Transition and Transfer from Pediatric to Adult Care of the Young Adult with Complex Congenital Heart Disease

Knauth, Alison; Verstappen, Amy; Reiss, John; Webb, Gary D.

doi:10.1016/j.ccl.2006.08.010

Cited by 118 publications

(98 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Typical adolescent milestones such as graduating from high school and leaving home can be particularly overwhelming when added to medical issues and developmental delays. 160,161 Many are unaware of the effects of risky behavior such as sex, competitive sports, and use of alcohol and recreational drugs on their cardiac condition. [162][163][164] Nearly one third of adolescent and young adult heart transplant recipients do not adhere to their medication regimens.…”

Section: Young Adultsmentioning

confidence: 99%

State of the Science

Riegel¹,

Moser²,

Anker³

et al. 2009

Circulation

750

366

View full text Add to dashboard Cite

Section: Young Adultsmentioning

confidence: 99%

State of the Science

Riegel¹,

Moser²,

Anker³

et al. 2009

Circulation

750

366

View full text Add to dashboard Cite

“…Some patients fail to get follow-up for more than ten years and typically demonstrate a poor level of knowledge about their heart condition [91]. Failure to address transition properly during adolsecence may result in an adult who cannot effectively be responsible for his/her own care [92].…”

Section: Transition To Adult Carementioning

confidence: 99%

Late Consequences of Chronic Pediatric Illness

Turkel

Pao

2007

Psychiatric Clinics of North America

118

View full text Add to dashboard Cite

“…[6][7][8][9][10] However, adolescents/young adults with these chronic diseases usually require some form of therapy or have symptoms of their disease at the time of transition. In contrast, survivors of adolescent/young adult or childhood cancer are frequently asymptomatic and in good health but often have limited knowledge of their prior disease or their long-term risks resulting from their disease and …”

mentioning

confidence: 99%

Critical issues in transition and survivorship for adolescents and young adults with cancers

Nathan

Hayes‐Lattin

Sisler

et al. 2011

Cancer

152

136

View full text Add to dashboard Cite

The majority of children, adolescents, and young adults diagnosed with cancer will become long-term survivors with many potential years of life ahead of them. Their journey from health through diagnosis and treatment to survivorship involves multiple transitions. Transitional services that should be available throughout this journey include healthrelated education, health surveillance and screening, management of cancer-related complications, and psychosocial support relevant to their developmental needs. Survivors require lifelong care that focuses not only on the medical risks arising from their cancer therapy, but also the psychosocial, educational, and vocational implications of surviving cancer. Because many community health care providers lack familiarity with the health risks associated with childhood or adolescent/young adult cancer, survivors must have sufficient health knowledge to advocate for risk-based cancerrelated follow-up; the provision of a treatment summary and care plan at the conclusion of their cancer therapy is an important tool for facilitating this process. The availability of resources for survivors varies by geography, health care system, and survivor characteristics. Adolescents and young adults who receive their care outside of a pediatric cancer center have particularly limited access. The limitations in cancer center resources (along with survivor preference) strongly suggest that the long-term care of survivors will need to be shared between the cancer centers and primary care providers in survivors' communities. Cancer 2011;117(10 suppl):2335-

show abstract

Transition and Transfer from Pediatric to Adult Care of the Young Adult with Complex Congenital Heart Disease

Cited by 118 publications

References 22 publications

State of the Science

State of the Science

Late Consequences of Chronic Pediatric Illness

Critical issues in transition and survivorship for adolescents and young adults with cancers

Contact Info

Product

Resources

About