transition process is quality improvement initiatives and evaluation designs. [66][67][68][69] Quality improvement research could help identify best practices for transition, 66 factors within transition that affect outcomes positively or negatively, 52,56,57 and individual predictors for successful transition. 52,56 Funding streams generally focus on specific diseases, but the field of transition research would benefit from more generalized research that can identify effective methods across disease groups.…”

Section: Discussionmentioning

confidence: 99%

Transition Care for Children With Special Health Care Needs

et al. 2014

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WHAT'S KNOWN ON THIS SUBJECT: More children with special health care needs are surviving to adulthood and entering the adult health care system. Effective transition of care can promote continuity of developmental and age-appropriate care for these individuals. WHAT THIS STUDY ADDS:Existing studies provide modest transition care support. Methods for providing transition care warrant attention, and future research needs are wide ranging. Consistent and accepted measures of transition success are critical to establishing an adequate body of literature to affect practice. abstractBACKGROUND: Approximately 750 000 children in the United States with special health care needs will transition from pediatric to adult care annually. Fewer than half receive adequate transition care. METHODS:We had conversations with key informants representing clinicians who provide transition care, pediatric and adult providers of services for individuals with special health care needs, policy experts, and researchers; searched online sources for information about currently available programs and resources; and conducted a literature search to identify research on the effectiveness of transition programs. RESULTS:We identified 25 studies evaluating transition care programs. Most (n = 8) were conducted in populations with diabetes, with a smaller literature (n = 5) on transplant patients. We identified an additional 12 studies on a range of conditions, with no more than 2 studies on the same condition. Common components of care included use of a transition coordinator, a special clinic for young adults in transition, and provision of educational materials. CONCLUSIONS:The issue of how to provide transition care for children with special health care needs warrants further attention. Research needs are wide ranging, including both substantive and methodologic concerns. Although there is widespread agreement on the need for adequate transition programs, there is no accepted way to measure transition success. It will be essential to establish consistent goals to build an adequate body of literature to affect practice.

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Transition of Adolescents With HIV to Adult Care: Characteristics and Current Practices of the Adolescent Trials Network for HIV/AIDS Interventions

Cited by 92 publications

References 14 publications

Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge

Transitioning adolescents living with HIV/AIDS to adult-oriented health care: an emerging challenge

Adolescent HIV Care and Treatment in Uganda: Care Models, Best Practices and Innovations to Improve Services

Transition Care for Children With Special Health Care Needs

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